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Looking Forward To "finally Coming Back"


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#1 FinallyComingBack

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    I'm mad as hell and not gonna take it (Cymbalta) anymore!

Posted 14 August 2014 - 12:33 PM

Hello everyone, I am newly off Cymbalta (about 3 weeks) after tapering off from 90 mg/day over about 2 months. The withdrawal is quite the ride, yet I find the symptoms are just a more intense version of what I experienced periodically while on Cymbalta.

 

This forum is great, and I see from the posts I read so far that it is filled with intelligent, imaginative and humorous people, and that shines through even when you are having a bad day and babbling - maybe Cymbalta is a conspiracy to keep us from being too clever!

 

I was on Cymbalta for 6 years, on 60 mg/day for 5 years then last spring (2013) my psychiatrist increased the dose to 90 mg/day - things got worse, not better! Prior to Cymbalta I was on Celexa for about 5 years. I was prescribed Celexa (by my previous family MD) when I was going through a difficult time and for the first time in my life was finding it hard to cope. It seemed to help .... not sure though since I could have made better decisions than I did back then.  

 

Once I moved past that difficult time and life was looking up, I found I was sleeping away my free time when I had been looking forward to a new chapter and had lots of things planned. My new family MD (I moved cities) switched me from Celexa to Cymbalta when I told her I was increasingly fatigued and unmotivated (and I used to be energetic and productive and did things for fun others considered "work"). She said my body must have become accustomed to the Celexa and it was not effective anymore, and Cymbalta was "a new and very good" drug. I read about Cymbalta at the time and the issues it caused many people - particularly the difficulty getting off it - and I was worried. 

 

A year before I was prescribed Cymbalta I was diagnosed with hypothyroidism (something I suspected for several years but my docs were not taking seriously) and was prescribed levothyroxine. Ultrasounds indicated it was Hashimoto's Disease. No doubt you are all aware of the BS people with thyroid problems go through to get taken seriously - that has sites and forums of its own! I stopped taking levothyroxine a year ago (without my doc’s or endo’s knowledge) and have not felt better or worse. A blood test several months back showed my TSH, T4, T3 in “normal” range (T3 on the low end, but it always tested that way – I want to try desiccated pig thyroid at some point since that delivers T3). 

 

Since I was on levothyroxine and this other "new and very good"  :huh: drug, but feeling worse and worse and developing new symptoms that were affecting my life, I asked my doc to refer me to specialists for a thorough workup. Finally she did ..... she referred me to a psychiatrist. Umm, thanks. I told her that was fine, I will go, but I am still waiting for referrals to the other specialist as well. I got the referrals but it was a waste of time to see the other specialists. Nothing and no one stopped my continued decline. My health was affecting my job - and the assholes at work started to affect my health. I am now on Long Term Disability (LTD). To be fair, the psychiatrist was as helpful as he could be and he finally told me I needed to get away from the workplace or I will not recover. I also went to a naturopath who helped me a lot, but I could not afford to continue seeing him.

 

Back to Cymbalta. I expressed concerns about Cymbalta to my psychiatrist many times and that I suspected it was not doing me any good. He told me each time I should remain on it. Finally I told him I thought Cymbalta was causing the cognitive problems that were keeping me from making any progress, and since I was off work anyway, this was a good time to get off it to see if it was doing me good or harm.

 

So here I am, experiencing withdrawal but feeling hopeful.  I have one year of LTD left and I intend to return to my job!


#2 thismoment

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Posted 14 August 2014 - 03:41 PM

Hi FCB

 

". . . maybe Cymbalta is a conspiracy to keep us from being too clever!"

 

Haha! It doesn't seem to be working on you, because you are lucid with totally cohesive cognitive flow! 

 

You must have been one of the first Canadians on Cymbalta as it was approved in 2007 in Canada. I see you were on the SSRI Celexa before that-- for a total of 11 years on serotonin drugs.

 

A few questions if you don't mind.

-What symptoms are you experiencing now at 3 weeks out following a 4-week taper? 

-Did you get brain zaps? 

-What kind of transition did you make between Celexa and Cymbalta?

-Are you taking any other meds?

-Do you have anxiety?

-Do you have any symptoms that were carried over from the Celexa?

 

Hang in there kiddo! I see you have a year off, and I know you know that you will need a good deal of that time to get feeling level.

 

Take care.


#3 FiveNotions

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Posted 14 August 2014 - 03:52 PM

hey FCB, I also see you've mentioned the "dreaded" thyroid issues ... CymSik is dealing with that right now ... I'd never heard of "Hashimoto's" until she mentioned it ... when she said she had it, my first image was that it was the name of a Japanese restaurant where she'd had sushi :P

 

I'm sure she'll be signing on soon and you'll connect on that issue ... the thyroid/Hashimoto's ... not the sushi ... :D

 

Sounds like you've had some jackass med advice ... and that you're one step ahead of them and moving out of the whole "you gotta' be on this for life" BS ... BRAVO!


#4 brzghoff

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Posted 14 August 2014 - 05:27 PM

hi FCB, welcome! thanks for de-cloaking and introducing yourself. i cant imagine having to struggle with a thyroid disorder along with getting off of the C, although as you may have discovered there are others here who have a similar diagnosis. 

 

you said "I expressed concerns about Cymbalta to my psychiatrist many times and that I suspected it was not doing me any good. He told me each time I should remain on it. " i have shared with this forum before, but that is a classic sign of MEDS, Medical Establishment Denial Syndrome. if drugs don't help a p-doc doesn't have a job.


#5 thismoment

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Posted 14 August 2014 - 05:48 PM

FinallyComingBack

 

One other note-- with your 6 years on Cymbalta from Canada, you ARE the long-term study on this drug from that country-- you could be the longest-term Canadian patient on duloxetine; who knows?! If there are any studies going on in Canada regarding long-term effects, somebody should be calling you.


#6 FinallyComingBack

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Posted 15 August 2014 - 02:12 PM

Hi FCB

 

". . . maybe Cymbalta is a conspiracy to keep us from being too clever!"

 

Haha! It doesn't seem to be working on you, because you are lucid with totally cohesive cognitive flow! 

 

Thanks for the compliment, TM, but it took me hours to compose it!  In fact it will take me a bit to reply to your questions in the same way!

 

 

I've been on and am on other meds, and been diagnosed with or suspected other chronic illnesses ..... not sure how much of all that it is relevant to share with respect to Cymbalta withdrawal?  


#7 Avenger

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Posted 15 August 2014 - 03:09 PM

I'm happy to hear a positive story it's scary I stopped two days ago and feel extremely anxious about how I will feel

#8 thismoment

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Posted 15 August 2014 - 04:25 PM

Avenger

 

Welcome!

 

How long on the drug; what dosage; did you quit cold turkey; what other meds are you on; do you have something to control anxiety?


#9 Avenger

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Posted 15 August 2014 - 05:01 PM

Hey thanks
I was on zoloft for 17yrs and switched to cymbalta for 4 months at 60 the dr tapered two weeks to 40 then two weeks to thirty then twenty for one week and stop and switch to 50 of zoloft it's only been two days on zoloft but I don't feel good and it's kind of worse reading how bad peoples experiences are I was hoping its smooth and people are still having problems 13 weeks later does anyone know if xanex or alcohol would help
Thanks

#10 fishinghat

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Posted 15 August 2014 - 05:04 PM

It is quite common to use Xanax, valium or lorazepam to help with the withdrawal anxiety. Just remember they are addictive too so keep your dosage short and infrequent as you can.





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