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#1 Jennifer1234

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Posted 05 September 2016 - 08:51 AM

Hi everyone,

 

I've never posted in a forum before.  I started looking through this site and thought it was just one of the supportive forums I've ever looked at.  So much positivity. 

 

A little background.  I've never been on any meds in my life.  I'm a 40 year old mom and suffering from severe anxiety since March.  Before March I was a fully functioning, working mom on the go.  Maybe a little too much on the go.  I started to suffer from a horrible pain in leg.  Long story, a chiropractor, a neurosurgeon consult and 2 physical therpists later I never really got a real answer or resolution to  my pain.  I was scared and it got the best of me.  This is where the severe anxiety develops.  Well I've learned a lot and I've been a bit anxious my whole life but It got to the point where I suffered constant panic attacks, all day and all night, no sleep, just panic attacks.  I had a breakdown. My husband took my to my primary dr and they prescribed celexa and klonpin.  Finally with the klonopin I slept.  I then layed in bed for almost 2 months.  I went through depersonalization, detachment and constant anxiety and of course depression.  I am still dealing with these issues but I am making progress in getting my life back, very slowly.  I am working with an amazing Psychiatrist who specializes in pain and anxiety.  I am learning that a lot of my pain has been tied to severe muscle tension.  Constantly tightening and tensing my leg against the pain and making it worse.  I now do Cognitive Behavioral Therapy, muscle relaxation and other meditation techniques.  But it's been a slow go. 

 

So back to the meds part.  I took Celexa for 5 weeks and then saw a psychiatrist.  She put me on Cymbalta.  I was so out of it and scared and desperate I would try anything.  So I took less Celexa and 30 mg of Cymbalta for 2 weeks.  Then she upped my dose to Cymbalta to 60 mg and I have been on that for 9 weeks.  Last week Friday, after a lot of soul searching, I decided Cymbalta was not for me.  It really hasn't done anything for me.  I'm still anxious, depressed etc.  So what is the point.  I will continue to work w my Psychologist. 

 

I called the psychiatrists office On Friday and my psychiatrist is out of town.  My next appt with her isn't till the end of Sept.  I am not staying on this drug for another month just to wait to see her is what I told the receptionist.  She consulted with another psychiatrist and called me back.  She said I could start taking 30 mg instead of 60 and then call the office back on Tuesday and let them know how I feel.  So I took a 30 on Saturday, Sunday and today, Monday.  I have this feeling that they are going to tell me to just discontinue the med tomorrow when I call if I'm not experiencing any symptoms.  I'm going to insist to actually speak with a dr though. 

 

I'm not sure what to do from here.  If I do okay on the 30's perhaps I should do one of those bead counting tapers from there??  I don't know too much about the bead counting.  I just read that it help make the withdrawals not as severe. Is it safe to do this? Given my history of short term use I don't know if that works to my advantage or not.  Because of my severe anxiety I am extremely scared.  My heart beats out of my chest waiting to see if I will get a symptom.  I usually only take a tiny bit of klonopin to sleep now, I cut it to .12 of a milligram.  When this all started I was taking 1.5 mgs per day.  But the past few days I've had to take a tiny bit in the morning due to fear. 

 

Any advice would be so so much appreciated.  Thank you so much for taking the time to read my post.

 

Jen

 


#2 Carleeta

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Posted 05 September 2016 - 09:32 AM

Jen, Welcome!.  It's good to get off cymbalta as soon as you can.  I don't mean to just stop it, although I do suggest to count bead your way off this horrible drug.  You haven't been on this to long, therefore hopefully you will have a nice smooth taper and with less difficulty as other who have been on it for a longer time.  I won't say you won't experience some uncomfortable side effects, although I feel it you do, they will be something you can handle.  

Yes, it normal to experience participatory anxiety.  My suggestion to you is to please continue to use your muscle relaxation techniques (yes these techniques  do not work over night unfortunately.  What I usually say to other is this, ' you didn't receive panic disorder over night, therfore it will take time to get back ".) and to consider the beadcounting method.  Try and convince your doctor to keep you on this medicine until you have reached the time where you will no longer need to bead count your way down.  Don't think you dr will quite understand this bead counting method, although he/she does not have to know you are working yourself off the medication in this manner.

 

Fishinghat will jump on as soon as he see this and explain the bead counting method to you.

 

 

Best of luck to you.... 


#3 fishinghat

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Posted 05 September 2016 - 10:09 AM

Hi Jennifer

 

You are off to a good start. I agree with Carleeta. But before we start the Cymbalta discussion lets talk about Klonopin. It is to be taken for more than 4 weeks due to its addictiveness (direct from the manufactures drug insert). Fear and anxiety are two of the most common withdrawal effects. I am afraid that is what you are experiencing right now. How long did you take the Klonopin at 1.5 mg/day? How long ago did you start tapering off the Klonopin?

 

I will check back a little later. It sounds like you will get through this Ok. Hang in there.


#4 Jennifer1234

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Posted 05 September 2016 - 10:10 AM

Carleeta,

 

Thank you so much for your encouraging words.  It means so much you took the time to do so.

 

Also, I meant to say I am working with an amazing Psychologist, not psychiatrist.  The psychiatrist just likes to write scripts I think:(  Not very compassionate.


#5 Jennifer1234

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Posted 05 September 2016 - 10:25 AM

Fishinghat,

 

I've been taking the Klonopin for about 3 months.  I took the 1.5 mg for about a week.  Then started tapering little by little.  I took about .25 mgs for about a month at night and then went to .13'ish the past few weeks.  Sometimes I go 3 nights without it.  Then I take it if I can't sleep.  My fear and anxiety was the worst in March, April, May.  Since working with the Psychologist I've gotten so much better at just accepting the anxiety and walking with it. I've been conquering irrational fears that developed and making progress.  It's the only way to move through it as I've learned in a few books he recommended as well.  Fighting the anxiety only fuels it.  So I float with it.

 

To be honest, I think I could have continued to taper the Klonopin until I scared myself with the Cymbalta withdrawal research I did.  It scared me so much it sent my anxiety through the roof.  I do suppose the klonopin could be adding issues as well.  Perhaps I shouldn't be trying to wean off both at the same time?

 

Thank you so much for your help and time!  Hope to hear back from you soon. 

 

Jen


#6 Raven72

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Posted 05 September 2016 - 10:51 AM

Jen,

Welcome, I see you have already gotten some good advice. I have been off Cymbalta since April 1st. It has not been a easy road to recovery. I was on it for over a year. You are lucky to have realized it wasn't right for you so early. Hopefully you will have a easier time of it. We are all here for you if you need us.

#7 Runni

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Posted 05 September 2016 - 12:05 PM

Hi,

I am new to this site and really need some advice. I became ill almost 8 years ago. I have weaned off a load of meds but am still on seroquel 50 for PSTD and cymbalta 120 for depression. I am successfully reducing my seroquel, though not without side effects and I really want to wean off cymbalta and am talking with my doctor but I am terrified of the side effects. But I think I am more afraid of keeping these drugs in my system as I am working wiht a psychologist too and CBT and I need to have control over my own life. I do not like how fuzzy , dizzy, weight gain, and the problems wiht spacial awareness issues. Can anyone give me any insight from their own experience. I do not have any peers I can talk wiht and my sisters have distanced themselves, they are a but impatient with the illness. Mental ill-health is still very much stigmatised where I live. So not to sound pathetic, I am alone but determined. I have never been ill before this, never taken meds and have had a reaction to a sever trauma. I want to get back exercising and driving. My logic says I can self manage in time and I want to progress this aim further.

Thanks for reading. If you can help it would be appreciated.


#8 fishinghat

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Posted 05 September 2016 - 12:36 PM

Jennifer, you have done so many things right. You and your psychologist make a good team. The Klonopin should not cause you any issues the way you handled it. As for the Cymbalta, well I think your idea is right. Stay on the 30 mg for a week more to be sure you don't develop any issues and then bead count. Open one of your capsules and count the beads inside and plan on reducing about 1 to 2% per day. Keep us posted.


#9 fishinghat

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Posted 05 September 2016 - 12:42 PM

Runni, welcome, good attitude but sorry about the family not understanding. It happens a lot. I think given your history and how your body had 'leaned' on psych meds for so long that you need to come off slowly. Lets make this easy on you. First of all come off the Seroquel. Once you are done with it take a two week break to regain some of your stability. In the meantime open one of your Cymbalta capsules and count the little beads inside. Let me know how many. I think with your background maybe reducing 1% every other day will be the best for a start until we see how you are doing. Let me know how many beads we have to deal with and we will take this one step at a time. We will get this done.


#10 Runni

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Posted 05 September 2016 - 01:09 PM

Hi Fishinghat,

Thanks for the reply. You have confirmed what I think myself too. Off the seroquel first and then cymbalta. I really liked the way you used the words "lean on" the meds. It helps me realize I can stand alone again without teh support. Your words about taking things slowly with cymbalta are good and I appreciate the help. When I get off the seroquel I will then look at the cymbalta. I am curios to look at the number of little beads though. Thanks for encouraging an easy approach it makes it feel achievable. This was my first post so I will keep in touch for support adn maybe to be of help too.

 

Thanks again and good to know the family thing is common too.


#11 TryinginFL

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Posted 05 September 2016 - 03:09 PM

Welcome Jen and Runni!

 

So happy that you have found us..

 

Can't add much to what our dear members have already said!

 

I wish you the best and remember we are here for you!

 

Liz


#12 Jennifer1234

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Posted 05 September 2016 - 05:01 PM

Thank you everyone for all of your encouraging words.  I appreciate it very much.

 

 

Fishinghat,

 

Thank you very much for your time and advice.  I will keep you posted as to how things go. 

 

Jen


#13 brzghoff

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Posted 05 September 2016 - 05:21 PM

Jennifer-

 

welcome! i'm not on the forum much these days - but i cruise by when i get a chance. you said: 

 

"Since working with the Psychologist I've gotten so much better at just accepting the anxiety and walking with it. I've been conquering irrational fears that developed and making progress.  It's the only way to move through it as I've learned in a few books he recommended as well.  Fighting the anxiety only fuels it.  So I float with it."

 

Amen Sister!

 

I suffered through severe anxiety when coming off cymbalta and allowed it to get out of control to where it haunted me long after i was done with the withdrawal. i don't know what books your therapist recommended to you, but it sure sounds like claire weeks - although the float concept is getting pretty widespread these days. however, don't fear the fear i feared ;-) i was on cymbalta for ten years, anti-d's in general for 18, before i took my last "c" in may of 2014. i was basically a cold turkey - that's what created the instant anxiety for me. if i'd only known what you know now - learning to float and bead counting - i may not have endured what i did.

 

when it comes to managing the meds and weaning off, fishinghat knows his stuff. everyone here has nuggets of wisdom to offer. given what you've shared with us you will do very well. 


#14 brzghoff

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Posted 05 September 2016 - 05:29 PM

Runni,

 

glad you are here. fishinghat has given you sage advice. you can't go wrong with the slow and steady taper and the CBT. add to that the great people on this forum and you've got a plan and a team to hep you carry it out!

 

all the best to you


#15 Runni

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Posted 06 September 2016 - 05:34 AM

Thanks so much for the replies and the welcome. Also, for making me realise that this forum is now part of my team to help me move on.

 

It is good to know you all are here and I value each of your responses.

 

Runni


#16 Jennifer1234

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Posted 06 September 2016 - 10:09 AM

Thanks brzghoff for the encouraging words.  Severe anxiety is difficult.  I have days I float better than others.  I have read Claire Weekes and got a lot of helpful info there but the book that is truly helping me is At Last A Life by Paul David.  It's up to date and hit the nail on the head on everything I am going through.  He suffered for 10 years with severe anxiety and has gotten his life back.

 

Fishinghat, you suggested a 1 to 2% taper.  If I try for 2%, and am on 30 mgs with about 180 beads in the capsule, should I do 3 beads out the first day, then take 6 beads out, then 9, 12, 15 ,18, 21 each day?  I think that puts me at about a 3 week taper. Not sure if I am doing the math right? Today is day 4 from 60 to 30. I am going to continue taking the 30's for a few more days as you suggested to see if I develop any symptoms.  Of course my psychiatrist is still out of town and the receptionist is going to consult with yet another psychiatrist to see if they will just continue my 30mg script for now.  i'm hoping they will so I can start a taper process.  otherwise, I have a bunch of 60's I would have to work with and that is only going to complicate matters.  THanks for all your help and advice so far. 

 

Jen


#17 fishinghat

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Posted 06 September 2016 - 10:32 AM

At 180 beads/capsule 1% would be 2 beads a day (a 90 day withdrawal) and at 2% a day it would be around 4 beads a day (a 45 day withdrawal, that might be a little fast so around 2 to 3 beads a day like you said). And your calculation is correct  3,6,9,...beads removed per day.


#18 Runni

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Posted 06 September 2016 - 10:48 AM

Fishinghat,

Thank you so much for your advice but more than that for responding and that this forum is available for people.

Let you know how it goes,

Runni





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