25 replies to this topic

[equuswoman]

This morning upon awakening having severe nausea, slight HA....
Had dropped 118 beads but have added 3 back so now down 115...
Will remain here I guess until brain/body can become stable again...

It seems as if my brain is kinda, what IS t he word here, ??? short circuiting YES I do believe that's it!!! 
Seems the evil, vile, nasty little Cymbalta beads influence does't want to vacate my brain...
Hot flashes/flushing better. For the time being..

Oh and I 'forgot' but I have a very painful inside the mouth right cheek area. Had my DD take a look and it has mulitiple "ulcers" Ugh..

YES so it seems Cymbalta is the drug that just keeps on giving and giving and giving....Hell does it 'ever' end????
Positive thoughts & prayers 4 all here on the Cymbalta forum.
As always your EquusWoman.♥

[Akk]

I had the mouth sores, too; they were nasty.  I went to the dentist, but he just kind of shrugged and didn't know what they were.  I never connected them to the nasty beads.  

Keep up the good work, keep on moving, fake it out!  

[navywife43]

I still have had nausea!!! Also, has anyone else here had severe ear pain??? I am not sure if this is part of the withdrawal or an ear infection. I am so TIRED of all this CRAP!!!!

[fishinghat]

Navywife43, I was just wondering the other day how you were doing.  I trie to do a search on here for "ear" but it won't search for three letter words. I tried "ear pain" but I got a hit for every entry with the word pain in it.  Waaayyy too many. lol  I will see if I can find out another way.Were are you at on your bead counting?

[fishinghat]

FDA says that .3% of those taking cymbalta suffer from eaar pain. I also found 3 references to people going through cymbalta withdrawal that suffered from ear pain.

[Wagtail]

No you're not going backwards, unfortunately it's all part of the journey back to the land of the living .. Just like a VERY LONG LABOUR .. It's hell going through it but the outcome is well worth it.
I too feel like I'm in limbo, no Cymbalta for approx 7 weeks now & still battling with a new symptom every day .. It's like not only my brain has to adjust to being chemical free but my bodies organs are crying out for help as well .. I've had all the usual problems , brain zaps or though mine were more full body zaps , nauseousness , headaches, dizziness , emotions are running wild . One moment I'm happy next moment I'm full of fury then I cry .... I feel pathetic , plus many more that have been spoken about by other sufferers .. The last few days it's been my kidneys & retaining fluid , my tummy looks HUGE & my legs & feet feel like lead . I've become intolerant to spicy foods & grains & lost taste for my usual foods. I'm hungry all the time but don't know what I want , everything tastes bland. I think I've actually gained weight too but not game to weigh myself because I know it will upset me more.
Two days until the Xmas break & all the family will be here , three children & their families are all coming for Xmas lunch & here I am a bloated emotional mess... But I CAN & I WILL get through this wonderful XMAS day BECAUSE ! .. Am am on my way " FROM MISERY TO HAPPINESS " ah ha ah ha ... The future looks promising & my love ones will be here to see me through .... Hang in there girlfriend , there IS light @ the end of this tunnel for all of us ... 👍👍👍 🎅🎄🎉

[Timbo]

This morning upon awakening having severe nausea, slight HA....
Had dropped 118 beads but have added 3 back so now down 115...
Will remain here I guess until brain/body can become stable again...

It seems as if my brain is kinda, what IS t he word here, ??? short circuiting YES I do believe that's it!!! 
Seems the evil, vile, nasty little Cymbalta beads influence does't want to vacate my brain...
Hot flashes/flushing better. For the time being..

Oh and I 'forgot' but I have a very painful inside the mouth right cheek area. Had my DD take a look and it has mulitiple "ulcers" Uhg..

YES so it seems Cymbalta is the drug that just keeps on giving and giving and giving....Hell does it 'ever' end????
Positive thoughts & prayers 4 all here on the Cymbalta forum.
As always your EquusWoman.♥

Hi EquusWoman...what time are you taking your daily pill?   I'm asking, since I notice those symptoms start to creep in about 2 or 3 hours before I take the pill.  Then they are gone in an hour or 2.   Adding back in a few beads here and there (as you did) has helped me as well.     I bet your body will feel stable again tomorrow...I really do.   I have been wrong...once...this could make # 2, though!  ;-) 

[equuswoman]

Stayed steady will drop no more than one bead at a time. Can't handle the w/d...muout full of painful ulcers ouch...

[Timbo]

Stayed steady will drop no more than one bead at a time. Can't handle the w/d...muout full of painful ulcers ouch...

Wow...you are getting hit with everything all at once.  I'm so sorry.  I think you are wise to hold steady.  I'm think I'm heading to the same situation.  I can feel it (but no ulcers, thank goodness).    Sending prayers your way, my friend.  

[equuswoman]

Thank you bunches. Guess both of us should whoa down a little lol. TC friend♥

[Timbo]

Thank you bunches. Guess both of us should whoa down a little lol. TC friend♥

Yes, indeed.   I ended up having to add back 20 beads.  Even with the additional 20, I'm not feeling very well.  I have a doctor's appointment this afternoon (I didn't know that I did...I missed the appointment this morning).    I am preparing to let him know about this experience (how bad it has been).   I think we all need to make sure our physicians know how negative this experience has been.  That way, when they see the Eli Lilly drug reps in their offices, they can pass on the information.   That is one of the best ways to impact change with drug companies - if physicians get too many complaints from their patients, the Eli Lilly reps are going to want to keep that business and will work to find some solutions higher up the food chain.   

[Akk]

Good point, Timbo. I distinctly remember my doctor using the phrase wonder drug when he prescribed this garbage for me. I have kept him informed of the w/d process.
I have had the last nasty bead 12/23. It had not fully occurred to me how much of a fog I have been in during this 3 month weaning process until I was watching my family open gifts and I had no idea when I had bought all this stuff. I wrapped it in the last 2 weeks, but I must have been really out of it mentally. I even gave my son 2 of the exact same thing! One of my kids asked what the heck was going on with me-she is afraid I am getting Alzheimer's...I keep explaining that it is this stupid medicine I am going off of, but they don't quite understand how anything could wreck such havoc on a reasonably intelligent human being. They are all adults, too!

anyhow, my backward slide seems to have stopped for today. I will relax and enjoy the sanity.

Equiswoman, hope you are on the mend. keep taking it slow.

[Timbo]

Good point, Timbo. I distinctly remember my doctor using the phrase wonder drug when he prescribed this garbage for me. I have kept him informed of the w/d process.
I have had the last nasty bead 12/23. It had not fully occurred to me how much of a fog I have been in during this 3 month weaning process until I was watching my family open gifts and I had no idea when I had bought all this stuff. I wrapped it in the last 2 weeks, but I must have been really out of it mentally. I even gave my son 2 of the exact same thing! One of my kids asked what the heck was going on with me-she is afraid I am getting Alzheimer's...I keep explaining that it is this stupid medicine I am going off of, but they don't quite understand how anything could wreck such havoc on a reasonably intelligent human being. They are all adults, too!

anyhow, my backward slide seems to have stopped for today. I will relax and enjoy the sanity.

Equiswoman, hope you are on the mend. keep taking it slow.

Great post.  I'm glad you said all of that.  I have been having the hardest time rememberthings...I have always been pretty quick on my feet.   Other's have noticed my lack of focus...I keep saying that I feel like I have dementia!   I sure hope I get my old mind back eventually.  I hate the fog that I feel all around me.  I'm a medical rep, so I am in front of customers all day long - I feel dread with every meeting, since I just can't seem to get a clear head.  For what it's worth...I appreciate the confirmation that other people are experiencing the same thing.   

[equuswoman]

Great post.  I'm glad you said all of that.  I have been having the hardest time rememberthings...I have always been pretty quick on my feet.   Other's have noticed my lack of focus...I keep saying that I feel like I have dementia!   I sure hope I get my old mind back eventually.  I hate the fog that I feel all around me.  I'm a medical rep, so I am in front of customers all day long - I feel dread with every meeting, since I just can't seem to get a clear head.  For what it's worth...I appreciate the confirmation that other people are experiencing the same thing.   

Yes my forum friend. One of the scariest moments I had that had me looking for Cymbalta on the net was this.

 

My sister and I were getting ready for a 4 day barrel racing event. She races I watch. I just ride my lil horse for sheer pleasure...

 

Anyhow she asked me to go unlock the bunk house and bring out 2 bags of shavings for the horse trailer. Handed me her key and so offI went to get the bags of shavings. I unlocked the door, this was with only a few minutes, and stood there in the middle of the one room bunk house not being able to recall at ALL 'why' I had gone in there. I knew it was to 'get' something but had NO idea what it could have been. 

 

I had to walk back outside and ASK her??????

 

She said 2 bags of shavings as she looked at me with a very puzzled look on her face...Now that is what scared the horse biscuits   outta this ol' equestrianwoman....I am "not" a cowgirl...but I do ride an equine thus I am an equestrian....lol Just thought I'd throw that little bit of quite useless info out there for y'all.....

 

Finding some humor along this Cymbalta hell journey has helped me a bit and I'll take any teen, tiny bit I can GET!

 

As always TheEquusWoman

[Wagtail]

Timbo , ( spellcheck wanted Tomboy ! ). I had just been telling my husband that I seriously though I was succumming to dementia , then read your post . I was overjoyed to read that you were feeling the same way , I guess it sounds weird to be overjoyed @ such a thing but it did make me feel a lot better to know that it's just another side effect that we need to put up with .
Like Akk , I have been living life in a fog too.. Trying to chose Xmas gifts for everyone has been a nightmare but luckily with a lot of help from some very helpful sales assistants , I did it & never doubled up once .. Very funny Akk you mad me chuckle .
Very emotional night for me last night after some of our family left to return to their homes, couldn't control my emotions any longer & had a meltdown , feeling hungover from it today I'm afraid .
My worst side effect @ the moment is , the feeling that my brain is swelling & filling up my entire head . It 's not like a headache , more the feeling that my head is too heavy for my neck to support & a very dull constant ache.
Hoping all of you are staying strong & hanging in there.. Got to go & practice my " I'm ok Look " we have a dinner party to attend in a few hours & I've been crying all night & morning ..

[navywife43]

FDA says that .3% of those taking cymbalta suffer from eaar pain. I also found 3 references to people going through cymbalta withdrawal that suffered from ear pain.

thank you for looking this up!! I only seem to have it when I lay down and relax especially at night.

[equuswoman]

Doesn't suprise me.
Cymbalta SUCKS
I hate it and all of its nasty w/d symptoms!

[Timbo]

I haven't had ear "pain," but I have had LOUD ringing in my ears that is almost constant.   I don't notice it as much as I did at first, but it is definitely there.   I thought maybe I had high blood pressure or something, but my blood pressure last week was 120/70; so that's not it.   Oh, well...38 beads to go!  

 

Wagtail, I loved your post...it made me smile.  I completely know what you mean...the relief of hearing that your symptoms aren't isolated.  They aren't!   

 

Equuswoman...how are you my friend!?   Great story about your experience.  That's a great example...I have to ask everyone to repeat themselves over and over.    I'm not sure if the fog is from the Cymbalta or just a reaction to the overwhelming OTHER side-effects that seem to keep my mind so full.   Mornings are better than evenings.  I am realizing I have to work extra hard to get all of my work finished before the evening symptoms come creeping back in.   Speaking of...time to bead-count!  :-) 

[Wagtail]

New Years Eve tonight but not celebrating, don't think I could cope !.. Having a scan & ultrasound of my abdomen on the 3rd Jan 2014, I'm praying that it has something to do with going off the Cymbalta . I feel like I've swallowed a football & it's slowly inflating .. Bloating hell ... Just a tad worried that it might be something more sinister . I seem to be worrying a lot more since stopping the dreadful drug, I don't know if it's anxiety returning but I keep getting the dreadful feeling of dread & doom . To think that back in November I felt well enough to cease the Cymbalta after ten years . Praying I don't need to go back on a antidepressant !... Sorry guys but a bit doom & gloom ATM .... Hoping you're all doing better than me ..

[Timbo]

Wagtail...It sounds like you are just having a "bad day" - they come and go, don't they?    I will be sending you good thoughts and prayers for the outcome of your tests.   I believe that you will have good news.   WHEN you get good news, just remember that this stuff/experience plays a game with your mind.   The paranoia comes and goes with me as well.  I have felt like a hypochondriac since starting this process - and I honestly never get sick.   I am believe it is just the effects of our brains healing themselves.  I sure hope you can continue to manage without going back to an antidepressant.   But only you know what you are able to tolerate.   I know it's challenging and scary.   Hang in there...remember you can always get listening ears here.  

 

I'm celebrating at home alone tonight as well...I'm actually kind of enjoying that fact!  Gonna finish off the ice cream and have one last unhealthy meal before the tomorrow when it's "back to healthy" for me!  

 

Happy New Year...regardless of what your mind is telling you!  :-) 

[equuswoman]

What an encouraging postTimbo.You are a blessing to others here on this forum. May God bless you always. ♥TheEquusWoman

[Timbo]

What an encouraging postTimbo.You are a blessing to others here on this forum. May God bless you always. ♥TheEquusWoman

You are too kind, my friend!  I think I could safely make the same statement to you as well and know that every word is true!  :-)  

[Wagtail]

Thank you Timbo, I did manage to get through the night but needed to take 2mg of Zanax to calm down my feelings of impending doom . Ditto with Equuswoman , your response did inspire me. I think a huge part of my problem is trying not to upset my husband , he is quite tolerant of my situation but I can feel that he has had enough of seeing me unwell . You can't be married to someone for 46 yrs & not be able to pick up on their true feelings . I can see it in his eyes & hear it in his voice & he expects me to still be able to carry on the same as before I went off the Cymbalta & I try but I just can't cope as well @ the moment .. Catch 22 dammed if I do & dammed if I don't !... Good to be able to vent to people who understand the way I truly feel .
Hopefully by this time in a few months we will all be able to get back to who we were pre Cymbalta.
Thanks again everyone .

[Clara]

Hey all and Happy New year! Great posts from everyone! I so identify with each one. It seems that when I think I am really "on my way" another crappy day comes along! My day can begin well, but as it progresses the aches, tiredness, sadness, indecision, you name it comes along. I'm just frustrated in my progress! Oh well, prayers for all!  clara

[equuswoman]

Clara I can so r/t what's going on with you. Yesterday was a mind malfunction kinda day for me. Unable to focus. Headache that lastrd all day. Hang in there. We are in this together and will make it, one day one bead at a time darlin'♥ love you TheEquusWoman

[equuswoman]

Clara I can so r/t what's going on with you. Yesterday was a mind malfunction kinda day for me. Unable to focus. Headache that lastrd all day. Hang in there. We are in this together and will make it, one day one bead at a time darlin'♥ love you TheEquusWoman