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#31 fishinghat

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Posted 28 February 2018 - 09:34 AM

Hi Tiagi,

You were in full blown withdrawal at 12 beads, that is where it would have been needed of you to stabilize by going up a few beads and stay there for a while.

So go back to the number of beads where you were doing ok. Stay there for a week or two, then, if one bead a week is needed to remove, it's ok. No hurry, it was done a bit too fast, but then, I understand your hurry to get rid of this stuff. Go slow Tiagi please.



Gail was right. Too fast.

#32 sparkybird

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Posted 01 March 2018 - 02:21 PM

Please go back to the dosage you went off of and stay on it until you level out. I get antsy too and I’m currently on 25 beads. I just listen to my body and let it tell me when to reduce my dose. I am so sensitive that I sometimes go a week before taking out just one bead. It’s tough I know. Just hang in there.


Ok wondering now if anyone gets dry mouth as a sign of withdrawal.

#33 fishinghat

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Posted 01 March 2018 - 02:28 PM

A lot of members have gotten dehydration during withdrawal including dry mouth. Got to stay hydrated.  By the way. Your approach about listen to your body is right on.


#34 sparkybird

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Posted 08 March 2018 - 01:43 AM

God like. it’s 12:30 am and I am about to go nuts with this constant surge feeling in my body. I know this is withdrawal but I’ve had it all day long now. I’m at 25 beads and have been on 25 for 8 days. It seems like I’m getting worse instead of better. I’ve taken a Benadryl with no help.

Really weary and feeling like screaming. Can you HELP!

#35 AliYogini

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Posted 08 March 2018 - 04:03 AM

Sparkybird, I am moving about the same pace,(but I am at 58 beads) as I am very sensitive to each drop. I have the same feeling you describe. When I go to bed I take 2 L-Theanine capsules and lately 2 tylenol also. Seems to help.

#36 sparkybird

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Posted 08 March 2018 - 09:06 AM

Thanks so muchAli. I’ll give it a try.
That’s why I like this website so much. When I want to cave in I get answers and I know others are are in the same boat

By the way when I was at the number you are taking I got a scale and weighed my dosage and decreased by 5% after I leveled off. Hope that helps you. When I got into 30’s I went back to counting.

I’m really angry at the doctors. They know nothing about what we are doing and don’t seem to care to learn. I’ve even given them this website and get no response. We’re on or own my friend. Us and God❗️
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#37 fishinghat

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Posted 08 March 2018 - 09:27 AM

L-theanine is a good choice. Whenever you stabilize you need to start dropping at a much slower rate. If you ever get in this kind of situation again another choice is simply go back up on the Cymbalta a few beads, Once stabile, usually a day or two, you can start dropping again but slower. You can't go too slow. This withdrawal can be real mean so take your time.


#38 sparkybird

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Posted 08 March 2018 - 12:35 PM

Thanks so much for the advice. I did buy some today and took just one and it WORKED!

#39 AliYogini

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Posted 09 March 2018 - 02:47 PM

Glad to hear it helped Sparkybird. Yes getting off this drug is quite the battle. More than I ever expected. Sometimes I have my doubts that I will ever be off of it. I thank God we have FH and this site...it keeps me going.
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#40 sparkybird

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Posted 09 March 2018 - 03:14 PM

Yes I agree. I had hoped to off totally by April but am realizing that is not as possible since I’m having tp slow down. I guess I’ll “hopefully “ be off in 24 weeks.

If you any help perhaps I can be of help. But then fishing hat is our main support. I’m so grateful for that.
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#41 fishinghat

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Posted 09 March 2018 - 05:12 PM

Thank you kindly folks. I can certainly identify with your lack of patience with this drug but please know you will get there eventually. You are not alone.
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#42 sparkybird

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Posted 12 March 2018 - 09:19 AM

Horrible night so taking advice and upping beads by two. So now back to 27. Headache worse, with anxiety and feeling depressed. I have an Ativan to take is anxiety worsens. Tylenol does not help at all. Any suggestions or positive words?

#43 fishinghat

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Posted 12 March 2018 - 09:38 AM

Hi Sparkybird.

 

Something you might consider is reading the beginning of the thread "and the answer to your question is..." in the Medical Support section. It is a summary of all the things members have tried for headaches, brain zaps, etc. That whole thread is full of things you can do to help and what to watch out for. Diet, vitamins, supplements, etc.

 

In addition you might try Benadryl for the anxiety. Be sure it is the Benadryl which contains 50 mg of diphenhydramine. This usually helps with the anxiety. It may make you a little drowsy so be aware and also check out if it is compatible with any other medicine you are taking.


#44 AliYogini

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Posted 12 March 2018 - 09:23 PM

Hope you feel better Sparkybird. I have had to go backwards and hold a couple times. I was stuck at 60 beads for a month. This is such a nasty drug.

#45 sparkybird

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Posted 13 March 2018 - 07:58 AM

Thanks, I do feel better. Good nights sleep for a change helps. I took 2 Severe Allergy Plus Sinus headache caplets before going to bed. They have acetaminophen, diphenhydramine, and phenylephrine I guess the ringing in my ears and constant feeling of electricity in my body may be a normal thing right now.
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#46 fishinghat

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Posted 13 March 2018 - 08:30 AM

Many of our members have reported that as a good combination for the withdrawal. Do you think it helped any?


#47 Linda0917

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Posted 13 March 2018 - 07:21 PM

HELP

 

I wish I knew about this website  2 months ago!!! I didn't know about the beads!! I just assumed that 30 mg was as low as you could go. I thought I actually weened myself down.  I was on 60 mg duloxetine and 500 mg of gabapentin for fibromyalgia.  I got a blood test and I found out I had reduced kidney function  to which I only have 1 kidney so I decided to ween myself off. When I was taking the duloxetine I was having difficulty urinating but didn't think it was a problem until I got that test.   5 days after my last dose  I thought I was gonna die!  I had such anxiety attacks that I couldn't control 24/7.  I couldn't eat or sleep and those awful brain flashes are so painful as well as crying.  I thought I was losing my mind. That was January 6 and I'm still not right.  The doctors convinced me to go back on antidepressants so I went on wellbutrin thinking it wouldn't be so hard to get off of forgetting about the side effects of the wellbutrin which is not being able to eat or sleep!!! I'm down to 95 lbs.  I actually count calories to gain weight.  I'm finally able to control my panic attacks but I'm still not able to deal with the problems causing the anxiety because of the panic attacks.  I want to get off the wellbutrin so bad so I can sleep and eat again.  I've cut that down very slowly.  I tried to stop after dropping down to 1/4 of a tablet and ended up back to the 24/7 panic attacks.   I've now cut the tablet into 8 pieces (a feat which is difficult in itself) and have been for about 2 days now.  Anybody have any suggestions as to how long I should continue and could I just try to stop or should i attempt to cut it even smaller?  I'm just now able to somewhat eat again but only a little at a time.  I still can't sleep without over the counter sleep meds and a lorazepam because the doctor won't let me have them much longer and I'm trying so hard not to take but I have to sleep.  How long does this last?!  The doctors suggested Buspar or my other doctor wanted to put me on paxil.  I don't want to start another problem and go through this again!!!! How much longer can this possibly last and is there anything I can do to speed up the process? I try to stay as busy as a disabled person can (I have copd) which helps during the day but just can't get this sleep thing under control.  Any suggestions will be greatly appreciated.  I've edited this several times and I still sound manic and disorganized which is not me at all.  I am sorry and hope someone understands and can give me a few suggestions.  I wish there was a way of getting the word out about this website so more people don't have to go through what I went through.  Thanks  


#48 gail

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Posted 14 March 2018 - 08:00 AM

Hello Linda and welcome,

My God, you are going through a lot and don't worry about your post, it all made sense.

I'm not in a position to help you here, a bit out of my knowledge, but don't worry because Fishinghat will be in soon to help you. He's our man, and knows a lot about medical condition.

Stand by, and again, welcome!

#49 fishinghat

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Posted 14 March 2018 - 09:53 AM

"I still can't sleep without over the counter sleep meds and a lorazepam because the doctor won't let me have them much longer and I'm trying so hard not to take but I have to sleep."

A smart dr. Benzos are very addictive and are not suppose to be used long term. This guy/gal seems to know their business.

Getting off the Wellbutrin...Mist buy a weight scale off of Amazon and figure out the average weight of their tablets. They then just scrap a small amount of there tablet each day. This allows them to slowly do a reduction. An 1/8 of a tablet at a time is still too fast.

"How long does this last?!"

Unfortunately too long. Because Wellbutrin and Cymbalta control different neurotransmitters you still have withdrawal going on in your body from the Cymbalta and now have added on Wellbutrin withdrawal. How long you been off the Cymbalta and how long have you been on the Wellbutrin?

As far as Paxil is concerned I would stick with the Wellbutrin. First of all going on and off ADs in rapid order sets one up for a complicated overwhelming final withdrawal. Second, the withdrawal from Paxil can be a bear. I would rather deal with the Wellbutrin.

Sleep...The nest over the counter sleep aide is one that contains 50 mg diphenhydramine. It not only helps you sleep but also helps with anxiety. Another great option is 3 mg of melatonin under the tongue just before going to bed. Many take melatonin to help them sleep but they find themselves groggy in the morning. By letting it dissolve under the tongue (sublingual) it goes into the blood stream faster and there should be no foggy/groggy in the morning.

 

Now, about the anxiety from the withdrawal. This is one of my pet peeves. Drs love to just put patients on and AD or a benzo right away for relief but both of these compounds have serious side effects and withdrawals. Many of our local psychiatrists where I am at have changed their procedures. They start out using hydroxyzine and/or clonidine. None addictive with no withdrawal. They only turn to a benzo when these two drugs aren't enough. I would suggest these to your dr to help with the withdrawal symptoms until things settle down. Hydroxyzine is a wonderful sleep aide as well.

 

There is a lot more I could add but I think this will give you enough to think about at this point. Hang in there. We are always here for you and we know very well how tough this can be.

 

Feel free to ask questions or just complain about things. You are not alone.


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#50 fishinghat

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Posted 14 March 2018 - 09:58 AM

FYI - Linda

https://dailymed.nlm...ae-207b5fadeba3

From the drug insert for Wellbutrin.

Renal Impairment: There is limited information on the pharmacokinetics of bupropion in patients with renal impairment. An inter-trial comparison between normal subjects and subjects with end-stage renal failure demonstrated that the parent drug Cmax and AUC values were comparable in the 2 groups, whereas the hydroxybupropion and threohydrobupropion metabolites had a 2.3- and 2.8-fold increase, respectively, in AUC for subjects with end-stage renal failure. A second trial, comparing normal subjects and subjects with moderate‑to‑severe renal impairment (GFR 30.9 ± 10.8 mL per min), showed that after a single 150-mg dose of sustained-release bupropion, exposure to bupropion was approximately 2-fold higher in subjects with impaired renal function, while levels of the hydroxybupropion and threo/erythrohydrobupropion (combined) metabolites were similar in the 2 groups. Bupropion is extensively metabolized in the liver to active metabolites, which are further metabolized and subsequently excreted by the kidneys. The elimination of the major metabolites of bupropion may be reduced by impaired renal function. WELLBUTRIN SR should be used with caution in patients with renal impairment and a reduced frequency and/or dose should be considered [see Use in Specific Populations (8.6)].

8.6 Renal Impairment

Consider a reduced dose and/or dosing frequency of WELLBUTRIN SR in patients with renal impairment (Glomerular Filtration Rate: less than 90 mL per min). Bupropion and its metabolites are cleared renally and may accumulate in such patients to a greater extent than usual. Monitor closely for adverse reactions that could indicate high bupropion or metabolite exposures [see Dosage and Administration (2.3), Clinical Pharmacology (12.3)].


#51 Tyagi

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Posted 21 March 2018 - 06:43 AM

This is the 38 th day of off duloxetine after tapering it for 2 months...I still have brain zaps n dizziness(main problem),tiredness,muscle pain (have fibromyalgia too) etc...How long will these symptoms last??

#52 gail

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Posted 21 March 2018 - 07:29 AM

Hi Tyagi,

Brain zaps should end pretty soon. The rest will fade away with time.

Around week 10 or so, you will see the light, then it's wax and wane. Sorry for the spelling, I'm French.

Progress is not linear, up and down, when you think it's over, it's not. And one day, it's over,90%. There is never good news with Cymbalta, patience and time are the name of the game.

I just hate what it does to people, this should never have been invented like so many things.

Tyagi, you are so not alone with these withdrawal side effects. But, it will end!
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#53 hatecymbalta1

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Posted 22 March 2018 - 03:34 PM

I just switched brands from duloxetine el lilly with the large beads to Solco small beads.  I am on 30mg.  Is it going to be okay that I switched the generic brand/manufacturer.  I had no choice in order to get the small beads.  I also will start removing 5 beads for 3 weeks; as right now the beads are too difficult to count.  Once I get down to less beads, I will then start to count and x 5% to take off each capsule.  Does anyone know how many beads are in the 30mg Solco duloxetine generic capsules?

 

Thank you.

Mary


#54 Linda0917

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Posted 30 March 2018 - 09:44 AM

Hello Linda and welcome,

My God, you are going through a lot and don't worry about your post, it all made sense.

I'm not in a position to help you here, a bit out of my knowledge, but don't worry because Fishinghat will be in soon to help you. He's our man, and knows a lot about medical condition.

Stand by, and again, welcome!

Thank you! 


#55 Linda0917

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Posted 30 March 2018 - 10:01 AM

"I still can't sleep without over the counter sleep meds and a lorazepam because the doctor won't let me have them much longer and I'm trying so hard not to take but I have to sleep."

A smart dr. Benzos are very addictive and are not suppose to be used long term. This guy/gal seems to know their business.

Getting off the Wellbutrin...Mist buy a weight scale off of Amazon and figure out the average weight of their tablets. They then just scrap a small amount of there tablet each day. This allows them to slowly do a reduction. An 1/8 of a tablet at a time is still too fast.

"How long does this last?!"

Unfortunately too long. Because Wellbutrin and Cymbalta control different neurotransmitters you still have withdrawal going on in your body from the Cymbalta and now have added on Wellbutrin withdrawal. How long you been off the Cymbalta and how long have you been on the Wellbutrin?

As far as Paxil is concerned I would stick with the Wellbutrin. First of all going on and off ADs in rapid order sets one up for a complicated overwhelming final withdrawal. Second, the withdrawal from Paxil can be a bear. I would rather deal with the Wellbutrin.

Sleep...The nest over the counter sleep aide is one that contains 50 mg diphenhydramine. It not only helps you sleep but also helps with anxiety. Another great option is 3 mg of melatonin under the tongue just before going to bed. Many take melatonin to help them sleep but they find themselves groggy in the morning. By letting it dissolve under the tongue (sublingual) it goes into the blood stream faster and there should be no foggy/groggy in the morning.

 

Now, about the anxiety from the withdrawal. This is one of my pet peeves. Drs love to just put patients on and AD or a benzo right away for relief but both of these compounds have serious side effects and withdrawals. Many of our local psychiatrists where I am at have changed their procedures. They start out using hydroxyzine and/or clonidine. None addictive with no withdrawal. They only turn to a benzo when these two drugs aren't enough. I would suggest these to your dr to help with the withdrawal symptoms until things settle down. Hydroxyzine is a wonderful sleep aide as well.

 

There is a lot more I could add but I think this will give you enough to think about at this point. Hang in there. We are always here for you and we know very well how tough this can be.

 

Feel free to ask questions or just complain about things. You are not alone.

Thank you so much for your advice.  I had some trouble responding to your message earlier but figured this out.  I have been off Cymbalta since January 4 and Wellbutrin for about 2 weeks.  I took the 1/8 of a pill and pinched pieces off for several days to wean off.  Just when I think it's over the panic attacks start again.  I don't remember ever having these before and now I am literally afraid of everything!  I have been on my own since I was 12 yrs old.  I raised 2 kids on my own, this is not me.  It's driving me crazy!  I want so bad to move forward in my life and I feel so stuck.  How much longer will this last?  I have been sleeping better and finally eating a little better but every morning I wake up at 7am with a terrible panic attack and my heart is still racing.  I take a 1/2 metoprol at night so my heart gets a rest but I don't like to take it too much because it messes with my eyesight.  I truly don't know how much more of this I can take. I can't get anything accomplished.  I will talk to my doctor about hydroxyzine.  Thanks.  It's just so hard.  I want this to end now!  Well thanks again for the advice and listening.

Linda


#56 fishinghat

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Posted 30 March 2018 - 11:14 AM

Linda, have you tried Benadryl for the sleep as well as the anxiety? The dr shouldn't have any problem giving you some hydroxyzine. Good luck with your next visit, If there is anything else we can do let us know.


#57 Linda0917

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Posted 30 March 2018 - 08:07 PM

Linda, have you tried Benadryl for the sleep as well as the anxiety? The dr shouldn't have any problem giving you some hydroxyzine. Good luck with your next visit, If there is anything else we can do let us know.

I find the benadryl only works for a short time but the melatonin trick worked great putting it under my tongue  Thanks so much.  Its just been so long with this anxiety I just don't know how much more I can take.  3 months!!!!  Just when I think I'm good bam it hits me again.  It can't go on much longer can it? Thanks for all your help 


#58 gail

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Posted 31 March 2018 - 08:18 AM

Hi Linda,

Benadryl has been a Godsend for me for many years.

Here's the trick. Normal Benadryl doesn't work for me at all.

But Benadryl Total in caplets were a miracle for me. It's a white and orange box. I took one caplets and a half. A half hour later, I was ok for the day. I made sure that I ate before. Only a few times a week so it did not lose it's effectiveness. I kept it for day time as the anxiety was worst in am and afternoon. It worked much better than benzos.

I would not have made it without it. An anxiety mess, I was. Good luck Linda!

#59 fishinghat

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Posted 31 March 2018 - 08:32 AM

Benadryl Total

Medicinal ingredients:
•Acetaminophen, 500 mg
•Diphenhydramine Hydrochloride, 25 mg
•Pseudoephedrine Hydrochloride, 30 mg

It contains diphenhydramine which is the active ingredient in regular Benadryl and also pseudoephedrine which is common in most cold medicines. The Diphenhydramine helps with sleep and anxiety and the pseudoephedrine helps block the action of adrenaline which produces a calming effect. A very good choice.

There is details on these type of medications in "and the answer to your question is..." in the medical support section. Be careful though while this product is good to try some of the other cold and sinus medicines contain products that can be incompatible with other meds.

#60 AliYogini

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Posted 31 March 2018 - 12:46 PM

FH..I can't have any decongestant due to my beta blocker and related issues. Would the product Gail mentioned be ok for me? I don't think I have ever seen benadryl "total". Taken during the day...Doesn't it make you drowsy?



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