1 reply to this topic

[Whit]

To explain why I am on here, I will have to give a bit of background on what is going on. I had surgery about a year ago on my ankle which caused me to be non-weight baring for about 4-5 months. I have a history of RSD/CRPS and because of the immobility it flared up. I was put on Lyrica and of course loads of pain killers for months. The Lyrics, even at 150 mg three times a day, wasn't helping the nerve problem. This lead to me being put on Cymbalta on top of it to help with the nerve problem and the serious cabin fever I got from being at home all the time at the age of 19-20. I took myself off a lot of my pain medication because I was sick of it and it actually got rid of a good amount of the pain. Yes, I am aware of how backwards that is. About three days ago it was time for a new Cymbalta refill for 60 mg once a day. Just like my pain medication, I said screw that and have not taken it since. I had been told by my doctor that for the Lyrica and Cymbalta that is was a bad idea to mess with any of the dosage without talking to them first. Since I'm a fantastic listener and had taken myself off of a low dose anti-depressant years ago, I figured I would be fine. I've been having some weird side affects and I'm now worried about the RSD/CRPS getting worse since some of the symptoms have sprouted back up a little. then again I did manage to hurt my big toe on that foot so bad that bruising is still showing up days later in all of its black glory. Basically, i just need a little guidance as to what to do or even if anyone else has had this problem. i read about people coming off of it here, but i haven't found anyone with RSD/CRPS. If you do exist on here, come out come out where ever you are ... because i could use some serious help.

Thank you for reading and for being such a supportive community.

[Sha~]

To explain why I am on here, I will have to give a bit of background on what is going on. I had surgery about a year ago on my ankle which caused me to be non-weight baring for about 4-5 months. I have a history of RSD/CRPS and because of the immobility it flared up. I was put on Lyrica and of course loads of pain killers for months. The Lyrics, even at 150 mg three times a day, wasn't helping the nerve problem. This lead to me being put on Cymbalta on top of it to help with the nerve problem and the serious cabin fever I got from being at home all the time at the age of 19-20. I took myself off a lot of my pain medication because I was sick of it and it actually got rid of a good amount of the pain. Yes, I am aware of how backwards that is. About three days ago it was time for a new Cymbalta refill for 60 mg once a day. Just like my pain medication, I said screw that and have not taken it since. I had been told by my doctor that for the Lyrica and Cymbalta that is was a bad idea to mess with any of the dosage without talking to them first. Since I'm a fantastic listener and had taken myself off of a low dose anti-depressant years ago, I figured I would be fine. I've been having some weird side affects and I'm now worried about the RSD/CRPS getting worse since some of the symptoms have sprouted back up a little. then again I did manage to hurt my big toe on that foot so bad that bruising is still showing up days later in all of its black glory. Basically, i just need a little guidance as to what to do or even if anyone else has had this problem. i read about people coming off of it here, but i haven't found anyone with RSD/CRPS. If you do exist on here, come out come out where ever you are ... because i could use some serious help.

Thank you for reading and for being such a supportive community.

Hey,
I am new to this forum but i had to reply to your post. I have CRPS too and was put on 90mg of Cymbalta 1yr 3mo ago for the nerve pain. I never really felt it helped as much as the injections I am getting but told the doctor I would give it time. I have decided the non-benefits are not worth staying on the meds so I slowly decreased my dose from 90mg to 60mg to 30mg and now ready to stop all together. I have had no ill side effects like people describe on here (maybe I am to used to pain from the CRPS) I have CRPS in both arms, finger tips to shoulder and in left leg. I don't think coming off the Cymbalta will make your CRPS come back if it had gone away, you are probably feeling the side effects that people are talking about. I agree that the meds do not help CRPS b/c it is miss communication with the brain to the nervous system which is why I am coming off the meds now.
If I am understanding you correctly, your CRPS has gone away? I still have hopes that mine will too and that it will not continue full body.
good luck