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Feeling Desperate And Confused


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#1 Polly38

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Posted 15 October 2019 - 09:09 AM

Hi.

Sorry me again.

I am still having bad pains in my shoulders, under my arms and in between my shoulder blades. I am also random sweats and feel generally unwell. I was beginning to think it could be the Lansoprazole I am taking as it got worse after I took it this morning.

I spoke to my doctor today and she is adamant it isn't the Lansoprazole. She asked me where I am in the weaning process. I told her 29 beads and she said she would be happy for me to go down 2 beads every day!! I don't think so🙄😡. I didn't say that of course.

She now wants me to take Amitriptyline for the pain as she thinks I've got costochondritis (which I've had before). Unbelievable that they keep throwing tablets out!!

Do you think what I'm experiencing is withdrawal and where should I go from here? At my wits end😢. Thanks

#2 Lovey

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    Trying to get off of this poisonous drug. Need support and help!Down from 120mg to 7mg.
    Am currently taking 18 beads 2x per day. A split dose method. 4 am and 4 pm. Pausing to stabilize.

Posted 15 October 2019 - 09:17 AM

Hi Polly I posted a reply on the thread about weaning. I'm thinking of you!! It will get better!!

#3 Polly38

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Posted 15 October 2019 - 09:21 AM

Hi Hrk630.

Thanks for your reply. Does this all sound like withdrawals to you?

#4 fishinghat

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Posted 15 October 2019 - 09:55 AM

Amitriptyline? Lets throw another antidepressant at the situation. NOT Low likelihood that it would help with the pain but it might help the withdrawal symptoms. It also has a withdrawal to it.

Still think it can be withdrawal but I am glad you saw your dr about it.

#5 Polly38

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Posted 15 October 2019 - 10:00 AM

Thanks FH. I only spoke to her on the phone. I told her I don't want to throw another tablet into the mix at the moment. Unbelievable!

I will lay off the Lansoprazole for a couple of days to see if that's making things worse- although she told me to carry on taking them. Where shall I go from here? Should I stay on the 15/14 split tomorrow? Thanks very much.

#6 fishinghat

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Posted 15 October 2019 - 10:19 AM

You will find this interesting.

Posted by Hibiscus on 23 September 2019 - 06:51 AM in ARE YOU NEW HERE? Words from the wise about Cymbalta
And after the numbness got so bad and I had terrible neck and shoulder pain and headache again which affected my sense of smelling I additionally had the worst panic attacks.

Posted by LOKI on 06 August 2019 - 06:47 PM in ARE YOU NEW HERE? Words from the wise about Cymbalta
As of week three, I am feeling stronger, more awake somehow, no headache, increased bowel movements, slight neck and shoulder pain but very manageable.

Posted by atruestar on 03 March 2019 - 04:00 AM in What are you feeling?
Awful aches in my shoulder blades that literally follow me around all day.

Posted by KathyInFL on 08 January 2019 - 11:49 AM in Weaning Off Cymbalta
I'm off C totally, but have knee/shoulder pain and my eyes are dry and very sensitive to light,

Posted by Cjmansf on 02 April 2018 - 03:58 PM in What are you feeling?
Discomfort that radiated through to my shoulder blades.

Posted by sk8rmama24 on 06 March 2018 - 11:28 PM in Weaning Off Cymbalta
muscle stiffness in my back, along the spine and across shoulder blades. neck seems stiff too.

Posted by siggyd17 on 16 November 2017 - 04:34 PM in What are you feeling?
Today, it's more pain in my shoulder, neck, and back

Posted by Wildefx on 13 August 2017 - 03:30 PM in What are you feeling?
Well my shoulder has recently started hurting again

Posted by Newbegining on 20 June 2017 - 06:37 AM in Weaning Off Cymbalta
Feel very acidic in my stomach which goes through to my shoulder blades,

Posted by DrugOrPOISON on 02 January 2017 - 12:08 PM in ARE YOU NEW HERE? Words from the wise about Cymbalta
I also have pain in my knees, hips and shoulders and recently it has been spreading to my back and shoulder blades and the collar bone.

Posted by sharon123 on 07 December 2016 - 12:35 AM in ARE YOU NEW HERE? Words from the wise about Cymbalta
it's about day 13 or 14 of stopping cold turkey - but since day 9 he could barely lift his arms due to the shoulder, arm and wrist pain.

Posted by genej2 on 09 October 2016 - 11:52 AM in ARE YOU NEW HERE? Words from the wise about Cymbalta
Pain in neck,left shoulder and arm

Posted by BobbieBoop in What are you feeling?
When I push on my neck it really radiates the pain to my right shoulder, upper arm and forearm.
Arm and shoulder pain ( I think in my joints and it radiates to my forearms.
I still have aches in my back,neck,shoulder, and jaw
The pain in my neck back and shoulder is tremendous.
Note - These posts were made from Aug 20 to October 1st.

Posted by whathaveIdone on 15 September 2016 - 05:12 PM in Cymbalta Lawsuit Information & News
neck and shoulder pain can be unbearable

Posted by Dman2900 on 06 January 2016 - 08:33 AM in ARE YOU NEW HERE? Words from the wise about Cymbalta
Pain in left shoulder.
Note - This is after one day of withdrawal.

Posted by Carleeta on 21 October 2015 - 09:00 PM in ARE YOU NEW HERE? Words from the wise about Cymbalta
Did leave the house with the pain and anxiety. Did let my niece drive my car due to the severity of neck, back, and shoulder pain.

Posted by SeriouslyWTH on 01 October 2015 - 03:15 PM in What are you feeling?
The continuous knee pain has me really concerned. And ankle pain now too along with less severe/not continuous wrist/elbow/shoulder/back pain

OK. I give up. There is 4 more pages of these type of posts. lol
 


#7 Polly38

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Posted 15 October 2019 - 10:45 AM

Thanks so much FH, that's reassuring (I think). Should I continue with the 15/14 split tomorrow or reduce again?

#8 fishinghat

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Posted 15 October 2019 - 02:04 PM

It just depends if you feel like you can handle another drop or not.

#9 lady2882Nancy

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Posted 15 October 2019 - 02:12 PM

I remember those days and my doctor said it was just arthritis. Well I still have arthritis and it is not nearly as painful as what I dealt with when getting off Cymbalta Except for my knees,  :) they are worse than ever and I walk with a cane now.

Cymbalta almost broke me but I survived.


#10 Polly38

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Posted 15 October 2019 - 02:25 PM

Sorry to hear you suffered too Nancy, but glad you came out the other side! How long did your withdrawals last for?

Thanks FH. Really don't know what to do about the dose. May try 14 in the morning and 14 in the evening and see how it goes.Is it best to stick to twice a day now? Thank you.

#11 fishinghat

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Posted 15 October 2019 - 04:05 PM

As long as you are still having pain I would stick with twice a day.

#12 Polly38

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Posted 15 October 2019 - 04:07 PM

Thanks. The pain has subsided a lot this evening. Will stick with twice a day and drop one bead. Will keep you posted.

Thanks for your reply

#13 fishinghat

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Posted 15 October 2019 - 04:21 PM

Good luck.

#14 invalidusername

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Posted 15 October 2019 - 05:13 PM

Sorry for late show today - not been a good day this end.

 

Looks like you have everything in place here and I would agree with everything said, so not much to add from my part other than I hope that it continues to abate and FOR SURE do not be adding another pill to the mix. Good grief...


#15 Lovey

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    Trying to get off of this poisonous drug. Need support and help!Down from 120mg to 7mg.
    Am currently taking 18 beads 2x per day. A split dose method. 4 am and 4 pm. Pausing to stabilize.

Posted 15 October 2019 - 09:23 PM

I too have the shoulder and neck pain. For years now. I don't know how long I have been on Cymbalta. will ask my Dr. next visit. Curious of a correlation. Polly hlad some other folks were able to add to the discussion. I'm at 20 beads a.m. 20 beads p.m. Sticking it out till at least January. I am being very brave and getting acupuncture for the very first time tomorrow to try to get some relief from the neck and shoulder pain. It is relentless. i have a lot of pain in my elbows too. I will let everyone know how it goes.

#16 Polly38

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Posted 16 October 2019 - 01:49 AM

Hi HrK

Acupuncture is great! It should sort you out. I had it for quite a long time but am having Shiatsu massage now, which is based on a similar principle.

Have you had the neck and shoulder pain since you started taking Cymbalta or since you have been weaning off? I was only on it for 4 weeks before I started weaning off and am shocked it is such a nightmare to get off! I'm at 14 beads twice a day.

Good luck with the acupuncture!

#17 Polly38

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Posted 16 October 2019 - 07:01 AM

Hi.

A quick update. I dropped a bead this morning- so 14 in the morning and 14 at night. I also haven't taken my Lansoprazole as I was convinced it was giving me the back, shoulder and arm pain. Well today that pain has disappeared but I do have the heartburn back behind my breastbone and in between my shoulder blades. Both pains are bad so I'm not quite sure what to do now🤔.

Please can someone remind me if there is a problem with Ranitidine as I saw it on the news lately? Out of desperation at work I have taken a Ranitidine and it has eased the pain a bit. I also have some Omeprazole at home which I could try. I see fro ForLyla's post that taking PPIs has set her book. Will this do the same for me? I really am still not sure whether it's the Duloxetine causing this or if it's the polyp in my stomach and inflamed oesophagus which were picked up on a recent endoscopy. Still feeling very confused.

Thanks.

#18 fishinghat

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Posted 16 October 2019 - 07:56 AM

This is the latest information.

https://www.fda.gov/...ntac-ranitidine
Update [10/2/19] - FDA varified that the lab method used in the analysis of ranitidine by the original testers was an inapproprite test procedure. It used too high an analytical temperature which lead to the production of NDMA. The correct procedure has been issued.

https://www.drugs.co.../1991-1283.html
September 25, 2019 -- Apotex Corp. is voluntarily, on a precautionary basis, recalling Ranitidine Tablets 75mg and 150mg (All pack sizes and Formats) to the Retail level. Apotex has learned from the U.S. Food and Drug Administration and other Global regulators that some ranitidine medicines including brand and generic formulations of ranitidine regardless of the manufacturer, contain a nitrosamine impurity called N-nitrosodimethylamine (NDMA) at low levels. To date, Apotex has not received any reports of adverse events related to use of the product.


#19 fishinghat

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Posted 16 October 2019 - 07:59 AM

Omeprazole is a definite no-no. It has a serious effect on the absorption of Cymbalta.

#20 Polly38

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Posted 16 October 2019 - 08:19 AM

Thanks FH. Is Lansoprazole OK then as it's a PPI? If Ranitidine doesn't work I may have to go back to Lansoprazole and put up with the joint pain.

#21 fishinghat

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Posted 16 October 2019 - 01:46 PM

Sorry to make you wait Polly but it was my day for my semiannual physical. All seemed alright to the dr.

lansoprazole should be OK. The two are metabolized by different enzymes.

CYP2C19) and(CYP3A4) - lansoprazole
CYP2D6 and CYP1A2 - Cymbalta

#22 Polly38

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Posted 16 October 2019 - 01:56 PM

No problem FH. Glad everything is OK with you. The bead drop seems to have gone OK. I still have the pain behind my breastbone an keep going hot now and again but no anxiety or any other symptoms.

I figure I'm going to have this pain for a while anyway (until I get it under control) so I thought I would drop a bead every 2 days to see how I go. Do you think this is a good plan?

Thanks very much.

#23 fishinghat

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Posted 16 October 2019 - 04:13 PM

Not a bad plan. just be ready to stop weaning if things start to flair up. When you get down to a total of 10 beads a day you might need to go slower but we will see.

#24 Lovey

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    Trying to get off of this poisonous drug. Need support and help!Down from 120mg to 7mg.
    Am currently taking 18 beads 2x per day. A split dose method. 4 am and 4 pm. Pausing to stabilize.

Posted 16 October 2019 - 09:27 PM

Hi friends, acupuncture appointment went great. No major changes yet. We'll see if any improvement tomorrow. i do feel happy tingling in my lower legs where she put most of the needles and my face is warm. I will sleep like a log tonight! Thinking of you all, wishing you wellness and peace. I still feel like I am falling backwards down a well or off the edge of the earth. My neck and shoulder symptoms have been going on longer than i have been on cymbalta Polly. Stress, tension, poor posture, misalighned atlas bone in neck, previously poor diet, head trauma and a couple of car accidents all contribute to my pain problem. I am slowly fixing the things I can. Some shiatsu will help me too I think, work the knots out. Good night all.



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