Hi everybody , my names Michael and I would like some advice please
I have had two serious seizures now during the last three months and I think it could be down to Cymbalta.
It really has been a living nightmare for me and my mum. Almost destroyed us. Never had any problems like this before and it's knocked me for six. I believe it's called a ' Grand Mal ' All I recall when it happens is that my right side of my mouth locks tight and I'm powerless to do anything. I always make a loud scream and then wake up wherever and whenever. My first seizure happened when I went to open the door. It just took over me and I was powerless. I woke up on the floor with two paramedics talking too me.
Three months later and I'm beginning to get over it , when all of a sudden , whilst watching an episode of the grand tour , another awful sense of de ja vu came. My mouth locked up in the same place , felt I was being suffocated , an awful scream and I awoke with my mum holding me like I was a little baby again. Looked around and saw bits of half digested Pizza on the bed sheets and realised she just stopped me from choking.
The seizures are one thing but it's the bloody pain you have for days on end afterwards. I found it hard to breath , it hurt when I coughed and I couldn't stand.
Anyway , enough from me. I had an EEG which came back with no abnormalities , my blood test and count was fine. I'm still waiting on MRI.
From what I can gather from the Neurologists , they are going down the non epileptic route.
Me and my mum though believe it's down too Yentreve / Cymbalta. I've had problems with this stuff from the beginning which wasn't very long ago. I was previously on Effexor but had to come off due to Anaphalaxis attack.
Thought Cymbalta would be a good choice . It didn't do anything for me initially , therefor increased it too 40 and I felt it was working. Stayed on this for a while and then I noticed my hives appearing again . They would always come up at the same time every night. I didn't want another attack again so I deiced to lower the dose and this is when the problem with seizures began. Both seizures have now happened at almost the same time and at the same time as when the hives used to come up.
One last thing if you don't mind. I don't get this but boy is it scary , I had the paramedics out on Sunday because of it and had an emergency appointment today. I keep getting this weird feeling in the right side of my mouth. Exactly the same as when I would fit but now I'm aware of it.
I feel my mouth stick but I can open it and I can hear the click when I prise it apart. It feels so metallic like sometimes and numb.
Don't suppose anyone knows what that could be. I cannot sleep nor eat because I'm terrified it will happen again !
Any advice would be great . Sorry I banged on a bit but me and mum are feeling very jittery at the moment.