Jump to content



Photo

Need Advice, Long Story


  • Please log in to reply
261 replies to this topic

#241 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 25 September 2020 - 05:24 PM

Awesome RD - well done. I know how the highway (or motorway for us Brits) can be a source of anxiety.

 

Last weekend I stuck in a gridlock for 50 minutes!! I don't mind when the queue is at least moving, but no, this was bumper to bumper at a standstill. That was a test for my anxiety I can tell you!!

 

But back to you - very proud. Keep it up.

 

The mrs is doing ok. She is very conscious of my stress levels so she is keeping a lot to herself and is able to all the while she has visits from the mental health team. Without them, she could crack and unleash it all on me!! One day at a time for her, but she is going a lot of mindful stuff that has been set by the MH team and it seems to help.


#242 RoaldDahl

RoaldDahl

    Good Friend

  • Site Supporter
  • 103 posts

Posted 03 October 2020 - 06:55 AM

Fishing/IUN need advice friends. 

 

I am at the end of week 5 of being clean of the benzo's now. I still have a hard time during the night. I got really low BP, dizzy and feel extremely uncomfortable. This happens almost every night. Might this be the Citalopram I take at 4 PM? Might it still be the Cymbalta which my body is missing and adjusting to? Can this still be from the benzo withdrawal? 

 

I will give it more time anyhow. Still extremely tired. 


#243 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 03 October 2020 - 08:03 AM

Any withdrawal causes stress and that almost always raises bp. I noticed that you are taking the Citalopram at 4 PM  which happens to be around the time your blood pressure first starts to drop in the evening anyway. I would suggest changing to taking the Citalopram around 10 or 11 AM when your bp tends to be at its highest. 

 

The FDA reports that 2.3% of those taking Citalopram report developing low blood pressure. A likely source of your problem. Something else to consider is taking half your dose first thing in the AM and the other half early in the afternoon.

 

Hang in there RD. You are doing well. 


#244 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 03 October 2020 - 09:57 AM

I would have said exactly the same as Hat here. Peak plasma level will typically be around 4 hours after taking the dose which will coincide with your bodies natural time for winding down. 

 

Due to the extended half life of the Citalopram, you will be able to switch overnight with minimal effects. So do not take your dose at 4pm, perhaps move to just before sleep, then tomorrow, take the dose in the morning when you wake. 

 

You may feel a few symptoms as a result of the delayed dosing, but they will be minimal.

 

We then need to give it a good 3 days at the new dose time to see if this has cured the issue. 

 

Again, as Hat said, we could split the dose over twice a day, but given the longer half-life this is likely to have less of an effect, so would opt for the above in the first instance.

 

Let us know how it goes. 


#245 RoaldDahl

RoaldDahl

    Good Friend

  • Site Supporter
  • 103 posts

Posted 10 October 2020 - 06:09 AM

Hello Friends!

 

How is your wife doing IUN?

 

Update from me and some questions for IUN and Hat:

 

Finished week 6 of being clean of the benzo's. Saw improvement on the amount and severity of my panick attacks. Only had 2 attacks this week which lasted about 20 minutes each. 

However, I still am extremely tired, feel flu like, weak, shake a lot and my legs feel like theyre made out of iron. Could this still be benzo withdrawal entering week 7?

 

How much is my old cymbalta usage still in play?

 

Btw I found a video which shows exactly what happened to me when I quit Cymbalta for the first time in 2017 and I had it for 2 months straight: 


#246 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 10 October 2020 - 08:33 AM

It takes your nervous system up to 2 years to fully recover from a benzo withdrawal. This tiredness is often referred to as "benzo fatigue" and can last a couple months after the last dose. Your previous Cymbalta wean would make your nerves more sensitive but I imagine this is mostly due to your benzo withdrawal.


#247 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 10 October 2020 - 09:18 AM

Hi RD...

 

I had exactly the same tremors as shown in that video, but they progressed to pseudo non-epileptic seizures (PNES). It seems that my brain has "learnt" that now and whenever stress gets to a certain point, it will kick off again. I really hope that it subsides, but the key is in not letting the stress get to that point in the first place.

 

Glad to hear that you are still improving and Hat is the benzo guy, so he has you covered on that score.

 

The wife is ok-ish. She was discharged from the crisis team last friday and now under the community team so has less contact. Weekly visits instead of daily, and no emergency number during the day - only at night. It is a big jump. She is having good days and bad days with regards to her panic. She isn't quite where you are as she says that it is always there in the background, it is just a question of how much she can tolerate, or ignore it. But based on where she was 4 weeks ago, it is for sure an improvement...

 

IUN


#248 RoaldDahl

RoaldDahl

    Good Friend

  • Site Supporter
  • 103 posts

Posted 24 October 2020 - 01:35 PM

Hello friends,

 

First of all, hope you are all doing alright!

 

An update from my side: it's been 8 weeks now since I've stopped the valium taper and I seem to go through withdrawal. I just don't know if this is all worth it. I didn't have anxiety like this while being on Cymbalta. Ever since I stopped I have experienced the most horrific anxiety attacks ever. 

My taper was too fast and brutal as well. 

 

I don't know if I can still be ''fixed'' and it makes me incredibly sad. 

 

Each morning I still wake up with an anxious feeling. My body hasn't feeled relaxed for a single day. I dont know if it's PAWS or something else but life just isn't worth it to me this way. I'm not suicidal but I have been in this mess since February and I am losing hope. 

 

I will try to hold on for another month without benzo's and see if I get any relieve. My symptoms come and go. They definately aren't as intense as in the first four weeks that I have stopped tapering but my god is this hard. I am being tested each day and I would just wish to feel normal for once. I am sorry for ranting but I am truly suffering a lot. I really hope this is all still withdrawals from the mess that I went through with oxazepam/zolpidem and then a valium taper. I have 0 support. My doctor says it's impossible that I still have withdrawals and wants me off the citalopram and onto a heavier antidepressum. I really don't want that. 

I dont know what to do anymore friends. 


#249 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 24 October 2020 - 04:33 PM

RD...

 

Am I glad to see you!

 

I bring interesting news. You may or may not have known, depending on how much of my history you read on here, but after my Cymbalta withdrawal, and during it, I have suffered seizures. The only thing that stopped them, other than Kratom, is Valium. So 2 years ago I was prescribed it to prevent them. I have since required them to keep them under control. I hit tolerance at 5mg, and had to go to 10mg. Long story short, I haven't needed them nearly as much and it wasn't until I realised that I still have twice as many pills left over at the end of the month than normal, that it came to me. I was unknowingly almost cold turkeying myself!!

 

For the last couple of weeks I have had all manner of crap just like you. Headaches, very stuffy head, zaps, eye pain, muscle aches and some very troubling depression. But the fatigue has been out of this world. 4 days in the sack last week. Nowt I could do. Got me so low. Oddly enough the anxiety hasn't hit, but then again, I have been through a lot of CBT to deal with it. But like you are saying, life can be down right horrible - especially in the mornings.

 

Hat uncovered this for me a few days ago as I just couldn't see it. So I am day 2 back on a 10mg daily dose and I need to settle before thinking it through properly, but I am very worried knowing what it can do. Makes me almost not want to do it.

 

Your doctor is an idiot (sorry Hat - taken your saying!). Of course this is still withdrawal. Too early to be considered PAWS too, so don't worry. And what does he define as a "heavier antidepressant"? All AD's are relative to the person. If things don't improve it might be better supplementing rather than playing the AD roulette. You DON'T need any more tapers for a while, trust me. I have been there and thank God, I am still here to live the tale. Cymbalta, Citalopram and Lyrica all at once. If I can do that, you can get through this. We're all here for you.

 

IUN


#250 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 24 October 2020 - 04:56 PM

IUN is right, your dr is an idiot. Of course this is still withdrawal. You are at the stage where you are about to turn a corner and start improving, just hold on. If you can, 600 mg of N-Acetylcysteine  twice a day can help take the edge off. Another option is around 0.2 to  0.5 mg of melatonin sublingual (under the tongue) until all is absorbed. Just hang in there. There is light at the end of the tunnel.


#251 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 24 October 2020 - 05:01 PM

There is light at the end of the tunnel.

 

Just to confirm, that light at the end of the tunnel is all-embracing sun light, not a train coming the other way :)

 

A little anecdote a friend once told me!!


#252 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 25 October 2020 - 07:52 AM

That is an oldie but a goodie.   :)


#253 RoaldDahl

RoaldDahl

    Good Friend

  • Site Supporter
  • 103 posts

Posted 25 October 2020 - 09:59 AM

My friends,

 

I don't know what I should do without you guys. Wish you guys lived closed so we could drink a beer once this mess is behind us. 

 

I will fight through this withdrawal. I have seen improvements but it's going superslow. I hope to see more improvements now that I am entering the 3rd month of being of benzo's. I will start taking the NAC 600MG again. 

 

My doctor advised me going to a heavier AD in this case towards a tricyclic AD. I really don't want to switch again. Coming of Cymbalta already gave me a traumatic experience. 

 

tricyclic antidepressantttr

IUN, I would definately follow the slow taper which Fishing adviced. If I can pull through this rapid taper you can do it through a slow one! We're all rockstars in here. How's the wife doing?


#254 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 25 October 2020 - 05:47 PM

Wish you guys lived closed so we could drink a beer once this mess is behind us. 

 

Amen to that!

 

Both myself and the wife are day 2 of NAC 600mg twice daily. Will report back on its progress.

 

Tricyclics are very much a black and white set of drugs. They work wonderfully, or ruin you. Tread carefully. Again, I would consider compounding with something that does not require an additional withdrawal.

 

The wife is doing the rapid taper insomuch that she had her pills taken away from her after her overdose. I can understand that, but there needs to be people in the health service that take responsibility for this stuff. We must have asked them a dozen times what they were doing. I have resorted to giving her a few doses from my own rx. I know I am not supposed to, but in this case I feel it is justified.


#255 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 26 October 2020 - 10:25 AM

A lot of tricyclics have been linked to heart issues as well.  I think that with time and patience these symptoms will pass. I really believe it is just benzo withdrawal.


#256 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 26 October 2020 - 05:56 PM

Believe Hat when he says that - he knows his Benzo information.

 

Tricyclics should be a last resort before a lobotomy :)


#257 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 26 October 2020 - 06:18 PM

Good God - The frontalneuro specialists in Massachusetts Hospital still perform lobotomies :o


#258 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 27 October 2020 - 08:13 AM

I wonder if they practiced on themselves first?  lol


#259 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 27 October 2020 - 07:47 PM

I wonder if they practiced on themselves first?  lol

 

:D  :lol:  :D  :lol:  :D


#260 RoaldDahl

RoaldDahl

    Good Friend

  • Site Supporter
  • 103 posts

Posted 10 November 2020 - 03:18 PM

He friends,

 

Been a while. 

 

Some updates: I am in week 11 of being clean of benzo's now. Still on 30mg Citalopram. 

 

Let's start with the positives first! I haven't had any big anxiety attacks, it's great! Not driving a lot yet because I don't want to push myself too much. I do go on the highway but maybe for drives of 20km max. I am so thankful not to have the serious heavy anxiety attacks anymore. 

 

The worst: insanely dizzy :) Mainly during the night I am walking like I am drunk. However, I can focus a bit more and even watch some TV!! HUGE Victory! Still have very random twitches when I am lying in bed. Some are very intense. Getting less fatigue but it still is there and I need 9 hours of sleep at least. If I don't I feel my symptoms 10x more. I have 0 motivation for work. Feel emotionally drained. Not really enjoying things yet but I hope that will come back. Besides that I am not complaining! :)

 

Will keep you guys updated!


#261 fishinghat

fishinghat

    Site Partners

  • Active Members
  • PipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPipPip
  • 12,418 posts
  • LocationMissouri

Posted 10 November 2020 - 05:07 PM

Sounds about right. You have done a good job. The fatigue should be totally gone soon and then your motivation should start returning. Very wise not to push yourself too much. Doing great just hang in there.


#262 invalidusername

invalidusername

    Site Partners

  • Site Supporter
  • 5,273 posts
  • LocationKent, UK

Posted 12 November 2020 - 08:10 PM

They way you have worded that is very positive - you are seeing the light at the end of the tunnel - this is a sure victory in the making.

 

Never forget to keep up the self-compassion. You have done a lot of hard work and you should reward yourself. Buy yourself something, treat yourself to a nice drink (if that is your thing)...

 

And its a well done from me too!





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users