Jump to content



Photo

120Mg To 60Mg To Zero In 2-3 Weeks, But Feels Like For Ever


  • Please log in to reply
22 replies to this topic

#1 AnotherOneLikeEveryoneElse

AnotherOneLikeEveryoneElse

    Newbie

  • Members
  • Pip
  • 4 posts

Posted 22 May 2014 - 01:46 AM

I am new here and am glad to have found an active community to help me realize I am not alone and more importantly not crazy... Ok, maybe a little crazy give that I am here because of the meds I take :)

Brief summary first:
After a year and a half of my severe depression not improving, despite the fact that I'd been on Cymbalta for nearly 2 years, maybe more - starting at 60mg the moving up to 120mg fairly soon thereafter, my doctor suggested I try Latuda, then after 10 days or so reduce my Cymbalta from 120 to 60mg since it didn't seem to be helping anyway. I noticed a remarkable difference the day I started Latuda and was excited to reduce my Cymbalta. However I had not done any research nor did my doctor mention how much fun was in store for me. So 10 days or so after starting Latuda, I cut back the Cymbalta by half. A day and a half later I felt like I was dying. I started researching Cymbalta withdrawal online and was surprised to see how common these symptoms were. So common that there's a name for it: Cymbalta Discontinuation Syndrome. Not that naming what was happening to me made things better, but at least I wasn't he only one going through hell. I ended up having to take 4 days off from work after suffering for nearly a week. Headaches and concentration issues were the main problem at the time. I called my doctor when I realized that I'd have to take time off to get through he withdrawals and asked if it'd be ok to just stop taking it completely. After all taking the jump from 120 to 60 made me think that it couldn't be much worse to just go off it altogether. I had taken the time off already, I figured I might as well just get it over with. He said no. He felt I needed some stability for awhile... Since it'd literally years since I'd been stable. Which, looking back I realize I was actually never stable, just numb.

I decided to go against his recommendation and stopped Cymbalta completely after a week or so of my first drop.no had already put my family through enough. I didn't want to do it again in a few months.

I am almost to a week of being free of Cymbalta and while the withdrawal symptoms are still happening the are not as bad. But I kind of feel like they are at a standstill now. I can't concentrate on work, my head feels like it's going to explode - I've found that ibuprofen actually takes he bite off the headaches a bit, and Benadryl seems to do something at night that helps, I guess, although I can't pinpoint what it's helping...

I seem to have gone through pretty much what everyone else has posted on here. I even notice the timeline for certain symptoms seems to be similar from one story to another. I am at the crying stage now. Two days ago was the suicidal stage - I even tested it a little to see i it was something I could really do - I have a nice scratch up my left wrist now but realize the whole time during my test that I didn't really want to kill myself, I was simply not in my right mind. The day before that episode I had a good day of rage, I wanted to kick things, throw things, scream - all of which I only visualized in my head, I did't need to test anything there, I knew I'd cause damage to tangible things. All he while I was having horrible headaches, slightly sick to my stomach, didn't want to eat, was dizzy and couldn't focus or concentrate, etc... So today is be crying and the rage and suicidal thoughts seem to have faded, but the constant symptoms don't seem to be going away yet. So like many others have asked, when will these start to go away?? I know everyone is different, but so many of the symptoms and timelines seem to fall inline with one another that I am hopeful there's at least some sort of common timeline for complete recovery of this head fog I am in. I can't afford to take more sick time - although maybe taking the short term disability route could apply here.

I hate this and want to be done. As much as I'd like to say "I want to feel normal" I know that regardless of he havoc Cymbalta is causing, I won't ever feel what I imagine other get to feel: normal. I'll gladly settle for my Cymbalta Discontinuation Syndrome to resolve though.

I'd love to get insight from others on 'fast tapers' of this drug and how you think it's affected the duration of your withdrawal symptoms or not. Maybe regardless of the method of ridding our bodies of this drug, the course is somewhat similar in symptoms and duration of the symptoms?

My eyes are blurry now, even though my crying stopped when I started writing this and in addition to this, my head is hurting quite a lot on the right side, towards the back - the pain slowly, or sometimes not so slowly, seems to move to different, isolated, parts of my head, and then sometimes my entire brain feels like it's unavoidably going to fail to function correctly. But long story short, I guess hat was my long winded way of closing this post.

If you got this far, thanks for reading my post!

:)

#2 AnotherOneLikeEveryoneElse

AnotherOneLikeEveryoneElse

    Newbie

  • Members
  • Pip
  • 4 posts

Posted 22 May 2014 - 01:51 AM

Terrible typos in my post! I hate typing on my phone! I think the gist of the story is still clear, so I'll avoid pointing them all out....

#3 AnotherOneLikeEveryoneElse

AnotherOneLikeEveryoneElse

    Newbie

  • Members
  • Pip
  • 4 posts

Posted 22 May 2014 - 01:57 AM

Ok, one more thing...
The rest of my drug cocktail consists of Aderall, Lamictal and Ativan as needed, which is needed more often than not.

#4 Xanazul

Xanazul

    Advanced Member

  • Members
  • PipPipPip
  • 98 posts
  • LocationCanary Islands, Spain
  • why_joining:
    Fnding cues for what I am feeling. Hopefuly giving others cues about this distressful state of mind and body we are all going through.

Posted 22 May 2014 - 03:15 AM

Good morning EOLEE,
Some other people more experienced that I am will post soon and you will find the comfort you need at the beginning of this journey you've started.
You weaned off from a high dose completely cold turkey and that is HARD. Everything you may be feeling you can attribute to Cymbalta withdrawal. You may have a long way to go (or hopefully not), before get through this, but you will. You just found one of your best resources to do the feat, this forum and the kind, caring, concerned, loving, experienced and wise people you will find here.
Wait for others to advice you and stay as calm as you may able to
And be compassionate with yourself.

#5 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 22 May 2014 - 07:45 AM

Hi AOLEE

 

Welcome. I see you have stopped Cymbalta cold turkey, and the symptoms you are experiencing sound pretty standard. 

 

After just a week off you feel that the symptoms have levelled off and aren't getting worse- that's great! The Latuda should be at full-strength in another 3 weeks, so hopefully your Cymbalta discontinuation will calm down even more at that point.

 

Typically when uploading another drug like Latuda, the Cymbalta is tapered off over a month or so while the other is uploaded simultaneously. 

 

Regarding the 'fast taper' and withdrawal symptoms, cold turkey seems to yield the most difficult symptoms for the longest period. 8-12 weeks of struggling is not uncommon. Thereafter there is easing through the next couple of months and by 5-6 months you will know you can make it. I tapered off over 42 days and that was too fast! I think 90 days would be good, tapering off slowly with no steps- a constant reduction of 1 or 2 beads each day. See the posting on Bead Counting.

 

There are reports of people having few withdrawal symptoms at all, and they feel good after just a couple of weeks. Wouldn't that be nice!

 

The longer taper has less acute withdrawal symptoms, though the overall duration of the symptoms is perhaps about the same. (Others will comment on this).

 

Keep the anxiety down with your benzo as necessary. 

 

The Cymbalta is 99.9% out of your system in a week, but like a tornado after it's gone- the repairs are often long and painful. Good luck with this and keep us posted. You can do this!


#6 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 13,895 posts
  • LocationMissouri

Posted 22 May 2014 - 08:51 AM

TM is right on. Keep your Ativan nearby and buckle youor seat belt. You will make it though. You will just need a lot of patience. If you have any questions or concerns, just want to vent or need a shoulder we are here.


#7 Clara

Clara

    Like a Family Member

  • Active Members
  • PipPipPipPipPipPipPip
  • 542 posts
  • LocationSouth Carolina
  • why_joining:
    Cymbalta withdrawal symptoms others have and support for myself and help others

Posted 22 May 2014 - 09:52 AM

AOLEE welcome! Agree with FH and TM, hang in there! You can do this! Be easy with yourself! Come here to ask, rant, vent, whatever! It's all ok here! Hugs and prayers! :)


#8 AnotherOneLikeEveryoneElse

AnotherOneLikeEveryoneElse

    Newbie

  • Members
  • Pip
  • 4 posts

Posted 22 May 2014 - 11:43 PM

Thanks for the replies! I felt the same today as yesterday. However, today I tried to take ibuprofen more often, in an attempt to avoid the severe headaches. It seemed to work a little. To bad ibuprofen doesn't help he dizzy/foggy feelings in my head. Nausea was also a bigger problem today. I didn't know if I should try to eat dinner or not... I figured I should try to eat something, and eating actually helped :)

#9 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 23 May 2014 - 12:59 AM

AOLEE

I found ibuprofen didn't help my headaches much, and it did bother my sensitive stomach some. Some of my headaches came from staring at media screens all day- computers, iPad, iPhone. Better to go walk by the river.

You might keep the nausea down by creating a lite diet for a while, like the BRAT diet. Eat less, and don't eat after the evening meal as that can cause nausea and reflux when you lay sown. The dizzy/foggy feelings slowly fade away. And some sleep aids can keep you staggering around in the foghouse until well into the afternoon. Easy on the lights-out drugs.

By all means eat, but go easy and don't spice it up too much, and don't eat in the evening.

#10 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 04 June 2014 - 02:15 PM

I am new here and I have so many questions to ask on weaning off. I have read so many of y'all's stories and to be honest I was scared to death to try. I asked my Dr if I could stop taking them and he said no because I would go mad. Let me explain why I wanted to stop. I was diagnosed with fibromayalgia last year after living in unexplainable tortorous pain for three years and I was finally out on Cymbalta 30 mg for two weeks which worked worked perfectly for me but my Dr moved me immediately to 60 Mg and left me on that until now. I have gained 30 lbs and cannot lose it to save my life. I just retired from 21 years in the Marine Corps so I was always in good shape and now I'm a fat frumpy 42 year old whose husband left and divorced me because I look horrible and Cymbalta makes me sleep all the time. So pretty much he thinks I went from pretty, happy, model Marine to fat, lazy, frumpy housewife. So now I'm depressed for the first time in my life (while taking an anti depressant) go figure! And scared of all the anger I have and suicidal thoughts I now have. I have three children that I love more than life and I want my life back. I want off this crap!!!!!😡

So last Sunday I emptied 3 week's worth of pills half way down so I am guessing I went to 30 Mg and I did that for a week with no symptoms at all except a little eye blurriness and head aches and irritability. I am on 25 Mg of Topomax for migraines and I follow a strict Herbalife lifestyle so I a very healthy eater and vitamin intaker. This Monday I emptied the rest of the halfway pills by 14 lil white dots or so and so far I have been crying a lot more this week and a little more irritable but that it it. I am hoping to be off completely in the next two or three weeks. No zaps yet. Am I just really lucky or do I have something really waiting for me???

#11 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 13,895 posts
  • LocationMissouri

Posted 04 June 2014 - 02:40 PM

It could be either way Lildebbie. Usually the worse symptoms do occur at the end of discontinuing the drug. There is really no way to tell until you get there. Sorry I couldn't give you a concrete answer. Either way you can make it through this. We are here to help.


#12 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 04 June 2014 - 02:49 PM

Depression is one of the side effects of this drug, as are suicidal thoughts and rage. 

 

You are stepping down pretty quick 60 to 30 and that alone will produce withdrawal symptoms. That step-down combined with stopping in the next 2 or 3 weeks is pretty much cold turkey- you may as well stop today. Cymbalta has a half-life of just 12 hours, so any steep reductions in dosage or missed days will bring on withdrawal.

 

The bead-counting slow taper is generally done over a period of 12 weeks or so. The withdrawal symptoms are still there, but are reduced a lot compared to cold turkey.

 

Are you just lucky? Perhaps. Hopefully your withdrawal will continue to be light. No zaps is good!! 

 

There are bead-counting strategies elsewhere on the forum- see Bead Counting Revisited.

 

Keep us posted. You can do this!


#13 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 04 June 2014 - 03:36 PM

I definately do not want to do it cold turkey. I did find a lot of other people online said 60 to 30 was nothing but 20 to 0 was pure hell. That is what I am most fearful of so I am to the counting point right now and I did start big by taking 14 beads out at a time. I don't know if the Topomax is helping me because I did have Nassau and migraines daily due to my fibro and that takes those away completely so it might help those withdrawl symptoms as well. I also forgot to mention I take a Herbalife product called Relax Now and it is a all natural pill for anxiety and I heard it also assists with Cymbalta withdrawls so I started taking that the day I started taking beads out of my pills. I'm glad I found this site and I will definately need your guidance and advice!

#14 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 04 June 2014 - 04:46 PM

Lildebbietx

 

Just to be clear, the course you are on now (finishing in two weeks) is nearly the same as cold turkey. Here's my advice: If your symptoms remain light- great! If they come on gangbusters and are really rough, go back on the 30 mg until you are stable (maybe a week of 10 days) and then wean off slowly over 10 or 12 weeks.

 

I have a few questions if that's okay.

  • How many total beads in your 30 mg capsule? (In other words, how much of a drop in dosage is 14 beads- either in mg or percentage?) 
  • Are you taking out 14 today, 28 tomorrow, and 42 the next day?
  • Are you taking the brand name Cymbalta by Eli Lilly? 

14 beads from 30 mg sounds like a lot- typically people remove 2 or 3 beads; some folks can only reduce by 1 extra per day.

 

Regarding your 14 extra beads per day, if you get rough withdrawal, stay at the current level until you stabilize (might take a few days), or go back up a few beads. Once you are stable, continue, but remove fewer beads.


#15 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 04 June 2014 - 05:12 PM

I got switched to the generic Duloxetine HCL which is a substitute for Cymbalta. I only dropped 14 beads for the whole week. I prepared 7 pills and took 14 beads out of each pill so I will let that settle with that amt for a week. Next week I will remove 14 more. I don't remove daily. I always allow a full week per deduction to allow my body to get used to the reduction. Two weeks is probably not actually when I will be done but that is how I am planning on finishing is only removing 14 beads a week for now and see how the withdrawls go.

To be honest, I have no idea how many beads are in my pills right now before I took the 14 out I just dumped each one half out and when I put the blue part back on I see the beads do not go over the half way line on any of them. I didn't count all the white beads in there. I guesstimated.

#16 thismoment

thismoment

    God-like

  • Active Members
  • PipPipPipPipPipPipPipPip
  • 2,514 posts

Posted 04 June 2014 - 06:40 PM

Lildebbietx

It sounds like your plan is working. Keep us posted with your progress.

#17 Xanazul

Xanazul

    Advanced Member

  • Members
  • PipPipPip
  • 98 posts
  • LocationCanary Islands, Spain
  • why_joining:
    Fnding cues for what I am feeling. Hopefuly giving others cues about this distressful state of mind and body we are all going through.

Posted 05 June 2014 - 01:18 AM

Lildebbietx,
I am not to advice about the withdrawal, other here who know better are already taken care of it, but after the withdrawal is over or even when on it this I want to tell you: your ex husband is a selfish, uncaring, ruthless asshole.
You will recover and be content all by yourself or with some else that will truly love you.
The other side of the story is that this process you are going through has unmasked the real person you were married to, a man that does not deserves you, before he had the opportunity of doing you more harm.
Take much care

#18 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 05 June 2014 - 10:42 AM

Thank you

#19 Clara

Clara

    Like a Family Member

  • Active Members
  • PipPipPipPipPipPipPip
  • 542 posts
  • LocationSouth Carolina
  • why_joining:
    Cymbalta withdrawal symptoms others have and support for myself and help others

Posted 05 June 2014 - 05:20 PM

Lildebbietex, Hang in there! Hopefully, you will be lucky with no brain zaps! As a marine, you probably are "prepared for anything"! Big C w/ds..... we can never be prepared for all the crap it throws our way!!!!!!!!! fat, frumpy, no way, just the negative crap Cymbalta slings at you! You can do this!!!! Keep us posted! we understand and care!  Hugs and prayers!!!  clara


#20 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 11 June 2014 - 06:55 PM

So I just wanted to keep everyone updated so far as to how I am doing. I am down to 14 beads today that I took this morning and still no withdrawls other than mood swings and irritability. I do however sleep at night now and actually have dreams!!!!!!!! I haven't reached deep sleep to have dreams in so long😃 and I not sleeping my days away anymore. My kids think I'm mean and I did yell at my mom in the phone today because she wants to reserve a dinner night for my birthday at the end of the month but I am not comfortable leaving my house until I get this Cymbalta weight off. I hate it and I hate that I can't fit my underwear anymore😡. So my final 5 beads are tomorrow. Wish me luck and I will keep my progress on here as my post days and months come along as well. Today I ordered my weight bench and weights and I on a mission to get my rear end Into my garage gym and get on the treadmill and lose this weight and build muscle.

#21 TryinginFL

TryinginFL

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 6,274 posts
  • LocationFlorida
  • why_joining:
    Now that I have been off this poison for over 6 years, I hope to help others as they join us

Posted 11 June 2014 - 07:13 PM

Lildebbietx - Congratulations on your excellent withdrawal! :)  Most of us wish that we could have had your quick and not so terrible experience.  What you describe is very little compared to the usual miserable condition of the majority.

 

I understand about the not fitting into the underwear - it has to be the most degrading part of the weight gain :angry:  I experienced this myself but I have managed to lose some of the weight so I can wear underwear again :D

 

Your exercise plan is great, but please go slowly to start - exerting a great effort from the beginning can give you a day or few of wishing you hadn't!  Good luck with that and please keep us posted - you're doing a great job!


#22 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 11 June 2014 - 07:34 PM

It will be a slow progression to get the weight off I'm sure. I still feel light headed. I think my withdrawls were so light because I am on a very clean diet and an Herbalife lifestyle. I drink two Herbalife shakes and teas a day and each shake has half cup of oats, handful of chia seeds, hand ful of flax seeds, spoonful of coconut oil and my teas have aloe Vera in them. I also take a herba life product called Relax Now which is an all natural anti anxiety and stress relief. So I fill my body with so many proteins and fibers and omegas that I clean it out daily. That's what gave me the courage to finally get off my Cymbalta. I want to live healthy vice drugged. I hear essential oils will assist with the withdrawls as well.

#23 Lildebbietx

Lildebbietx

    Member

  • Members
  • PipPip
  • 11 posts

Posted 15 June 2014 - 10:03 PM

If there are any dads out there, happy Father's Day! I am 2 days of No Cymbalta. Lots of depression and crying and a little punching of the inside of my car, but the scabs on my knuckles are healing quite nicely. 😁 I went through a couple of days of feeling like I was high on drugs all the time but that has passed and I think I'm in the clear. The heart burn is driving me crazy about now and I'm hoping that is because it is leaving my system along with the Cymbalta. I worked out in my garage yesterday and ran on my treadmill faster that no have in a year and I felt wonderful!! I hate that drug and never want to touch it again. No crying today so hopefully these depressive crying episodes will end soon too. I never had a depression problem prior to Cymbalta so I am ready to not have these episodes again. I starting to have my fibromyalgia pains return that I forgot I had. Painful jaws and nerves in my teeth and gums. Pains in my feet from just going grocery shopping to the point I feel like my feet are about to explode. So I now going to have to figure a new way of dealing with these pains but I will probably pick up meditating and Thai chi for that. Wish me luck!!!!!! My kids want their mom to stop acting crazy😳



0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users