[ddmcbride]

Hi I have been reading this site for a number of months as I contemplate quitting Cymbalta - however this is my first post.

I recently ran in to an acquaintance from high school at a social event who is now a rep for a drug company. (For what it's worth, not Lilly, and this site in particular was never mentioned).

While catching up I told her about my use of Cymbalta and that I'd been thinking about quitting but was worried about the withdrawal symptoms due to what I'd read here & elsewhere on the internet. She assured me that 90% of the time withdrawal symptoms from any regulated drug on the market are minimal (she said they must prove this to the FDA during trials) and that I shouldn't worry.

She went on to inform me that the drug companies are actively engaging in "false flag" (her words) / misinformation operations on the internet trying to scare people in to staying on their drugs. They have employees (usually regional managers) register domain names such as this one & allow people to perpetrate the notion that quitting a given drug is just too hard. Their reasoning being that for every one person who may get help from a site like this one twenty more will say "forget it! I'd rather continue using than go through that!!" - which is of course to the benefit of the drug company.

She also pointed out that drug companies are _very_ protective of their brand names and trademarks and that if they didn't support such sites they'd quickly shut them down for legal reasons (for instance using the registered tradename Cymbalta in the domain name of this site).

I certainly hate to offend anyone seeing as this is my first post but I'm terribly confused by all of this. Is this true? Is this web page legit? Does anyone know the owner? Have they met them? Can they vouch that this isn't a drug company front trying to keep me on their crap????????

H E L P ! ! ! ! ! ! ! ! ! :-(
Debra

[MaureenV]

I certainly hate to offend anyone seeing as this is my first post but I'm terribly confused by all of this. Is this true? Is this web page legit? Does anyone know the owner? Have they met them? Can they vouch that this isn't a drug company front trying to keep me on their crap????????

H E L P ! ! ! ! ! ! ! ! ! :-(
Debra


Don't worry Debra, we won't take office, it's a legitimate concern.


I know I'm for real for one, perhaps there ARE interlopers from time to time who only post once or twice, I know full well the regulars are genuine.

I mean, how many times can someone come on here and keep saying oh it's all too hard? Most of us have managed to make progress with our withdrawal.

My GP has also looked at this site and had no problems with what she saw here.

You mention that drug companies have to submit withdrawal information to the FDA. If you want to do a bit of searching, you'll find that the drugs are tested for a relatively short amount of time on sometimes healthy volunteers.

That does NOT represent the effect of withdrawal on those of us with other issues, on other drugs etc.

Anyways, if you want to get off Cymbalta safely and minimize side effects, there's more than enough information here to help. Those of us who've used the experience of those who've gone before have benefited greatly.

Personally, I'm down to about 4mg, and couldn't have achieved that without the help and advice I get here.


I hear what you're saying about for every one of 'me' another 20 may be scared off, but can't comment obviously, as who'd know?


Keep in touch here if you want to withdraw.

kind regards, Maureen.

[nursedeborah]

Debbie,
Guess you have not read enough posts. Try doing that, and see what you come up with.
Even the one's who came here thinking about getting off the drug, did so after they
read our stories, and heard the results we were having.

Also there is no legal way they can do anything about us saying this about their drug.
These are all personal stories that we have each had with this drug, and it's called
freedom of speech, the first ammendment.

They did do a study on this drug, and one of the girls killed herself in the bathrooom shower
on their property, three more killed them selves, and several more left the study. Did this
ever get reported to the FDA. NO, but has now been found out. zit's the drug reps that
don't tell the doc's the real side effects, or withdrawls. Why do you think it says on the
sample bottles, remove insert before giving to patient!! What don't they want us to know?
My doc leaves it in there, so I DO KNOW WHAT IT SAY'S!


Like Maureene said if you want to get off this drug, come back, (there's tons of support,
and more infor than you will find at your doc's office) my input

Debbie

[Junior]

Hi Debra

I agree with Maureen. The drug companies don't allow their studies to run long enough to get the full picture. I've heard of people getting off Aropax (Paxil) relatively easily, only to have a major 'wave' of withdrawal symptoms 6-7 months down the track.

I also wonder whether drug companies are aware of 'poop out'. My GP certainly wasn't. Thankfully he is learning from me.
For the record, 'poop out' is when a person builds up some sort of tolerance and basically goes into withdrawal while still taking the said drug!! According to people on another site I go to, people are finding that they can't stay on SSRIs or SNRI's longer than 12-15 years because of this thing they call 'poop out'.

Welcome to the site :)
Junior

[nursedeborah]

madtabby,
I am really with you. I was really offended by that person, and the way the things were asked.
I even wonder if they have ever been on this drug before. It does not sound like it, as she
would know what we are all living through now, and on the drug.

I guess when I feel like I am missing so much of my real life, I just am not in the mood for
something like that to come along.

Ooops, having some really angry feelings, wow! I am feeling something finally besides
numb!

Debbbie, starting to heal:)

[barney59]

ddmcbride

I am just now coming out of the hell that was CYMBALTA and CYMBALTA WITHDRAWAL. I am very sure that your drug rep friend was truthful about how deceitful drug companies are. We all know this to be true. What all, or maybe most, of us are posting comes from our soul. Its about the only thing we have left unscathed by this hidious drug. If you read only one other post, please read FDA REPORT under thread titled How To Find Support. Scroll down to Sept. 30th. The FDA is very aware of the issues regarding CYMBALTA, and the potentially serious withdrawls. It is just a matter of time before Lilly has to own up for its lies and half truths. BTW, the Indy Star did a FRONT PAGE article about CYMBALTA and how Lilly their friend CVS CAREMARK buddied up to send out misleading letters to physicians. This was in the Sunday edition Oct. 18th. Go to www.indystar.com It is a very interesting read. If you are legit, I wish you the best and a speedy withdrawal. Mine still continues into month 2.

B

[lifeafter]

I can't vouch for this website. But, I know I am just an average person who's life was destroyed by this evil drug. I wish that NOBODY would start taking it. I am a very real person that has lost everything directly because of this drug. I have also created many websites for friends with businesses and organizations that I am involved with. I did buy the domain name cymbaltahurts.com and plan on using it. I am the owner and will be the creator. I think that all these types of drugs should be banned! I am currently drawing up the flow chart for the structure of the site right now, and I guarantee I am not a "False Flag!"

Reading this post made up my mind to use that domain name. I wouldn't put it pass these drug companies to use what ever means to promote their drugs, no matter what the cost.

God Bless

[nursedeborah]

lifeafter,
Went to your site, didn't get it, or what to do while there? I am not sure, but I don't
think we are allowed to do that here, I think it's a form of spam? Not sure but you
might want to check with the terms, and conditions.

All I know is this drug ruined my life. Getting off of it is not that easy either, but
now I am having better days the past two, sooooooooo tired, no blood.

Debbie

[lifeafter]

Debbie,
The site is not up yet. I have the domain name but haven't put anything together yet. If you go to the site now you will see nothing.

God Bless

[nursedeborah]

typed the address into web browser, and got something!
You try it.

Debbie

[lifeafter]

Oh, yeah...sorry, thats just a place holder page by the hosting company. I Will be removing that soon.

[nursedeborah]

I knew there was something there:)

Debbie

[nursedeborah]

Michael, on 09 December 2009 - 03:46 PM, said:

Are you kidding me 2 months I have to make a living here! What the heck am i suposed to do? it is apperent that the drug company isn't going to do anything to help me pay my bills will i can't hardly make my way around the house.

I am really frustrated with this. I called John Lechleiter directly but unfortunatelly he is not taking any calls!!!!! wonder why???

So just for those of you who don't have his office # lets see if we can get them to change it. 1-317-276-2000 And yes he is in the building.LOL

Call it every 2 min if you can.

Michael

Michael,
Thanks for the information!
Also just want to say to the one's that come here, and are leary, or think this maybe the company's site
why in the helll would we be calling the drug noxious substance, and that it's ruined our live. We are all
saying negative stuff about the drug, how it has ruined our live, how we don't know if it's permanate damage,
when the withdrawls will stop, oh so much more, just read the frigging posts!!!
.


Also just what we say to eacother, and how we telll what it's like gettiing off this stuff, living with the
most incredible horrific withdrawls know to any drug out there.

I think that maybe the Cymbalta has caused those that come here to be paranoid, and it will do that too. Just
check out the withdrawls, as they are so close to being like what it is like just being on the drug.

I am really not sure who or what people like you are all about when we get one, other than try to screw with a
new person here, and make them doubt this works. So maybe you are the company reps??? Also they do know about
the study where the girl hung herself during the trials, and they never told the FDA!!!! They have lied to the doc's
so they don't know anything about this drug either!!

The people here know more about this drug that anyone else. So what if they shut us down, so we atart a new one with
a different name, "The Slug Drug" as that's the other name for this crap.

Always has to be someone now and then that comes along to rock the boat, but you will never capsize it!

Debbie

[lifeafter]

Still working on the right web scripts to use for cymbaltahurts.com And, of course I am by no means a "false flag." I am a real person that has really suffered.

Just one thing that is very important: I am not using this website to promote any website what-so-ever.

God Bless

[nursedeborah]

Michael, on 10 December 2009 - 04:58 PM, said:

I am a little better day today. I have made many atempts to contact Eli Lilly. with no success. I am working on another approch. I have made contact with the Washington State Attorney Gererals office to lodge a formal complaint. I don't know how far I will get with this but it is worth a try. You know I have never delt with this kind of stuff before so it is all new to me. I am going to continue to work every angle I can. I talked to a lady that is from the public affairs office. of Eli Lilly! she took my number and what do you know no one called me back Imagin that??? I am about as serious with this as I have ever been there is no reason why people should have to go through this. I am hitting the local Media next and then the National. whatever it takes. If anyone on here wants to know if I am legit Call me or email me my Cell # is 509-679-1737 I live in washington state and my email address is wade146@hotmail.com. Any one any time. this miss representation of this drug and the safty of people already needing help is the most important thing i can think of. thanks Debbie! it is best to have multipule contact avenues. so Facebook or myspace or any other outlet lets keep everyone in touch.



Michael W. Nelson

Michael,
I am on face book, under nursedeborah look me up you will love the picture I have there.
Will add you to my contacts for e-mails too, here's mine freedu2we@verizon.net.

I am so with you, I also had started a petition at ipetitions.com but I didn't know how
to do all the other stuff there so it would be e-mailed to tons of people. Maybe you can
help out with that?

We willl get them, I can't have back what they have taken from me, the hell I have had to go
through, and the way I have had to live, but I so want to help other, and also make sure it get's
taken off the market.

I too had thought about the media, I remember when 20/20 did the thing on Paxil, and that's when
I knew I was not going insane as I was having these terrible electrical shocks to my head all the
time. Saw the show, and it aved my life. Did that one cold turkey, didn't know any better, didn't
even think to look on line, was that out of it then due to cold turkeying that stupid drug.

Keep me posted.

Debbie

[MichaeltheAngel]

I was wondering if anyone knows why Eli Lilly sent me a return envilope for the meds I have left? It just makes me think that they just want to take any evidence that I may use against them. The gal that called today was from the safty team and she was so sweet until I told her that i was going to keep it and turn it over to the Attorney Generals office and they could test it. She didn't like that too much. I think she was from the Clean up team not the safty team.

MIKE

[nursedeborah]

nursedeborah, on 11 December 2009 - 02:19 PM, said:

Michael,
I am on face book, under nursedeborah look me up you will love the picture I have there.
Will add you to my contacts for e-mails too, here's mine freedu2we@verizon.net.

I am so with you, I also had started a petition at ipetitions.com but I didn't know how
to do all the other stuff there so it would be e-mailed to tons of people. Maybe you can
help out with that?

We willl get them, I can't have back what they have taken from me, the hell I have had to go
through, and the way I have had to live, but I so want to help other, and also make sure it get's
taken off the market.

I too had thought about the media, I remember when 20/20 did the thing on Paxil, and that's when
I knew I was not going insane as I was having these terrible electrical shocks to my head all the
time. Saw the show, and it aved my life. Did that one cold turkey, didn't know any better, didn't
even think to look on line, was that out of it then due to cold turkeying that stupid drug.

Keep me posted.

Debbie

Michael,
Was a great suprise to find you on FB, or you to have found me.

Hope all is well today, I just feel a little foggy, no big deal,
and letting my landlord get to me, but stoppping that real fast!
After what I have gone through I keep telling myself nothing will
ever be able to rock my boat again. Only someone who has gone through
this withdrawl thing would understand. Talk about having Cancer of the
mind, I so had that from this crap.

Thank God I got to see that it does get better after time goes by, as
what I have left because of this sh@t I can do something about it.

Debbie

Debbie

[nursedeborah]

Michael, on 10 December 2009 - 04:58 PM, said:

I am a little better day today. I have made many atempts to contact Eli Lilly. with no success. I am working on another approch. I have made contact with the Washington State Attorney Gererals office to lodge a formal complaint. I don't know how far I will get with this but it is worth a try. You know I have never delt with this kind of stuff before so it is all new to me. I am going to continue to work every angle I can. I talked to a lady that is from the public affairs office. of Eli Lilly! she took my number and what do you know no one called me back Imagin that??? I am about as serious with this as I have ever been there is no reason why people should have to go through this. I am hitting the local Media next and then the National. whatever it takes. If anyone on here wants to know if I am legit Call me or email me my Cell # is 509-679-1737 I live in washington state and my email address is wade146@hotmail.com. Any one any time. this miss representation of this drug and the safty of people already needing help is the most important thing i can think of. thanks Debbie! it is best to have multipule contact avenues. so Facebook or myspace or any other outlet lets keep everyone in touch.

Michael,
How could I have forgotten, you can file an online report with the FDA, and Consumer's Affair's
I know the site is on here somewhere??? Easier to just look up.

Deb

Michael W. Nelson

[nursedeborah]

MichaeltheAngel, on 16 December 2009 - 12:10 AM, said:

I was wondering if anyone knows why Eli Lilly sent me a return envilope for the meds I have left? It just makes me think that they just want to take any evidence that I may use against them. The gal that called today was from the safty team and she was so sweet until I told her that i was going to keep it and turn it over to the Attorney Generals office and they could test it. She didn't like that too much. I think she was from the Clean up team not the safty team.

MIKE

Mike,
Are you being serious? I thought you just left your name, and a message, how did they mail something to you? They could care less about what we have left in our homes, I was never sent anything and like I told you I reported them to the FDA, and the Better Business Beaurea(sp).

Also beaware that the company rep's have access tot his site, and read what we say all the time.
I will give you their site, all can join. You can see what they are saying, and say something too!! it's all fair in Love, and War!

Debbie

[lifeafter]

I contacted lily (on the phone) about 6 months ago telling them what their drug did to me. All they did is take down my info and "if need be" their "specialist" would call me back. They have all of my info, but no word yet from them. Also, heard back from my lawyer. He is not interested in pursuing a class action for me.

I just can't imagine what Traci Johnson's parents and family are feeling.

God Bless

[nursedeborah]

lifeafter, on 21 December 2009 - 10:17 AM, said:

I contacted lily (on the phone) about 6 months ago telling them what their drug did to me. All they did is take down my info and "if need be" their "specialist" would call me back. They have all of my info, but no word yet from them. Also, heard back from my lawyer. He is not interested in pursuing a class action for me.

I just can't imagine what Traci Johnson's parents and family are feeling.

God Bless

Who is Traci Johnson? Sorry about your lawyer. I do think it is going to take more time.
It's wrong, but it's just how it goes.

Debbie

[Junior]

Tracy Johnson was the healthy volunteer who was involved in the clinical trials for Cymbalta. She committed suicide.

[nursedeborah]

Junior, on 21 December 2009 - 04:18 PM, said:

Tracy Johnson was the healthy volunteer who was involved in the clinical trials for Cymbalta. She committed suicide.

Junior,
OMG, I didn't know her name. I knew about what happened, but even when I
read it, they didn't say her name. Come to think of it I can't even
remember where I was reading about that!!

How are you? I had a major breakthrough about a couple of weeks ago, and
it has been so wonderful. Still very tired, and don't have much energy.

Oh I have been having this thing where I will just not be able to stay
awake in the am, and just fall asleep. I will be typing away, and then
wake up with my laptop in my lap, and look at what I have written.
Anyway in the last couple of days have read that a couple other people
have the same, and they too thought they had sleep apnea, went for the
sleep study, and it has something to do with the Cymbalta!!!

What's so strange is to have something, and then all of a sudden another
comes to the table with the same thing, but symptoms that are never mentioned
before. I have lots that I too forget about as I have gotten so used to them.

Take care, and Merry Christmas,
Debbie