Jump to content



Photo

Saw My P-Doc For The Last Time Today


  • Please log in to reply
12 replies to this topic

#1 brzghoff

brzghoff

    Like a Family Member

  • Active Members
  • PipPipPipPipPipPipPip
  • 859 posts
  • Locationjust south of sanity

Posted 20 August 2014 - 11:35 AM

 

I have been mulling over firing my current p-doc (NOT my therapist, he's the best) but decided to honor my august appointment with him to get one more 90 day lamictal 'scrip and to have the opportunity to tell him what withdrawal from C was like. i think it is very important that he knows and that i'm on the record about it. 

 

i told him about the physical side effects, the gastro stuff, the neuropathic pain, the general joint and muscle aches as well as the disabling anxiety, confusion, irritability, akathisia, paresthesia and the positives as well, such as losing 20 pounds, my blood pressure dropping like a rock and going off those meds altogether and my cholesterol dropping from 215 to 195. he did admit he's read about the potential for brain zaps - i told him that thankfully that is one side effect i never had. i said that i know that the manufacturer suggests withdrawal is at most a 2 week process but that i am at 14 weeks tomorrow and while i feel much much better, symptoms remain and the recovery is a cyclical process. i also told him that i was already feeling these symptoms before doing any kind of internet research and only knew i was not alone when i saw others online referencing the exact same symptoms. i also told him this very prolonged withdrawal seems to be the same for those who took cymbalta for pain and to treat poor bladder control (in europe) . i made sure i let him know that those who didn't have mental health issues prior to taking cymbalta developed them during the withdrawal, often as long term side effects. oh, i also told him about cymbalta prompting people to drink, sometimes heavily, who didn't have issues before. he said none of his patients have mentioned that. i said chances are some of his patients drink like fish and don't tell him - i was one of them! he then said that type of side effect should definitely should be reported to the FDA. i agreed and added that its not likely they'll do much

 

he let me talk, and boy did i ever! he probably thought i was hypomanic - but he didn't make any references to that. i was simply direct. however, i don't think i was intense. i told him about the class action suits and the preponderance of evidence counter to eli lilly's claims. he thinks i am intelligent. he is very familiar with my work and presence in the community. in other words, he takes me as a credible source of information.  

 

i then asked if he's had any other complaints from patients who went off cymbalta who were not being transitioned onto another ssri/snri or other meds intended to replace the C. he said he hasn't heard anyone complain about side effects beyond a two week period, and that they have been the typical aches and pains, drowsiness and gastro issues. i rolled my eyes and told him to go online and see for himself. i told him i recognized that one must tread carefully among what is found on the internet however he did agree with me that when there is a lot of corroborating evidence then there is merit in it, regardless of the topic. 

 

he seemed interested not skeptical, but totally clueless. but i cannot believe he hasn't heard this from other patients. it is simply not possible. he indicated that he's heard that effexor and paxil are worse. i said i have heard likewise but it doesn't matter, all these drugs are dangerous and should not be considered for long term use. 

 

given his clueless behavior, not sure if it was an act, i plan to find another p-doc. i suspect that many docs feign ignorance to cover their rear ends due to liability concerns. i can't rely on someone like him to treat me. i won't need to go until december to get another lamictal 'scrip. my therapist already gave me another name. my intent is to fill the new p-doc in on my history and ask for his opinion not only of ssri/snri's but of his suggestions toward getting off lamictal. i want to make it clear that i don't want to rely on psychiatric meds anymore and want a good safe strategy.


#2 TryinginFL

TryinginFL

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 6,274 posts
  • LocationFlorida
  • why_joining:
    Now that I have been off this poison for over 6 years, I hope to help others as they join us

Posted 20 August 2014 - 11:57 AM

brzghoff....

 

Well done!!!

 

I, too, will be seeing a new PCP recommended by my therapist.  I have my first appt. the week after Labor Day.  Will be interested to see what she is open to and if I am not pleased, I will continue to move on.   I want a PCP I can trust to help me, not just push drugs for money. 


#3 FiveNotions

FiveNotions

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 3,686 posts
  • LocationUS, East Coast
  • why_joining:
    I want my life back!

Posted 20 August 2014 - 01:39 PM

Awesome, brzghoff, way to go!


#4 Carleeta

Carleeta

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 1,801 posts
  • LocationNew York
  • why_joining:
    Read so many painful stories on here and offering others support while trying to heal myself from cymbalta and other antidepressents.

Posted 21 August 2014 - 12:07 PM

brz....great job communicating your facts with him. Don't blame you for not having the confidence in him/her as you need, especially at this time. As long as you have the faith in your therapist and the therapist is willing to help you find a p doc which will be more compatible to your needs, you are definitely on the right track. Stay there.... Best of luck to you

#5 buntbean2

buntbean2

    Advanced Member

  • Active Members
  • PipPipPip
  • 50 posts
  • LocationMassachusetts
  • why_joining:
    Help with going off Cymbalta

Posted 28 August 2014 - 10:06 PM

I think many people on here are like me in that they know their PCP's don't really have a clue with these specialized issues.  Hence, the reason we come to a sight like this.  I know that if I go see my PCP she'll suggest a therapist and that person may or may not have a clue.  I'd rather trust other people who are going thru the same thing I am.

 

I'm glad you mentioned the aches and pains brzghoff.  I've been wondering why by body has been hurting so much.  I was wondering if the Cymbalta had actually been working to mask some of these aches.  Now I'm turning to motrin but that leaves me feeling like I swallowed something sharp.  I've also been on blood pressure medication (Lisinopril) and today I used my cuff and it  was way down.  Maybe I can go off that in the near future too!

Starting the Braggs apple cider vinegar again.  Probably tomorrow.  I'll let you know if that helps.


#6 TryinginFL

TryinginFL

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 6,274 posts
  • LocationFlorida
  • why_joining:
    Now that I have been off this poison for over 6 years, I hope to help others as they join us

Posted 28 August 2014 - 10:24 PM

bb2...

 

Good luck with the ACV ....   It sure has helped both my fibro and arthritis!

 

I hope that you have the same results! :)


#7 FiveNotions

FiveNotions

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 3,686 posts
  • LocationUS, East Coast
  • why_joining:
    I want my life back!

Posted 28 August 2014 - 10:28 PM

Bunt, serotonin is also involved in muscle aches and pains ... low serotonin ... that's why they decided to try Cymbalta for fibro ... a one point in the first few months of getting off Cymbalta, it felt like every muscle fiber in my body was aching ... deep level and sort of surface level ... like fibro combined with the lameness that happens after way too much exercise .... I can't remember how long you've been off the crap, but my bet is that this is your brain working out it's own serotonin levels ...

 

Tryptophan supps might help you, we've been discussing them over on another thread ... Gail and Bryzghoff are using them ..I was using it for months, with excellent results .... it put a stop to my restless leg syndrome and muscles twitches and aches ...

 

 if you try it, just start at a low dose ... 100 mg is where I started ....

 

And, I swear by the ACV .... no more arthritis ... it also cured my gastric reflux.... and, when mixed with distilled water and sprayed up the nose, it cures my sinus infections ... :lol:


#8 Gladiola

Gladiola

    Member

  • Members
  • PipPip
  • 10 posts
  • LocationSouthern USA
  • why_joining:
    Need help and support getting off cymbalta. Want to learn alternative ways to support ones mental,health.

Posted 30 August 2014 - 10:53 PM

Boy, congratulations on speaking to your pdoc that way. I have tried to speak to mine about the side effects and she has refused to admit to them, so it makes one worried about trusting her on other issues. And you always feel like they are looking at you as an unreliable source. Helloooooo. I am the one with the drug in my system. So I take my hat off to you. And I hope you find a better doc.

#9 FiveNotions

FiveNotions

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 3,686 posts
  • LocationUS, East Coast
  • why_joining:
    I want my life back!

Posted 31 August 2014 - 10:04 AM

Welcome to the "club," Gladiola ... docs uniformly deny the truth of what we tell them, deny the existence of extended/serious withdrawal issues, and hate having well-informed patients ... they disdainfully refer to us as "citizen-scientists" ... because of my experience with Cymbalta, I've long since given up trusting anyone in the med profession. And I've given up telling them anything about what I've experienced and / or trying to "educate" them by sharing journal articles, etc. To me, they're there just as drug-dispensing "utilities."

The best information and advice I've ever gotten is from the "experts through experience" right here on this forum ... And my own research.

#10 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 01 September 2014 - 06:26 AM

FN

I agree with you.

It's interesting (and noteworthy) that physicians disdainfully refer to us as "citizen-scientists", yet physicians are NOT scientists themselves.

scientist, n, a person who is studying or has expert knowledge in the natural or physical sciences; a scientific investigator.

There are five branches of natural science: astronomy, biology, chemistry, the Earth Sciences (geology, oceanography, climatology etc), and physics. Biology, chemistry, and physics somehow relate to a physician's work, but an M.D. isn't a biologist, a chemist, or a physicist.

Personally I think "citizen-scientist" is a complementary term because it means that we (while not lettered in the discipline), are actually doing research and keeping up-to-date on relevant scientific issues. I think physicians ought to consider following our humble example.

#11 FiveNotions

FiveNotions

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 3,686 posts
  • LocationUS, East Coast
  • why_joining:
    I want my life back!

Posted 01 September 2014 - 11:23 AM

TM, I'm outta' likes for the day already (the "likes" system here is a total mystery to me) ... but yes, I "like" what you just said ... I consider "citizen-scientist" to be a complementary term ...

 

One of these days I need to review the current med school curriculum ... I need to know exactly what docs study ... and figure out what the underlying agenda is for the curriculum structure ...

 

also, I want to know what's the "revenue stream" flowing into the med schools from big pharma via grants/donations, etc... we know it's huge for the academic research part of things, but what about directly to the schools for "discretionary use" on operational costs, faculty salaries, student scholarships, etc ...

 

and, another questions, what percentage of med school "endowed chairs" for faculty are pharma-funded ... how many of the general faculty have previously worked for pharma cos?

 

I wish I had a gift for writing articles / investigative journalism  ... I'm great at finding the info, but lousy at writing it up in coherent, publishable articles and essays ...

 

Anybody here good at that end of stuff? You could use the stuff that TM, FH, BLD and I dredge up for a whole lot of interesting "expose" articles ...


#12 brzghoff

brzghoff

    Like a Family Member

  • Active Members
  • PipPipPipPipPipPipPip
  • 859 posts
  • Locationjust south of sanity

Posted 01 September 2014 - 03:20 PM

Boy, congratulations on speaking to your pdoc that way. I have tried to speak to mine about the side effects and she has refused to admit to them, so it makes one worried about trusting her on other issues. And you always feel like they are looking at you as an unreliable source. Helloooooo. I am the one with the drug in my system. So I take my hat off to you. And I hope you find a better doc.

 

thank you gladiola, hopefully i can empower others to do likewise. you always have the option to "fire" her.

 

by the way folks, i may have used a term incorrectly. when i say p-doc, i mean my "P"sychiatrist doc. not my primary care physician - PCP. i like my PCP.

 

on a sad note. i had the best pcp in the world for over 20 years. he was old fashined although he was not old himelf - started his practice in 1984. he would spend at least 30 minutes with each patient and still made house calls to elderly patients.  i got a call just before christmas that he had passed away. 

 

the practice remains, a new partner joined and i think the new doctor is wonderful also. he spends a lot of time with his patients and shows the same great care as my former doc. 


#13 brzghoff

brzghoff

    Like a Family Member

  • Active Members
  • PipPipPipPipPipPipPip
  • 859 posts
  • Locationjust south of sanity

Posted 01 September 2014 - 03:27 PM

TM, I'm outta' likes for the day already (the "likes" system here is a total mystery to me) ... but yes, I "like" what you just said ... I consider "citizen-scientist" to be a complementary term ...

 

One of these days I need to review the current med school curriculum ... I need to know exactly what docs study ... and figure out what the underlying agenda is for the curriculum structure ...

 

also, I want to know what's the "revenue stream" flowing into the med schools from big pharma via grants/donations, etc... we know it's huge for the academic research part of things, but what about directly to the schools for "discretionary use" on operational costs, faculty salaries, student scholarships, etc ...

 

and, another questions, what percentage of med school "endowed chairs" for faculty are pharma-funded ... how many of the general faculty have previously worked for pharma cos?

 

I wish I had a gift for writing articles / investigative journalism  ... I'm great at finding the info, but lousy at writing it up in coherent, publishable articles and essays ...

 

Anybody here good at that end of stuff? You could use the stuff that TM, FH, BLD and I dredge up for a whole lot of interesting "expose" articles ...

 

 the best info will be what knox ricksen presents during discovery when the class action goes to trial. sure would make a compelling edition of "60 minutes"





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users