It has to stop
#31
Posted 14 April 2008 - 06:08 PM
I hope your wife does come on and read some posts, it may help her see outside of the immediate situation for your family. You can stay strong and do this, it will get better, and know that we are all pulling for you!
#33
Posted 14 April 2008 - 07:37 PM
Seriously, I had on three pairs of socks, long johns and flannel pants, turtleneck and three sweaters with a scarf. INSIDE.
It will not go on forever. I don't know why that was part of this, but I was colder than I had ever been for a few days.
#34
Posted 14 April 2008 - 10:17 PM
I have been in bed most of the day, withthe blankets and comforter up to my neck and I am still cold. It hurts to lay, to sit, to stand, to move, to be still, so basically it hurts.
Do they sell BenGay in a 55 gallon drum I can just ease myself into? :?:
Oh Jeff, if they did, I would buy it and send it to you! It sucks to feel like you want out of your own skin, and to find no way to get comfortable. It is the drug, it is the drug!! The first few weeks off of this crap was so horrible, it does pass, it really does just keep hanging on to that thought, because you will start to feel better. I wish I could offer you a miracle right now.
#35
Posted 15 April 2008 - 11:17 AM
Today is bad, very bad.
Last night as I lay in bed with all the lights off and in so much pain, I was wondering the best way to die would be. This is painful and I feel like such a loser. One for being depressed, then for taking anitdepressants in the first place and nothing worked. Then I find Cymbalta and WOW it was wonderful. I had a my life back, it was a wonder drug, my family was happy, I was happy, I could work and smile and think and everything was wonderful. Then I started having these bad thoughts, then it all came crashing down. Today I feel hopeless, I have been down the route of so many other anti depressants that did not work. I am overwhelmed with it all. I am MAD as hell at cymbalta for doing this, mad at the company that makes it, mad at the fda for allowing this to happen to people, mad at myself, mad at my dr that prescribed this to me and not telling me, not that that would have mad any difference. I was in sucha depressed state that any warning would have been ignored most likely. I keep thinkging just go back on it and everything will be fine, I will be happy, my body will not ache, and I will be able to work. If I lost my kidney I would have to be on dialysis, if I had something else I would have to do that. I am rambleing aren't I, my brian is messed up sorry. I am so tired. Last night I had such vivid dreams, dreams of people I knew in grade school and bazarre things and even one really good business idea LOL go figure. After I got up this morning I thought about the business idea and how clear it was presented in my dream and it is actually a really great plan!
I am rambleing, I cannot go back on this cymbalta, I have to get through this. Please pray for me
Jeff
#36
Posted 15 April 2008 - 12:39 PM
I know you have told us all to remember that it is the drug, and it IS the drug. The human brain is remarkable, it does heal itself. Sarah J pointed that out to me on many occasions, and she was right. Take that moment of clarity as a sign of healing.
You have said in previous posts that you have a plan to clear your body of toxins, and eat healthier and do whatever is within your power to feel better. That is a huge step. Keep that goal in mind, and know that we are here and we have faith that you can get through this, and we will be here to help.
#37
Posted 16 April 2008 - 11:15 AM
So, I am really confused this morning, I took 2 seraquel last night at her recomenedation and this morning I am a zombie, space cadet and really wahacked out. My pain is unbelieveable and I am ready to give up and say they won. I am seriously condidering taking the cymbalta and to stablixze myself and wean slower. I have about 22 capsuls of cymbalta left. The pain, the brain fog, is too much, I cant take it. I was told yesterday that I was nobel in trying to go natural and heal thyself instead of dong what western medicine does and puts a bandaid on the symptom. I truely believe if given the opportunity your body can heal itself but I cannnot wait or something.I am confussed this morning, really badfly confused and ion pain., I have never been one ot take pain very well, I get depressed easy with pain. What does one do with doctors? She told me cymbalta helpd my jopint pain, not caused it. She wants me to up my seraqueal and lexapro also and start a steroid and who knows what all else.
I need to go lay down and sleep and rest , it hurts too much to even type, my fingers feel like sausages and everthing hurts, and ears are ringing, my eyes even hurt to move them around.
J
#38
Posted 16 April 2008 - 11:57 AM
I can't presume to tell you whether or not to take Cymbalta again. You have to look at your overall health, or have someone that you trust to so, and help you decide what to do. I can tell you that it got better for me, and I would think it may get better for you, knowing that you have to go through some difficult times. But, and this is a really big BUT, if you have health issues, and feel like you need help, then you have to make that decision. It doesn't make you weak, it means you are strong enough to know you need help. For today, it may be that upping the Lexapro would help, but you need to make the best choice for you and your mental and physical health.
Regardless of what you do, we will still be here to help you.
#39
Posted 18 April 2008 - 07:56 PM
I do not trust my Physiatrist or any medical doctor for that matter. Actually trust is not the right word, they do there jobs well, putting a band aid on the symptoms and covering up the problem with drugs. I went to my Chiropractor and talked to him, showed him the blood test and the meds I was on. He looked them all up, his comment was "they are trying to kill you" He urged me to do whatever I needed to to get off these meds and get whole foods and exercise and homeopathic help as well.
Last night I did not take any Seroquel and could not fall asleep until about 3am and got up at 6am. I am very tired and want to take a nap but I am afraid I wont be able to sleep tonight.
I feel better today, alive at least, I have some joint pain, mainly in my rt knee. I am taking a bucket load of vitamins and herbs and supplements and lots of water.
I am one of those all or nothing want it now people, well Cymbalta beat me down on that one. I need to take it much slower during this last phase of taper. I wanted to die Monday night, Tuesday night and Wednesday I was in another planet.
I thought at times is it worth getting off Cymbalta? yes it is, there is so much they( the drug companies and FDA) are not telling us about this drug it is scary. My wife doesn't understand why I cant just ask you all how long it last or what exactly are the symptoms etc. I tell her each one is different and she cannot get that. I feel alone in this battle along with you all on this website. Thanks for being here and reading my rambling post.
Remember it is not you, it is the drug! I am going to have that tattooed on my forehead right after I write the movie script!
I will beat this and so will you
Blessings
Jeff
#40
Posted 18 April 2008 - 10:29 PM
It would be nice if we could say, "this will be over in 38 days". Nice and clean. But, it doesn't work that way, because each of our brain chemistries are so different. I guess that answer is, it will take as long as it takes. The point is to do it with as little discomfort and risk to your overall health. I wish our families could understand, but unless they go through this, they can't, and we sure don't want them to go through it. So, know that we are all here for each other, and will do what we can to provide support, especially during the darkest times.
Please keep updating, I'm thinking of you!
#41
Posted 24 April 2008 - 09:51 PM
Going from 30 to sero was not doable for me, it was pretty ugly. Now I am stable and ready for the slowwwwww taper of Cymbalta.
Thanks everyone
Jeff
#42
Posted 24 April 2008 - 10:25 PM
Jeff, here is the link to Catherine's taper schedule. I'm glad you are going at it slowly. I've been wondering how you are doing, so thanks for posting.
#43
Posted 27 April 2008 - 10:19 AM
Hey there Greybeard, so sorry that you are in this situation. There are many older posts where people did have withdrawal symptoms while on the drug, which ultimately lead them to want off. I don't think to the point that you experienced, but you aren't alone in that one.The Dr. and the Counceler didn't find out I had quit until my next visit 3 weeks later.... neither had heard of the withdrawl symptoms, nor any situations of having these symptoms while STILL ON THE MED (So far in my research i've yet to find this reaction either, but I don't do serotonin modification very well.)
Luckily the Psych Doc desided to listen to me and did not prescribe a replacement until he knows more about my body chemistry and pain issues and the counceler is seeing me more often now, about every two weeks. Being unemployed and not receiving any finantial assistance the only health clinic has not seen me yet for bloodwork or medical evaluation... Processes take time when you're finacially out of the loop.
Anyways..... going back on Cymbalta and weening off it "properly" is out of the question, I never felt "better" while taking it. All the suppliments and special foods others have used and are using with good results I can't afford to buy..... and taking a different Psych med? I don't think so!
Did you try to take Benadryl to help with some of your withdrawal symptoms? You can get the generic "diphenhydramine" at Sams Club for about $2.50 for 300 tablets or Wal Mart has the generic at a very reasonable price as well. The generic of Benadryl works as well as the brand name.
I know that you are not into taking anything else, been there and totally understand that. And I think that if you get off on your own successfully, that is the best way. Sams and Wal Mart and I think Target, there are many medications that are on the $4/month list. And at Sams, you do not need to be a member to get prescriptions there. So, if you have that list next time you see your doctors, you can ask that they find something on the list that would work for you. Link to the $4 prescription list:
http://www.walmart.c....gsp?cat=546834
Sorry that your dreams are vivid. But, even though you said they are "bad" in content, try to see this as a positive thing. Your brain chemistry is working to readjust while you are sleeping. Another thing that happens that is strange is when you start to remember really old memories, like they happened five minutes ago. Again, this is a very good sign that your brain chemistry is "healing" and starting to work on its own again.
Have there been any antidepressant medications that you took in the past that you had some success with that did not put you into withdrawal when you stopped them? Again, I know that you don't want to take anything, but I am one of the people that had great benefit from going on an SSRI and weaning off of that. Been off that now for almost 3 weeks - hardly any withdrawal from that at all.
Best wishes to you that you are already on your way to healing on your own and feel better by the time you read this. Hope you get in to get your bloodwork done soon and that your clinic and docs can find a solution that is reasonable to help you through this quickly.
Best I can tell from your post, you have been off cold turkey for about a month? Hang in there, for many people, that is their turning point. Be strong. Look forward to hearing how you are doing. Try to relax as much as possible and also try to keep your blood sugars level, I found that when I did not eat properly, the rage and emotional swings went more out of control.
#44
Posted 27 April 2008 - 11:54 AM
Once I stopped, my dreams became so vivid that I was afraid to sleep, I was having auditory hallucinations, (best way to describe it) hearing loud slamming noises which would make me jump, but noticed that the dog wasn't barking, so it was indeed in my head.
Now, the pain. My condition causes severe daily headaches, with neck and shoulder pain. Since coming off of this, my pain is far worse than it ever was, and I hurt in places that didn't hurt before. You mentioned your hands, and mine have been so painful lately, that I'm wondering if I didn't somehow acquire fibromyalgia or something.
Anyway, I just wanted you to know that I can relate to what you are saying. You've read the other posts, and it seems your choices are limited. My brain fog did begin to clear, and for the most part, my emotions feel more stable. I hope you and the docs can figure something out that will work. I understand your not wanting to try another drug, but the one dose of Prozac has worked for some people, and it would seem that your docs could give you a sample. But, I don't want to be pushy, just another thought here.
Best of luck, and keep us posted, and feel free to vent whenever you need to.
#45
Posted 27 April 2008 - 02:06 PM
#46
Posted 27 April 2008 - 06:04 PM
sarah1 - If you have been off a week and are asking what brain shocks are hopefully you won't get them! Not everybody does. Brain zaps/shocks are different sensations in your head, can feel like a jolt/shock/zap of electricity. Again, doesn't happen to everybody, just some people, hopefully not you!I NEVER THOUGHT I WOULD BE SEEKING OUT HELP LIKE THIS. I just got off cymbalta last week. I have popped off to my kids, I AM SO lonely and miserable. WHAT HELPS? I am just crying and crying. Yesterday I almost started crying just talking to my daughters boyfriend. I bet he thinks Im a basket case. I feel like a basket case. I hate cymbalta...I have gained 60lb from being on it. Nothing bothered me. I lost touch with me.........What are brain shocks.......I know I need help................
Like Greybeard said, if you went cold turkey, you might want to get with your doctor about this, if they aren't in on it already. Tell your family that you have stopped taking Cymbalta so they can watch over and help you. Don't go there alone.
How long were you taking it? From what dose did you go down from? You will get better and you will get through this, hang on and have faith!
#47
Posted 27 April 2008 - 07:26 PM
#48
Posted 27 April 2008 - 11:04 PM
Hang in there everyone, we are stronger together than as one, much like a rope versus a string.
I am stable now but still taking 30 mg of Killbalta. (opps, did I misspell that, oh gee.) I hate this drug, like the title of this post IT HAS TO STOP can be taken many way, it has to stop being prescribed, the pain it is causing, it has to stop, the lies the mfg tells, it has to stop, the things the mfg are not telling us, it has to stop!!!! I could go on and on.
I am planning on dropping my dosage tomorrow, taking out pellets for about 5 days, then another drop. I am afraid of what could be coming yet I am afraid to stay where I am at. I have been snapping and the anger is there and pops up so fast it is scary. I am deep breathing more when stress hits.
I picked up some supplements for joint pain, my knee especially hurts, never did before. All my joints ache, my dr said it was not the meds, that cymbalta helps the pain LOL.
I have been fortunate this round not to have any zaps like I did before or the brain shakes.
I am praying for all of you and thankful Ken design this website for all of us. Ken you have helped so many people I thank you.
I keep forgetting to get some Benadryl to have on hand just in case I need it. I am taking it slow, slower than I want but I am so afraid of what this Killbalta can do that I need to out smart it.
Keep hanging on everyone, remember it is not you that is going crazy, it is the drug, the drug has caused this and the amazing human body will rebuild. Did you know that you have new blood every so many months, new skin, new bone, a whole new you is rebuilt about a two year cycle. It take two years for every cell in your body to rebuild and be new. In two years you a re a new person if you change today. Change the junk food, the chemicals, the additives, the poisons, the pollution we put into our body. I am the first in line here putting junk into this amazing body, the chemicals, all of it. About the only thing I don’t do is drink and do illegal drugs and smoke. Two years goes by so fast, look back and it was a blink.
Ok I am done preaching and I will get off my soap box, at least I am not screaming at the FDA tonight, that is later in the week LOL!!!
there is hope, there is life after Cymbalta, you can do it, I can do it, we all can do it, God made you and He knows and He cares, He is with all of us. Don't blame Him please, he is our only hope.
Blessing to all and keep the faith!!
Jeff
#49
Posted 28 April 2008 - 04:58 AM
#50
Posted 28 April 2008 - 05:24 PM
It is mid afternoon, 3:11pm and I usually take my cymbalta at 7:30a.m. each morning. This pain started about noonish, 3 hours ago. My head is foggy, kinda like a out of body experience looking in but it is very faint for now. I am also really hot, dripping wet and it is really cool in the office with the AC on.
Going from 30mg to 20mg I didnt think would be much of a difference but maybe I was wrong. I went from 90-60-30 fairly well, 5 days at each level but I was also on Lexapro at the time, that may have made a difference.
Well I will keep checking in.
Blessings to you all, keep the faith, for you and for me.
Jeff
#52
Posted 28 April 2008 - 07:42 PM
Just some history about my rollercoaster. Attempted suicide (came VERY close to accomplishing the task) at 19 when my now grown son was only a couple of months old. Then seemed ok for years-not great but ok, functional. Went without any meds or psych help. Should have had the help. Ruined 10 year marriage to wonderful guy (who he himself committed suicide 3 years ago).
Went bonkers after death of my beloved dad in 1997. Was put on anxiety meds. Still no one saw the need for anti-depressents. Had a severe breakdown about 2002 at work, police came, put me in restraints, sent me to hospital. Went to counseling, but still nothing with the depression.
Finally decided enough was enough. Found a psych who over the course of the last 3 years has had me on aprox. 7 different meds alone, together, mixed up, upside down, every which way but loose. Nothing worked. All right! Cymbalta! The cure all for depression! Then after about 6 months on it find myself dragged out of my house kicking and screaming the whole way by the police again, thrown in an ambulance, taken to hospital, and released less then 24 hrs later. 1 week later I check myself in-want to hurt me or someone else. 72 hours of crap at hospital. Get released. Go home and start throwing stuff away. Good bye Cymbalta!!! Haven't looked back. But in correlation to that now suffer from extreme muscle and joint pain and few other minor issues. Now that I have no job, no money, no nothing-oh wait I have my sanity back-the damn psych won't return calls just because I am trying to figure out if stopping Cymbalta has to do with the physical discomfort and pain. What a jerk he is!
So there is hope for all of you on this evil chemical that our doctors are putting in our bodies and poisining us with. To everyone---------HANG IN THERE, THERE IS LIGHT AT THE END OF THE ROLLER COASTER, MIND BOGGLING TUNNEL.
#53
Posted 28 April 2008 - 08:59 PM
Mary
#54
Posted 29 April 2008 - 05:58 PM
It is not you, it is the drug!!!
I had a real rough night sleeping or lack of, I had bad bad graphic dreams again, very disturbing dreams. I usually sleep hard and do not wake until my alarm goes off. I have sleep apnia and use amachaine and I am out for the count usually. I am not used to having dreams and never have nightmares until starting to go off this stuff. I do not like bad dreams, heck even good dreams I am not used to or comfortable with.
It is not you, it is the drug!!!
Jeff
#57
Posted 29 April 2008 - 11:33 PM
#58
Posted 30 April 2008 - 08:36 PM
I understand, we all do. I hate this too, it is not fair but it is what it is and we have to beat it somehow. I too gave in some last night and took a lexapro and again this morning. It helped the foggy some but the pain is outrageous and I had a brain zap this morning around 10am. It felt like someone was twisting and tugging on my brain, kinda like a muscle twitch but it hurt. Lasted about 10 seconds. I went and bought some benadrhyl and took two and went home and laid down for a while, could not sleep but was dozy. It has helped the fuzzy foggy feeling some. I am restless and yet I hurt to move. Even typing on thes keyboard hurts and I feel it go from my finger tips to my shoulder with each key stroke.
I want to stay with the 20mg as long as I can hold out and not go back up like my body wants me too. I just keep thinking it will pass, I am over this hump. Soon maybe. Everyon ekeeps asking how long, what are all the symptoms, what can be done? I have little answers. I have tken too much pain killers because my stomach is yuk now and I cant even think of taking anything, nausea yuk.
Well thats it for me, I need to go rest as best as I can.
We need to hang in there, keep going, someday this too shall pass.
Remember it is not you , it is the drug
Blessings
Jeff
#59
Posted 01 May 2008 - 12:16 AM
Mary in beautiful Denver
#60
Posted 01 May 2008 - 06:13 AM
Forgive me for not knowing exactly what you are taking or were taking, as far as medications. I did read where you had a bad night and then read where you felt you were back to normal. I know how excited you are to have that wonderful day, where your smile and laugh was not forced, it was genuine and came from your heart. That is one of the best feelings in the world!!
I am not here to discourage you, but I do want you to know if you are feeling anything like I am, that you MAY have other rough days and I dont want you to be discouraged. That is why its so important for me to hang on to my good days, my good feelings. A couple of Saturdays ago, I was rushing home to write on another website (Cymbalta withdrawal) that I had been healed!!! I had had a wonderful day, no brain zaps, was singing on the way home with the radio....but I did a few other things first, before I sat down to write about it. Before I had the chance to write about it, I had a full blown temper tantrum over nothing!! Cherish your good times and try and be prepared for unexpected melt downs. Best wishes to you, Mary.
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