Cymbalta Withdrawal Support and Cymbalta Side Effects Help: 3 1/2 Years Of Cymbalta - Cymbalta Withdrawal Support and Cymbalta Side Effects Help

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3 1/2 Years Of Cymbalta

#1 User is offline   notgivingup 

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Posted 09 October 2011 - 12:48 AM

I have struggled with anxiety & then the onset of depression since I was a child. I look back and don't remember the two not being there. When I turned 18 and was of legal age to take an anti anxiety/depression med, I did. It all started there.....10 years ago. The first thing I want to say is when you go into a Doctor (MD) and tell them that you are feeling anxious, nervous, & just not normal, they don't check you over and decide to run some tests to find out what's going on (in most cases) they prescribe you an anti anxiety/depressant....there all better, right???? WRONG!!!!! These drugs are terrible and I speak from many years of, awful experiences, while having to try @ least 7 different drugs. Throughout the past ten years, I have tried 2 other times (not including right now) to get off of my medication and see how life went. About 3 months in, both times, I experienced a sudden panic attack/episode and ran right back to my Dr. the very next day. I said " nope I can't handle life, something very scary happened to me yesterday making me feel as though I was going to die Dr. I can't live like this, I need to be back on my medicine." Without a blink the prescription was called in and I was on my way to pick up more of this "poison" I had been feeding my body.
The last 3 1/2 years I was on Cymbalta. The reason I say "was", is because I have been free of it for almost 4 months now! I never thought I could do it. Withdrawal from this medication is horrendous, I feel for those of you who have experienced all of the symptoms that make a person feel absolutely crazy! When I decided to get off of Cymbalta I talked to my Dr. & did it VERY gradually, much slower than he advised, because I had done this twice before with Paxil and was also a mess, so I new a few days, for me, just wasn't enough. I was on 90mg, I went down to 60mg, for about 3 weeks, then 30mg for 3 weeks, then off the medication. I had not heard of making your own capsules and counting the beads, otherwise I would have done this and made it even more gradual. I knew to expect the actual "normal" withdrawal symptoms. The most common for me, are brain "zaps", light headedness, figity, headaches, disconnection from reality (somewhat of a "floating" feeling).... this had always lasted 6 days to the "T"!! So this is what I expected with the Cymbalta. I spent at least 9 days with SEVERE "brain zaps" and all of the others I said I had had before. I literally thought it would NEVER stop!!! After this I went through 2 weeks of feeling "ok", but not myself. Next, 2 weeks of severe depression and anger...I would wake up in the morning and watch TV for an hour and go back to bed, I was sleeping all day and all night, this was the most scary feeling, I had never felt this weak before and no matter what i tried to think about I couldn't pull myself out of this "slump". I knew it was from not being on my medicine and hoped it would pass, like the other symptoms/withdraws.....it did, to an extent. I then dealt with a few weeks of extreme disconnection from reality,my husband, my family, my friends, & yes, even my dog!!! I was snapping and yelling at everyone, extreme anger spouts had taken me over!! I have never been an angry person, what was happening to me? At this point my husband was really starting to wonder, if I had made the right choice.
Now bringing you up to date, as of what I'm experiencing now, after being off of the drug for almost 4 months..... ANXIOUS...WOW!!, that's the only way I know how to put it. I have only had one full, blown, panic attack and luckily my husband was with me and able to help me to the car, until I could pull myself together and return to the family function we were at....talk about embarrassing!!!! And guess what??? It was precisely 3 months after being off of the medication, that this happened to me again. The difference? I didn't run back to the Dr. I have decided to take this in my own hands, with the support of my family, especially my sister, and beat it once and for all with alternative methods, rather than prescribed drugs.
My opinion of Cymbalta would be that unless you want to be on it the rest of your life, which I don't recommend, then DON'T use this drug.....It has ruined so much for me and I am still so angry that this type of medication can even be given to people. I feel as though it has changed my whole body chemistry! Like I'm not even close to being the same as I used to be, which is hard to remember because it has been ten years of continuous meds.
There IS life after Cymbalta.....I am still learning how to deal with each day, one at a time. I am still VERY irritable, angry, and have problems with compulsive thinking, or ruminating on issues. I can't "shut my brain off" at night to fall asleep. This is why I'm awake @ 1:30am writing on this forum!!! I have visited several therapists, to try and help with the process of eliminating anxiety and depression without Cymbalta and even a group session that I only went to once, after part of an hour and a half was a class of medications and how " we all needed to take them our bodies are in crisis"!,this is what they were telling people in this group, after they had assured me this program would 100% support someone trying to live without the meds! But the first thing they say is, "well maybe let's just try a low dose of your medication to get you through this time". AAAHHHHH I want to smack them all!!!! I'm there to get their help WITHOUT the meds and I always make that VERY clear and before I know it, they are trying to convince me to go back on them. I swear these people have never dealt with the withdraws and everything else that goes along with getting off of this drug and how it literally changes who you are!! I even had an MD try to tell me there are some "safe meds" on the market that are proven to be ok to take while being pregnant!!!! (As this was a concern of mine in the future) I laughed right in his face...seriously!!
Every day gets a little better and I have visited a wellness center near me and this is the most amazing thing I have ever experienced in my life!! They are positive, helpful, & 100% supportive. They gave me hope again that I will succeed!!!
I've read others advice, struggles, & also some overcoming the drug!!! This makes me so happy that some are able to do it, but so sad that it has made it rather impossible for others to get off of. It's not right that a prescribed drug can control one's life like this. Cymbalta should be destroyed!!!!
I feel loads better after sharing...some of my story, the important parts, I guess. I am willing to email with anyone needing support, answers, or just someone to talk to about getting off of Cymbalta. Let me tell you, if there is a side affect, I've dealt with it!!!!!

NOTgivingUP!!!!
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#2 User is offline   CindiEponabri 

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    To get off of Cymbalta, just the beginning of getting my body clean and sober and off of all of the medications that doctors insisted I needed.

Posted 09 October 2011 - 07:23 PM

"I have struggled with anxiety & then the onset of depression since I was a child. I look back and don't remember the two not being there. When I turned 18 and was of legal age to take an anti anxiety/depression med, I did. It all started there.....10 years ago. The first thing I want to say is when you go into a Doctor (MD) and tell them that you are feeling anxious, nervous, & just not normal, they don't check you over and decide to run some tests to find out what's going on (in most cases) they prescribe you an anti anxiety/depressant....there all better, right???? WRONG!!!!! "

I was talking about this very thing with my husband last night. Doctors are suppose to check you physically before you take the meds and while you are on them. In the 10 years that I have been on anti-depressants, this NEVER happened. I never questioned it, I just put all of my trust in my doctors, believing they knew what was best for me.

Like you said, WRONG!

I am now on day one of leaving Cymbalta. So far so good. I expect it will take me 6 weeks to taper down from 120mg to 0!

I've been collecting ideas of ways to cope and I think it will be okay.

Cindi
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Posted 09 October 2011 - 11:15 PM

View PostCindiEponabri, on 09 October 2011 - 07:23 PM, said:

"I have struggled with anxiety & then the onset of depression since I was a child. I look back and don't remember the two not being there. When I turned 18 and was of legal age to take an anti anxiety/depression med, I did. It all started there.....10 years ago. The first thing I want to say is when you go into a Doctor (MD) and tell them that you are feeling anxious, nervous, & just not normal, they don't check you over and decide to run some tests to find out what's going on (in most cases) they prescribe you an anti anxiety/depressant....there all better, right???? WRONG!!!!! "

I was talking about this very thing with my husband last night. Doctors are suppose to check you physically before you take the meds and while you are on them. In the 10 years that I have been on anti-depressants, this NEVER happened. I never questioned it, I just put all of my trust in my doctors, believing they knew what was best for me.

Like you said, WRONG!

I am now on day one of leaving Cymbalta. So far so good. I expect it will take me 6 weeks to taper down from 120mg to 0!

I've been collecting ideas of ways to cope and I think it will be okay.

Cindi



That is so true. Doctors must check you physically before prescribing meds and while you are on them. After 6 years of taking antidepressants I was the one (not my psychiatrist) to check my thyroid function and it turns out I had hypothyroidism. That could mean I didn´t need antidepressants in the first place and my depression could have been treated with thyroid meds. On the other hand after 6 years of psychotropic meds (and gaining lots of weight) I developed high sugar problems. Again, my doctor never told me to check my sugar levels, I had the iniciative on my own.
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#4 User is offline   CindiEponabri 

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Posted 16 October 2011 - 01:56 AM

View Postcookie, on 09 October 2011 - 11:15 PM, said:

That is so true. Doctors must check you physically before prescribing meds and while you are on them. After 6 years of taking antidepressants I was the one (not my psychiatrist) to check my thyroid function and it turns out I had hypothyroidism. That could mean I didn´t need antidepressants in the first place and my depression could have been treated with thyroid meds. On the other hand after 6 years of psychotropic meds (and gaining lots of weight) I developed high sugar problems. Again, my doctor never told me to check my sugar levels, I had the iniciative on my own.


I had one blood test for thyroid disease that told the doctor I needed to by on Synthroid, which I took for a year. I didn't see any change one way or another. I started wondering if I really need to be on it, so I just stopped taking it. Three months later I went in for a blood test for a variety of things. When they called back to tell me my results, she never mentioned thyroid. When I asked how my thyroid test was, she said "oh, that's just fine, normal." I told her that was very interesting because I hadn't been taking the Synthroid for the past three months, so wouldn't that indicate that I didn't have a thyroid problem after all?
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Posted 16 October 2011 - 07:22 PM

View PostCindiEponabri, on 16 October 2011 - 01:56 AM, said:

I had one blood test for thyroid disease that told the doctor I needed to by on Synthroid, which I took for a year. I didn't see any change one way or another. I started wondering if I really need to be on it, so I just stopped taking it. Three months later I went in for a blood test for a variety of things. When they called back to tell me my results, she never mentioned thyroid. When I asked how my thyroid test was, she said "oh, that's just fine, normal." I told her that was very interesting because I hadn't been taking the Synthroid for the past three months, so wouldn't that indicate that I didn't have a thyroid problem after all?



The good thing is that your thyroid is functioning well. The bad thing is that sometimes we are prescribed meds for life that we don´t really need.
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#6 User is offline   vettergirl 

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Posted 26 March 2012 - 07:58 PM

You could also have Hashimotos Antibodies that go up and down with your thyroid. One day up and the next..down!
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#7 User is offline   vettergirl 

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Posted 27 March 2012 - 10:38 AM

I am on day 10 of cymbalta withdrawl. The ears are still rining but I have energy and can think today. I went on T3 for the hashimotos thyroid condition. I dont have any lingering depression. I have been treated for the last 15 yrs with synthroid (no help) with antidepressios and just about everything else! Crohns, fibromyalgia, and every thing else that goes along with autoimune problems. The doctor put me on cymbalta even though I told him that i about went nuts going off prozac. I didnt know that it was an antidepresant untill coming on here. He said it would work for the body aches and pain...did for a while but just like everyone else it quit working so I went up to 60mg after about a yr. Mistake!!!! Terrable pain around my chest and I could not swollow anymore without gagging, again didnt know it was the devil drug. I havnt eaten much since going off of it so I dont know how well that has resolved but I have lost about a pound a day since going off this stuff. 131 lbs down to my normal weight of 121. But I havnt had clothes on for the last 10 days but my huge belly is gone. Still shaky but not throwing up but the other end is really sore!!!!! Hoping the poops will stop today. The pain meds and xanax has gotten lots of use over the last 10 days but I am planning on going down and hopefully OFF of those too. The T3 is deff helping but I had to go online after researching because the doc wouldnt give it to me...imagine...all the pain meds I want and antidepression meds but no to T3???? Go figure?????
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#8 User is offline   vettergirl 

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Posted 07 April 2012 - 08:20 PM

Well..its now the 7th of april..its getting easier but for the
last 3 days I felt like I had shingles on my leg. I read up on it and found it was another withdrawal symptom.. Doing better but still not great. I am now on thyroid bought from thiland..that feels better, reduced pain meds. My insurance "wellaware" program called and gave me all sorts of crap for going off cymbalta without informing my doctor. Told me I would be labled as a diffacult patient.. Yes after 15 yrs of being put through surgerys, tests and all sorts of meds. I am no longer a conforming patient.
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#9 User is offline   vettergirl 

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Posted 07 April 2012 - 08:25 PM

I forgot to add the nurse on the other end agreed that I COULD be right about the Thyroid being the cause of all my problems...
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#10 User is offline   janz 

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Posted 09 April 2012 - 09:57 AM

Please have you thyroid checked not just the labs----I had thyroid cancer and after the thyroid was removed I was able to get off Cymbalta which I now call the other 'C' word. Cancer and Cymbalta what a mix.
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#11 User is offline   happyzapynot 

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Posted 09 April 2012 - 03:23 PM

View Postvettergirl, on 07 April 2012 - 08:20 PM, said:

Well..its now the 7th of april..its getting easier but for the
last 3 days I felt like I had shingles on my leg. I read up on it and found it was another withdrawal symptom.. Doing better but still not great. I am now on thyroid bought from thiland..that feels better, reduced pain meds. My insurance "wellaware" program called and gave me all sorts of crap for going off cymbalta without informing my doctor. Told me I would be labled as a diffacult patient.. Yes after 15 yrs of being put through surgerys, tests and all sorts of meds. I am no longer a conforming patient.

You may very well save your life by being a nonconforming patient! Keep up the good work!!!
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#12 User is offline   belinda 

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Posted 10 April 2012 - 01:00 AM

I've just found this forum and this entry and wow..I was already feeling scared about coming off these meds but now I'm feeling a mixture of glad and freaked out. Glad because I know I'm not having a nervous breakdown and freaked out because will my body ever be able to recover?
I've been off them now (cold turkey) for 5 days and I feel like absolute crap. I'm having the dizziness and nausea and hot and cold sweats. I've been taking a VERY low dose of valium to sleep or I wouldn't be able to function. I have to work. There's never a good time to stop I guess. I'm seeing an acupuncturist and he said that I shouldn't be on them. I'm hoping he can work some magic and help with the withdrawal symptoms. I'll be seeing him again this week. I'll update then.
I feel for you all going through this. I know how awful it feels. The anger is the worst thing. It's so horrible. It's near impossible trying to function at work and maintain some sort of normal front. I'm not going back on them but I really hope these symptoms ease soon because I don't know how long I can stand them.
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#13 User is offline   happyzapynot 

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Posted 10 April 2012 - 04:21 AM

View Postbelinda, on 10 April 2012 - 01:00 AM, said:

I've just found this forum and this entry and wow..I was already feeling scared about coming off these meds but now I'm feeling a mixture of glad and freaked out. Glad because I know I'm not having a nervous breakdown and freaked out because will my body ever be able to recover?
I've been off them now (cold turkey) for 5 days and I feel like absolute crap. I'm having the dizziness and nausea and hot and cold sweats. I've been taking a VERY low dose of valium to sleep or I wouldn't be able to function. I have to work. There's never a good time to stop I guess. I'm seeing an acupuncturist and he said that I shouldn't be on them. I'm hoping he can work some magic and help with the withdrawal symptoms. I'll be seeing him again this week. I'll update then.
I feel for you all going through this. I know how awful it feels. The anger is the worst thing. It's so horrible. It's near impossible trying to function at work and maintain some sort of normal front. I'm not going back on them but I really hope these symptoms ease soon because I don't know how long I can stand them.

Belinda, I admire you for being able to work. The symptoms do get better with time. There's lots of good advice posted on this site. Wish I had read some of it before going off the poison that almost killed me.
ANGER! I've gritted my teeth so much that one has cracked and will have to be extracted. Rage like this is dangerous. Throwing things, kicking things, cursing things. Horrible.
Hope your accupuncturist can help. Also, there is a company called True Hope that offers amino acids for those who are withdrawing from prescription antidepressants. Wish I had known about it sooner. Good quality nutritional supplements may be able to help you body/brain get through this a little easier.
Hang on. Take care of yourself and keep us posted. You will get better gradually. Hang on.
Taking something to help you sleep seems like a wise thing to do.
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Posted 10 April 2012 - 04:08 PM

View Posthappyzapynot, on 10 April 2012 - 04:21 AM, said:

Belinda, I admire you for being able to work. The symptoms do get better with time. There's lots of good advice posted on this site. Wish I had read some of it before going off the poison that almost killed me.
ANGER! I've gritted my teeth so much that one has cracked and will have to be extracted. Rage like this is dangerous. Throwing things, kicking things, cursing things. Horrible.
Hope your accupuncturist can help. Also, there is a company called True Hope that offers amino acids for those who are withdrawing from prescription antidepressants. Wish I had known about it sooner. Good quality nutritional supplements may be able to help you body/brain get through this a little easier.
Hang on. Take care of yourself and keep us posted. You will get better gradually. Hang on.
Taking something to help you sleep seems like a wise thing to do.



Belinda: Have you tried the True Hope product?? I´ve seen their videos, and it sounds good, but I wanted to know if anyone has really tried it???
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#15 User is offline   joelyc 

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Posted 15 April 2012 - 10:23 PM

View Postcookie, on 10 April 2012 - 04:08 PM, said:

Belinda: Have you tried the True Hope product?? I´ve seen their videos, and it sounds good, but I wanted to know if anyone has really tried it???

I'm taking the Truehope supplements and yes they work!! The bad news is that I am almost 10 months off cymbalta and still experiencing withdrawl. It has gotten soooo much better because as you know its hell getting off this medication. I honestly have NEVER experienced anything so painful mentally and physically....and to think it can last so long.
I am just now getting to the point of having glimpses of the old me I know. The anger, anxiety, overwhelming depression, suicidal thoughts (never had those before) flu like symptoms, extreme back and neck pain, fatigue,crying all the time, headaches, obsessive thinking, IBS,night sweats, NO motivation at all.....the list goes on! So now, my symtoms are down to occasional days of depression, more days than i would like of bad neck and back pain. My anxiety, which is one main reason I got on meds....is virtually GONE! You will get better it just takes WAY more time than most of us have to heal. I had to stop working going through this process and am still not well enough physically...not everyone has that luxury...it makes me so sad to read these posts and know how many people are suffering. Amino acids help flush the medicine that gets released into your blood stream.....unfortunatly the meds store up in our fat and muscle and take a lonnnnng time to release completely. Hot baths, hot tubs, massages, exercise can all release meds so you may notice how AWFUL you feel after any of these. Feel free to contact me through email joelyc327@yahoo.com
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