Cymbalta Withdrawal Support and Cymbalta Side Effects Help: I Need A Break From This - Cymbalta Withdrawal Support and Cymbalta Side Effects Help

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I Need A Break From This I'm going to suspend my tapering to try to stabilize

#1 User is offline   sarah 

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Posted 16 July 2010 - 03:45 PM

I can't do this anymore.

In May I started tapering from 60 mg- I stepped from 60mg to 45mg, then down to 30. The jump from 30 to 25mg was an especially rough one and then from 25 to 22.4, and 22.4 to 20. I was waiting at least 2 weeks between jumps and a few days ago realized that even if I pick up the pace a bit I will not be rid of this horrible stuff until October. The thought that I will have to go through at least 3 more months of this horrible sporadic ride is more than I can handle, and I decided I can't do this right now. I began to wonder if it needs to be so hard, and grew really frustrated at the fact that nobody really knows. I am so glad I found this forum to know that this isn't in my head, but the bottom line is that we have all been left to figure out our best guess of what is going to work for each of us. Nobody knows for sure and nobody is going to have the exact same experience. I can follow the recommendations to reduce 10% each time I reduce my dose, or I can take out 3 beads every 6 days or I can follow Lilly's horrible advice of stopping cold-turkey at either 20 or 30mg. I have no idea which is going to be the least painful approach, or maybe there's an entirely different approach that nobody knows about that would make the process totally painless...

Using the method I'm using now, however, means it's a toss-up of whether my day is going to be rough but bearable, or an absolute nightmare. I can mostly handle the physical symptoms- not enjoyable but at least manageable- Heartburn, indigestion, tinnitus, visual hallucinations, brain zaps, dizzy spells, weird rashes. nausea, and horrible insomnia... The mental stuff is much harder for me. I feel so unstable and can flip between being fairly calm and 'okay' to flying off the handle- losing my temper and being filled with rage and lashing out at myself or anyone around me. Then, just as quickly, I can collapse into tears and become overwrought with such empty hopelessness that it's hard to remember that it's the Cymbalta doing this and that it will, eventually, pass.

Last night I talked to my boyfriend about the idea of staying at 20mg for a while, to see what he thought about it. He's been as supportive as I can imagine someone could be without having been through Cymbalta withdrawal himself. He understands my urgency to get this stuff out of my system as quickly as possible, but he also agreed that it might be good to give myself a break. He mentioned 'quality of life' and I realized that mine has take a major downward turn these last couple of months- I feel like I am struggling and miserable more often than not, and I need a break from this rollercoaster so I can try to catch my breath and give my brain a chance to get used to the changes I've made by removing 40mg of a medication it had become accustomed to.

I think I am just totally exhausted. I am both physically exhausted from the insomnia that wakes me up every night at 2am and keeps me tossing and turning until morning, and mentally exhausted from the crazy moodswings, anxiety, and depression I've been dealing with.

I have this idea that I will give myself at least a month to stabilize at 20mg. (Maybe longer if I don't feel ready to dive back into the withdrawal process at the end of that month.) When I feel ready again and I have some energy stored up maybe I'll arm myself with vitamins and healthy food and as stress-free a week as I'm capable of creating and then drop 5mg to see what happens. I don't imagine it will be easy, but at least I'll be ready for it. (If it's too horrible I can always go back up a few mg to lessen the side effects). Then I'll give myself a big chunk of time to re-stabilize and brace myself again for another 5mg drop... and so forth until this is over.

I wonder if anyone else has tried something like this?

This morning I was thinking about how everyone does things differently- some people yank off their bandaids really fast so there's a flash of pain but it's over quickly, and some people can't bear to do that so they pull them off slowly to minimize the pain but draw the process out... Maybe there's a method in between these two approaches that could work, too?

I'm rambling a bit, I know, but it's hard to know where else to put down these thoughts.

Thanks to everyone who takes the time to read these posts and offer their support- I think it's amazing that a group of strangers can become such large parts of each others lives...
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#2 User is offline   Ms_M 

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Posted 16 July 2010 - 03:54 PM

Some folks here have reported that weaning down like that is very helpful... Stay at one level until your symptoms subside, then step down.

Stay strong! :)
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#3 User is offline   JustJulz 

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Posted 16 July 2010 - 07:53 PM

I think you are making a wise decision to stabilize for a while and build up your reserves and your resolve. You have made tremendous progress, and you know how taxing it has been so far. From what I have been reading, the last 20 is the toughest.

A year ago I was on 60mg, and had only been on it for about 3 or 4 mos at that dose. I shuffled my way down to 30 by I think the first of September, or maybe it was later than that. Then I stayed at 30 until about April of this year. Then shuffled down to 20mg and have been here for 2.5 months. Now I am making more of an effort to gradually reduce my daily dose. I hope I can keep at it steady, but if it gets too challenging (rage or depression), I'll hold steady for a while.

You've got to give your body a chance to catch up to what you have done, and it needs to retrain itself to make and distribute the chemicals that the drugs have been taking over for. You're doing the right thing.

Hang in there and let us know how it goes.

JustJulz
Keep on keepin' on... we'll get there eventually!
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#4 User is offline   sarah 

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Posted 16 July 2010 - 11:56 PM

Thank you for your replies, Ms_M and JustJulz. It means a lot to know people are listening, and offering their support.

I wrote that post from work today and was feeling sort of desperate. I feel less unsteady now, but still think it's a good idea to slow way down and give myself a breather.

JustJulz, when you wrote "You've got to give your body a chance to catch up to what you have done, and it needs to retrain itself to make and distribute the chemicals that the drugs have been taking over for. You're doing the right thing." I got tears in my eyes. I think it's really hard for me to admit that I don't have control over the situation I'm in right now, and I think it's good for me to be kinder to myself than I sometimes am. I think I have a tendency to try to 'power through' things- probably learned from watching my mom never give in to a cold or the flu- But I think this process is humbling, because it's not something I can just 'power through'. Instead I need to listen to my body and my brain (even when they aren't making much sense) and take as long as I need to get through this in a way that works for me- and that allows me to be kind to myself and feel like I have a bit of control in the process...

Let me know how it goes, JustJulz, as you continue to step down from 20mg. (or re-direct me if you have already posted this in a thread somewhere else?) I know everyone's different, but it's very helpful to know what other people are going through, and it gives me hope when I know that people are successfully making their way to being Cymbalta-free!
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#5 User is offline   cookie 

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Posted 17 July 2010 - 02:48 AM

Dear Sarah:
First of all, congratulations. It is such an accomplishment to have reduced from 60mg to 20mg!!!! as you say is a 40mg decrease which your brain need to get adapted to.
You are so good on describing what you feel. And believe me, there are other people that feel the same way. You are not alone.
I can so relate with your story, because I also started weaning slowly from 60mg. The hardest jump for me was from 22,5 to 20mg. Actually I had to stay at 20mg longer than the previous drops/dosages. Because I wasn´t feeling well

I think that the goal must be to be med free, but maintaining quality of life during the process.
So I totally agree that you stay on 20mg for a while until symptoms subside and you have the energy to keep on fighting. The fact that you are stopping for a while doesn´t mean that you are giving up. You are just taking a break from this, which I know is not easy.

You are really lucky to have your boyfriend´s support. During the hard times, we realize who really cares for us. That is what really matters

Hugs
Cookie
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#6 User is offline   JustJulz 

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Posted 18 July 2010 - 06:24 PM

Hi Sarah, thanks. Your response is helpful to me too, to help remind me to be a little more kind to myself too. I think I need to stabilize for a couple days, be a little more diligent with vitamins, rest, etc. Today was a doozy, and I am at about 17mg.

I really understand about "powering through it." I just want to push, push, push and get it done. It's just not going to happen that way I think. Dealing with everything that brings us to need an antidepressant I think is supposed to teach us how to modify how we usually do things so that we can cope better with changes and such. But when things get happening too fast, the antidepressants kind of help us cope. But now that we have a little better understanding and control of our life stressors (hopefully), we know we need to get off the ADs, and that requires a similar set of skills. Know yourself, know your triggers, and ask for help. The last one I think has got to be the hardest one, especially when you are someone who is used to getting things done, and doing it all by themselves.

Hang in there and check in once in a while to let us know how you're doing. It'll help me too. Thx!
Keep on keepin' on... we'll get there eventually!
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#7 User is offline   sarah 

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Posted 19 July 2010 - 05:34 PM

Thanks for your words of encouragement, Cookie. I see your name a lot on this website and I think it's really great that you take the time that you do to read and respond to so many people! You seem to have a very big heart...

Thanks for your response, too, JustJulz. What you wrote makes sense and it's good to hear someone else verbalizing something so close to what I'm feeling.

It's been 9 days now since I dropped from 22.4mg to 20mg. I've found that the worst of my emotional discontinuation symptoms hit me about 6 days after each drop- I felt pretty awful 3 days ago but powered through- I went for a couple of long runs over the weekend and was actually able to catch up on a bit of sleep. I'm feeling a bit more grounded today and am also feeling better about my decision to stabilize for a while. I'll need to remind myself of how I'm feeling right now, though, because it's easy to get caught back up in the 'push push push' mentality to just get through this ASAP.

I'm sorry that you had a rough day on the 17mg. I wish I had the perfect formula to help everyone (and myself) through those rough days but I'm afraid nobody does... Yes- do be kind to yourself, though. And your point of knowing when to ask for help is a good one- not something very many people are good at doing, but what better time to get some practice, I suppose...

Even while I am taking a bit of a break from tapering I will continue to log onto this site- I can appreciate the struggle that people are going through and if I have anything to offer, or to learn, it is worthwhile to spend time here.

Good luck and hopefully you are feeling better today.

Best,

Sarah
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Posted 19 July 2010 - 07:41 PM

Dear Sarah:
Each one of you on this site, is also helpful to me. I have learned so much by reading the posts.

Yes it´s so hard not to get caught in the "push push push" mentality. Because of travelling and family commitments, I will also have to go slower on my drops.

If you are able to exercise while your stabilizing it will be helpful.

Hugs
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#9 User is offline   JustJulz 

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Posted 20 July 2010 - 08:45 PM

I decided to stay at 17mg for the week. Couldn't risk too many ups and downs. Nice thing is that maybe by stabilizing, it is also helping me feel like exercising. I feel better, so then I want to feel even more better, so exercising helps that. Perpetuating progress!

How are you doing on 20mg now, Sarah? How many days so far?

Keep up the good work-
Julie
Keep on keepin' on... we'll get there eventually!
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Posted 21 July 2010 - 12:26 AM

View PostJustJulz, on 20 July 2010 - 08:45 PM, said:

I decided to stay at 17mg for the week. Couldn't risk too many ups and downs. Nice thing is that maybe by stabilizing, it is also helping me feel like exercising. I feel better, so then I want to feel even more better, so exercising helps that. Perpetuating progress!

How are you doing on 20mg now, Sarah? How many days so far?

Keep up the good work-
Julie



Hey Julie:
Exercising is excellent!!!!! I´ve found that yoga helps me so much to improve my mood and reduce my anxiety.
I totally agree on stabilizing, and having the energy to exercise.
I am on 19mg right now.
Hugs
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#11 User is offline   sarah 

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Posted 21 July 2010 - 01:16 PM

View PostJustJulz, on 20 July 2010 - 08:45 PM, said:

I decided to stay at 17mg for the week. Couldn't risk too many ups and downs. Nice thing is that maybe by stabilizing, it is also helping me feel like exercising. I feel better, so then I want to feel even more better, so exercising helps that. Perpetuating progress!

How are you doing on 20mg now, Sarah? How many days so far?

Keep up the good work-
Julie


Today is my 10th day of being on 20mg. (I am also taking 10mg of Prozac, and have been since the drop to 25mg when I realized I was feeling in over my head...)

I'm feeling happy with my decision to stabilize for a bit- maybe that's contributing to my overall sense of being better these last few days? Just the fact that I am reclaiming control? Whatever the reason, I will stick with 20mg for maybe a month or so. I have a lot going on through mid September- travel and work stuff, weddings and the birth of a new niece! Also my doctor is taking a vacation... There are a lot of reasons I think it's a good time to slow down and not let the tapering interfere with everything else on my plate.

Exercise has been an amazing help to me too! I'm glad it's a help for you, and that you are feeling better!

Best,

Sarah
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