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I'm Hanging In There


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#31 fishinghat

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Posted 01 July 2014 - 07:17 PM

Happy birthday Lundeliz. You are only a few weeks older than me.


#32 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 01 July 2014 - 08:52 PM

Thank you, fishinghat.  1952 was a good year!


#33 thismoment

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Posted 01 July 2014 - 09:53 PM

Lundeliz

Happy Birthday!

July 1, 1952 was a Tuesday. Harry S. Truman was the President of the United States and High Noon with Gary Cooper and Grace Kelly was in the theatres. East of Eden by John Steinbeck was about to be released to hungry bookshelves around the world, and Kiss of Fire by Georgia Gibbs was the Jukebox favorite song! With Europe still sweeping up after WWII, America was booming: motherhood was blooming; and babies born in 1952 would later be called 'boomers' based on their exploding numbers!

#34 Wagtail

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Posted 01 July 2014 - 10:55 PM

This moment , how lovely of you to do that ... A lovely gift for Luneliz ...xx

#35 thismoment

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Posted 01 July 2014 - 11:07 PM

Hi Gail

Thank you! I've been following your thread with FN and FH; I hope you are feeling a little better today.


#36 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 02 July 2014 - 12:05 AM

Wow,  thank you thismoment.  That is really interesting.  I'll have to save all that info. I didn't know

 

any of it, except for who was President.  I appreciate you doing that for me!


#37 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 16 August 2014 - 02:23 PM

Hi everyone.  Just thought I would check in today.  I'm 8 1/2 months off Cymbalta now, and

 

still struggling.  I'm off all meds, finished up my atenolol taper about two weeks ago.  Some

 

symptoms improve, and others take their place.  Thankfully, the akathisia is gone most days,

 

and I have mild episodes some days.  Anxiety is better.  The pressure headaches are getting

 

better.  Now I've been hit with inflammation type symptoms.  Joints and muscles hurt and  I have

 

bladder inflammation and I'm terribly weak.  Life still feels very difficult, but I know things are better

 

overall. I'm up and about more, not spending so much time in bed.  This just takes longer for some

 

of us it seems. I'm trying hard to stay patient, and I do believe it will all go away one day.  Hang in

 

there everybody!


#38 fishinghat

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Posted 16 August 2014 - 03:31 PM

You have really been through a lot. I applaude your strength. I would think that weakness should go away with time. Keep hanging in there. No meds is great!!


#39 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 16 August 2014 - 03:53 PM

Thank you Fishinghat!


#40 TryinginFL

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Posted 18 August 2014 - 05:47 PM

Thank you for your update, Lundeliz...

 

I'm sorry that you have been feeling so badly but how wonderful to be off all meds!  I'm sure that all will improve as time goes on - although I know that you have spent enough of that time waiting for this to happen.

 

Thankfully, you are able to be up and about more...God Bless 


#41 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 21 August 2014 - 08:30 AM

Thank you for the encouraging words, TIF! I know

you are right and I'll keep hanging in there like all

of you are.

#42 thismoment

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Posted 21 August 2014 - 09:30 AM

Lundeliz

 

Good for you! I too am off all meds. Sorry to hear you are still struggling, but I don't think that's abnormal.

 

Your experience parallels mine, and  you will continue to improve. I am off 2 years, and symptoms rarely re-appear, but it happens-- but now it's a lot easier and I'm not tempted to run to the doctor as I used to. The recurrent joint and muscle pains still appears, and I still have tinnitus in my left ear, and a (so far) permanent tension-type headache which I hardly notice anymore.

 

If you and I represent the model, then there is vast improvement by 6 months, but discontinuation goes on well beyond that, and its ending may never be realized in a satisfying click-it's over! Surely TFL, Gail, Wagtail, and FN will attest to this. It gets better by coffee spoons, not buckets or even soup ladles.

 

"I have seen patients who have continued to improve well beyond two years."  This is from an email from Dr. Stuart Shipko to me.

 

Hang in there my friend and try to find some engaging distractions.

 

Take care.


#43 Lundeliz

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    I c/t'd from 60mg in 2009. Went back on and started tapering. Spent the next 4 years trying to get off. It was very difficult. Finally stopped at 17 beads on Dec.4, 2013.

Posted 21 August 2014 - 01:35 PM

Thank you, TM. I appreciate your encouraging words. The slowness is frustrating, but it's good to know the improvement will continue.
I'm glad things have gotten much better for you.
Thanks for the hope!



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