You are maybe in the first few days of kicking this noxious drug or several days into it, wondering just what is happening to you and when, by the grace of God, is it going to end?!?!!!
I came back to tell my story – so that you may get a sense of hope that the way you are feeling will eventually work its way out of you, that your system will take over, and if you treat it well, will reset itself, maybe even better than before you started taking the drug.
Here’s my story –
Just like so many others…..
I started taking 60mgs of Cymbalta after being diagnosed with Fibromyalsia this year. I actually asked my Doctor to put me on it after an allergic reaction to Lyrica, and seeing the TV ads touting it’s great results for Fibro patients. Big mistake. Not really noticing a difference for 2 months my new Doctor doubled my dosage. Another Big Mistake. I spent the ensuing month getting sicker by the day and since a lot of the side affects of Cymbalta mimic Fibro symptoms I thought I was having a bad “flare”. But when I starting having body tremors and parts of me were twitching when they shouldn’t be, I knew something was way up. I was also having the most violent nightmares of my life (when I could sleep) sweating profusely, feeling cold, and just down right out of it. I would look in the mirror and not recognize myself. I dragged myself to work and finally one day I couldn’t keep anything down or in. I spent my day off on the toilet, with a bag on my lap. I remember thinking I tasted acidic “medicine” when I was puking, finding bits of the Cymbalta capsule in it (gross I know) - I look back and realize my body had finally flat-out rejected the drug. After going over and trying to decipher the ginormous ridiculously small printed pamphlet that comes with the drug, and realizing that I could check off all but two of the ‘adverse side affects’, I called my Doctor, told her exactly that and she said to stop taking it immediately. I did.
Cold Turkey.
The following is my journey off Cymbalta. Off all prescribed medicines actually. Today, I feel it, even look it – like my old self again. Funny thing – I don’t have any symptoms of the Fibro left at all…..I hope this reaches someone and helps….
Thursday, April 2, 2009
Day #1: Horrible day of puking and diarrhea. Called my Doctor she told me to stop taking it.
Friday, April 3, 2009
Day #2: Did not sleep last night, but I feel much better, I do think it was the Cymbalta that was making me feel so sh*#ty.
Saturday, April 4, 2009
Day #3: No sleep. So tired. Glad I am off that friggin’ Cymbalta. That stuff is nasty.
Sunday, April 4, 2009
Day #4: Felt like sh#t at work. Nauseous. Funky. Feels almost like I am on a rolling fishing boat. Feel surreal. Sweaty. Yuck. And then later..... horrible shakes, anxiety, sweats, body jerks, mouth is numb and tingling, head feels like it is going to pop off. I feel so funky. What is this????? My boyfriend had to crawl into bed and hold me – felt like I was going to spin right off the earth. Wow, this is not good.
Day #5: Had my friend Ash come over to keep a watch on me. No sleep and I feel out of body. Spacey, sea sick. Literally laid on the floor, scratching my skin and rocking. Trying to find a second of peace within myself. What in the hell is going on with me? Head is zapping and my vision keeps shuttering like a camera stuck on a piece of film. It makes me want to throw up every time it happens. Ash took one look at me and blurted “Do I need to take you to emergency?!” This from a woman who won’t take an aspirin for a headache. I can see the fright on her face. I can feel it bubbling in me too. Whatever this is, it is not normal and I can feel it’s insidious grip on my brain. I do not like this feeling, I do not like feeling out of control. I handed my good friend the Cymbalta pamphlet and crawled to my PC and Googled ‘Cymbalta withdrawal’. I found this very web site in a few short clicks and once I started to read what others were and had experienced withdrawing off Cymbalta I have to say – I was both relieved and alarmed. This drug was no picnic, on or off of it, and I realized there was nothing I could do but ride it out. Later: Doctor finally returned my frantic call from this a.m. – sounding unconcerned and rational – she tells me that what I am feeling is not the side affects of the drug, that I can’t believe everything I read on the internet, and she’ll see me tomorrow at two.
Day #6
Can’t sleep, can barely stand being in my bed – must have broken a record by all the tossing and turning I did just trying to get comfortable for 5 seconds. (HINT!!!!: If you have another bed or mattress/couch to go to while detoxing – I highly recommend it – Sucks to have your bed become the enemy – and it will during this process….) Have all the symptoms as others on line – including the brain zaps, these bother me the most out of all the symptoms, followed by the endless vertigo (ugh), can’t seem to feel normal, feel heavily “drugged” and I am not taking anything. I am spacey, wired, and feel my stomach has a washing machine in it.
Later: Saw Dr T – most concerned about me – didn’t even recognize me in the waiting area, I was so out of it, so exhausted yet so anxious that I couldn’t fight her, so I didn’t. I may write her some day and give her this diary. It definitely is the drug. No one will be able to convince me otherwise……
Day #7
OMG. I quit my job. Couldn’t handle it. Stupid to do in this economy and I think I will regret this – but would have had to call in sick for this anyway. I could not imagine being at my job and functioning properly. No way. Spent the day just trying to feel a sense of normalcy. It alludes me – and like a long distance lover, haunts me. I want my old self BACK.
HINT!!!!! During this I found myself craving really healthy foods (when I did get hungry) watch your intake of sugar, caffeine and carbs – they just make your body work harder and it needs all the help it can get. I took vitamins, calcium and magnesium. Drank a boat load of water. Used a lot of deep breathing and healthy visualizations. (Not kidding it really helped). Kept a journal, got fresh air when ever possible – get in the sun- just 15 minutes a day – no sun block.
Day #7
No sleep, feel the same as yesterday – tracking some other’s progress on line – I am a couple of days behind…. comparing symptoms, counting down the minutes – the seconds really and my mantra?.....Everyday in everyway I am getting better and better. All I keep reminding myself is that I am not taking it anymore. That eventually it has to be out of my system. That there is an end to this torture.
Day #8-Day #12
Pretty much the same. Wishing I could sleep, feel like I have the worst flu of my life…. with brain zaps. Just horrendous. Did a lot of research on the web regarding this drug – for the first time of my life registered a complaint with the FDA. Found out while talking to my friend in MI, her husband and sister-in-law were also put on Cymbalta – two different Doctors – 2 different reasons – same results – both were sick on it and coming off – same symptoms. What are the chances of this? I am beginning to feel that there is really a big problem here. How do we as consumers get some attention paid to this and get it off the market? I wouldn’t wish this nightmare on anyone.
Day #13
Interviewed and got a new job prospect this morning. Let’s just say the effort it took to drive there, act normal and drive home was intense. Spent the rest of the afternoon trying to focus, move around without feeling sick and just feel ‘normal’. Afraid of starting a job right now – I feel so shitty. Not sure if I can get through it. Symptoms have subsided somewhat, but they are hovering. Still have brain zaps and feel spacey. God help me it sucks.
Day #14
New job called me in a day early and I went of course – got the job by the end of the shift – barely made it 4 hours though– felt so exhausted and sick when I got in the car that I was grateful to make it home in one piece. Still no sleep – Still struggling to get my footing. Keep looking at the calendar wondering when my time will come…. When will I wake up and feel good again?
Day #15 - #16
Well, it appears that the worst is over. Was beginning to think that this was EVER going to happen – especially towards the end here. But I looked into the mirror today and saw my old self looking back. I slept Ok the other night and last night was a successful 8 hour baby. I still feel drained, a little more than relieved and glad to have a snow day to just relax and enjoy the feeling of being me again. No drugs, no helpless feelings regarding the loss of control in my brain and body functions. I have very very slight brain zaps, but they do not make me want to hurl as they have the past 14 days.
Day #17
Did not sleep all the way through – but slept, and woke feeling pretty decent. I have been waiting, hoping, praying for this morning, this feeling of having my head connected to my body and working together for me. Finally. Now to figure out how to spread the word…….
Day #18
Good night’s sleep – actually went back at 10 and slept ‘til 12. I feel pretty decent. I still am having little head zaps. They usually occur when looking into light or when light has a flickering affect. TV can bother me. Other than feeling a bit drained and weak, I am much better.
DAY #19
Went to bed at 8. woke around 11:30 went back ?? but I woke this morning – feel pretty good. Brain zaps seem to be under control today. Do not feel as spacey or funky.
Day #20
Had a decent night’s sleep – 8 hours I think – hard to say as I am not trying to focus on time. Feel pretty good, though my hands are ice cold and it makes them not as flexible. Have a bit of the brain zap thing happening – more of a pressure now. But I still have those funky eye-jitters occasionally that make me feel like hurling. I guess my body is righting itself as I am sleeping with no more than a melatonin pill and my energy has come back.
Day #21
STILL having weird brain zaps. Feel as though I am still not 100%. Energy is decent and I feel better than I did.
Day #22
Feel the best yet. Slept like a log – feel much better overall. A couple more days and I will be better than new. I haven’t felt like this in a long, long time.
FINAL THOUGHTS:
Just know that you will get through this, no matter how you feel at this moment, and you will feel better.
WE NEED TO BAND TOGETHER AND GET CYMBALTA OFF THE MARKET.... go to the FDA website and COMPLAIN!!!!!
Good luck, remember it get’s better every second, every second that goes by means the drug is leaving and your body is fighting to right itself. Give yourself time, love and understanding. Most of all....Take care of yourself.
Peace & Health.

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