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#1 blanam

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Posted 26 July 2017 - 10:57 PM

In my last post about weight gain during withdrawal I mentioned that I had been through 9 weeks of hell since tapering down to 5 mg, but that I was feeling better.  Well, I take it all back.  I was feeling better and these past few days have been a nightmare again.  I thought I was on an upward trajectory, with dips of course, but I was feeling positive.  Then I went away for a long weekend with my daughter, got car sick, and freaked out after that.  My anxiety went through the roof, as did my depression.  And today, on the drive back home, I cried the whole way.  I've been crying all day.  I am so depressed.  I can't stand this anymore.

 

I'm thinking maybe I should go back up to 10 or 20mg.  I simply can't stand feeling the way I do.  This is not a quality life I'm living now.  My psychiatrist is not helpful, wanted to put me on Trintelix.  So I should suffer the side effects of getting on another antidepressant while weaning from Cymbalta only to wean off the Tintellix?  I don't know if the depression and anxiety is withdrawal or if this is really who I am or will be.  I took Cymbalta for anxiety, and it helped tremendously.  I was at a place in my life where I felt good and wanted to be off meds.  I now feel worse than I did before taking the meds.  Is this worth it? 

 

How is it that I was doing better with the withdrawal, only to be hit with this horrible mood swing?  Is this what I can expect for the next couple of years?  I'll feel like I'm getting better, and then boom, the depths of despair again?

 

You can probably tell by this note how distressed I am.  I am extremely distressed and I don't know what to do.  I'm down to 12 beads, almost there, but then I've read that it can take up to 2 years before the brain reaches homeostasis.  I can't go through 2 more years of this.  Do I keep going, or do I go back up to 10-20 mgs for now and try again at some other point in time, and go much slower.  I feel so trapped.

 

Please help.

 

Thank you.


#2 gail

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Posted 27 July 2017 - 06:26 AM

Hello to you,

Smart thing to go up to 10 or 20mg. Stabilize for the time it takes then go slower with the bead count.

Is it the depression coming back? After 6 or 7 months, I would say yes. But you are not there yet.

Fishinghat, do you think that cross tapering with trintallix!!!!spelling??? Would be ok?

#3 fishinghat

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Posted 27 July 2017 - 08:22 AM

I think that she over did it on her trip, the car sickness was a trigger that brought back feelings of the withdrawal, anxiety over feeling bad and she spiraled down from there. Not your fault blanam, you have a life to lead  but I am afraid this is not the last relapse you will probably ever have. It is not uncommon but they usually don't last too long.  I don't know if it is necessary to go back up to 20 mg. I think I would start with a single dose of 5 mg and see how that does. You can always add more if needed.

 

I think the Tintellix would probably be a mistake as there are too many variables. Will it work?, will you have side effects? AND by the time you wait 4 to 6 weeks for it to kick in you will probably be over this spell as well.

 

Just my thoughts.


#4 nancydear

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Posted 27 July 2017 - 09:27 AM

I know how terrible you can feel I hope and pray for you and all us. just think of how far you have
come!!!! And daughter's can stress you I know I have one!!

You can do this,take care!

#5 blanam

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Posted 27 July 2017 - 11:37 AM

Thank you all so much for your replies.  It just helps to know that someone out there is hearing me and knows what I'm going through.  I feel slightly better today, but still tearful.

 

Fishinghat, when you say go back up to 5 mg and see if it helps, do you mean one dose, or go back up to 5 mg and stay there until I feel better.  Then, presuming I feel better, do I have to start the bead count down from 5 mg?  The hell started for me when I went down from 10 to 5 then to 2.5mg.  I'm confused (of course that's nothing new since my withdrawal).  I can't remember how many beads 5 mg is, but I'm now down to 12 beads.  Any clarification would be helpful.  And I agree with you, I think getting car sick triggered this relapse.  I was at Yosemite.  Super winding roads and lots of people.  Very overstimulating for me, and I've always been one to get easily overstimulated.  Then the guilt of "ruining" my daughter's trip....

 

Thanks again for the support!


#6 fishinghat

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Posted 27 July 2017 - 12:35 PM

blanam, I would say if you are at 12 beads go up to 24 beads (one dose only)  and see if you stabilize. If you feel better then continue to drop at 1 bead a day after that. If you don't feel better by the next day then go up another 12 beads (to 36 beads a dose). Keep repeatinmg that 12 bead increase until you get some relief. Please keep me posted. PLEASE! I am trying to minimize the amount you go up in order to minimize repeating any withdrawal.

 

If you need clarification let me know. Some times I make things as clear as mud.  lol


#7 blanam

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Posted 27 July 2017 - 10:25 PM

Thanks for the clarification FH!  I feel better today than I did yesterday.  Tearful this morning, but as the day progressed I began to feel better.  Spent a lot of time outside doing yard work and got a pedicure.  I don't feel normal, by any means, but at least I'm not acutely depressed as I was yesterday.  I imagine I'll feel acutely depressed again, but what I'm realizing is that I really can't do anything that is the least bit stressful to me, which these days, is almost everything.  No travel, only socializing with close friends, keeping a low-key schedule.  I can't really handle much.

 

Thank you again for your help.  


#8 fishinghat

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Posted 28 July 2017 - 07:58 AM

"but what I'm realizing is that I really can't do anything that is the least bit stressful to me, which these days, is almost everything. No travel, only socializing with close friends, keeping a low-key schedule. I can't really handle much."

 

Exactly. When I was going through this I had no phone calls, no visitors, no social activity at all. Just quiet, work around the house and rest.


#9 blanam

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Posted 29 July 2017 - 10:11 PM

It's truly a nightmare isn't it.  So many ups and downs.  The frightening part is not knowing if this is going to be forever or if peace will come some day.

 

This is the first day since Wed. that I didn't wake up crying.  Yay!  I have to remember that when I'm at the depths of despair, that it will pass.  

 

I decided not to go back up a few beads after my first desperate post because I started to feel better the following day and thereafter.  I'm hoping that if I just lay low, I might avoid another relapse.  I really want to give myself a chance to be off these meds and see how I do in time.  I suppose I can always try something else if my anxiety ever gets the better of me again.

 

This site has made a big difference in my ability to cope with the discontinuation symptoms.  Reading other people's stories and getting feedback has been so supportive.

 

Thank you.


#10 fishinghat

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Posted 30 July 2017 - 07:38 AM

Those ups and downs will continue but with time they will be less severe and further apart. What always amazed me was when I went through an 'up period' I felt like I was over the withdrawal and it would never return but when I would go through a 'down period' I would feel like it would last forever and I would never recover. Soooo hard to keep your perspective.

'


#11 memiller77

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Posted 03 August 2017 - 02:15 AM

I'm new on here and reading your posts have brought me comfort that I'm not alone. I've been on 90mg of Cymbalta for at least five years. I think it stopped being effective about three years ago. I think I had a nervous breakdown and had to retire from my teaching position earlier than I planned. I've lost all motivation to do anything. I'm terribly depressed and fatigued.

I have a new doctor and told him I want off of Cymbalta because it's not working. He lowered my dose to 60mg and added 159mg of Wellbutrin for two weeks. The day down to 30 mg of Cymbalta with the Wellbutrin. My problem is I feel so hopeless that I'll never feel better. My depression has reached suicidal thoughts. Only the thought of what that would do to my family keeps me from it. I'm lucky that I'm retired so I can at least hide at home in my misery. My poor husband does literally everything.

My question is should I just go cold turkey and drop the final30 mg and hope the Wellbutrin takes effect. Maybe it will get it over with more quickly. I just don't know how much longer my body and mind can take this literal hell. Any advice would be appreciated. Especially hope that it will one day get better. I've suffered for three years.

#12 gail

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    Needed understanding and support, and a place where I was not alone. To read others stories and realizing that I was not the only one going through all that crap.
    In hope that one day, I can return the favors in some kind of way.

Posted 03 August 2017 - 07:53 AM

Hello Memiller,

Welcome to the forum. We need to know if the way you are feeling now is the same as before Wellbutrin. Is it the same as when you dropped to 60?

Fishinghat will drop in soon, I wish that I could advise you, but I can't. He will.

Look for the good moments hidden between the bad ones.

There is hope, we have all felt like you. It may take a bit of time. When we speak of cymbalta , we are not talking about candies here. Hold on!

#13 fishinghat

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Posted 03 August 2017 - 08:02 AM

Welcome memiller

 

Well there is a couple problems here. First of all it takes Wellbutrin 6 to 8 weeks to fully kick in so going cold turkey is not an option right now. The good thing is that Wellbutrin is often  a good choice for depression. I am mostly concerned by your suicidal thoughts. Is your dr aware of this?

 

Also, please realize that the feeling that this will go on forever is a common withdrawal effect. Even when things start to get better there will be feelings like that for a while followed by feelings (on the good days) that you will never feel bad again. Certainly a strange effect that the withdrawal has.

 

Just so you are aware the standard dosage for Wellbutrin is 300 mg a day. So you can expect at some point the dr will ask you to drop the remaining 30 mg and go to the full 300 mg on the Wellbutrin. During this time it will be a tough ride but typically you will start seeing some improvement around the 3rd or 4th week of the change over (This process is called cross-tapering). While you ride this out just try to be kind to yourself. Staying a little active can help keep your mind off of things too. Read a book, watch TV, etc to keep your mind active and engaged.

 

Be sure and tell your dr about suicidal thoughts. Call and leave a message today. Please keep us informed and feel free to come back and just vent or ask more questions. We are here for you. You are not alone. We have been where you are at.


#14 blanam

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Posted 04 August 2017 - 10:28 AM

I agree with FH.  Don't go cold turkey, especially since it's going to take 4-6 weeks for the Wellbutrin to kick in.  I second being kind to yourself.  Lay low if you need to, distract yourself, pamper yourself, get exercise and eat a clean diet.  A great book is Kelly Brogan's "A Mind Of Your Own".  

 

I've been tapering off Cymbalta for 2 years, bead counting, because I'm extremely sensitive to this drug.  I didn't start feeling horrible symptoms until I reached 5mg in May.  I have been struggling ever since and I've got 11 beads to go now.  I've experienced many downs, including suidical ideation.  When I'm in a downward/depressed spiral I call on people who understand to remind me that it will pass.  There's no perspective when you're depressed.  You are lucky that you're not working so you can focus on whatever you need to get through this.  I took me a long time to believe that I would get better.  I now believe I will eventually be OK.  It just takes time.

 

Also, I want to acknowledge all of us who are discontinuing Cymbalta, that we are all warriors.  It takes incredible courage to do this, and I truly believe that going through discontinuation is a transformative experience.

 

My thoughts go out to you.


#15 memiller77

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Posted 04 August 2017 - 02:27 PM

Thank you so much everyone. It's now been almost four weeks since I've started the lowering of Cymbalta and switching to Welbutrin. I'm feeling a little breakthrough. Certainly not as the energetic person I once was. I'm hoping that I can regain my interest in life.

Reading other's experiences has given me hope.

#16 fishinghat

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Posted 04 August 2017 - 02:33 PM

Good, please keep us posted as that is how we learn.

 

Don't overdo things though. Time and patience.


#17 fishinghat

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Posted 05 August 2017 - 01:26 PM

Memiller
 
See this new post I just made. You will probably find it interesting.

https://www.cymbalta...-the-same-time/

#18 Raven72

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Posted 11 August 2017 - 10:54 AM

Welcome friend,

I am in full agreement of not going coks turkey. My main reason is that I have done it and do not recommend it. Not only did I do it with what I lovingly call Sinbalta; I did it with Paxil, Statterra amd Premarin. The last 2 were not my choice as I financially couldn't continue them. These were not fun times for me but I made it through, with the help of the fine people on this site. I have recently returned after a 2-3 month hiatus as a completely prescription medication free woman. If I can help it I will never go back to them again. I take OTC need to help. The biggest help is Fish Oil and I take 3 a day. Freedom is out there it is just a long journey, that you don't have to make alone. As of April 1, 2017 I have been clean from Sinbalta. I clean from all prescription medication for 2 months now. Still have rough days but nothing compared to the past. Hang I there and we are here for you.

Raven

#19 TryinginFL

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Posted 11 August 2017 - 12:13 PM

Still no computer:-(
Great post Raven!!



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